Hi
Apologies if i'm posting this in the wrong place - I couldn't find a suitable forum and this seemed the most appropriate.
We're looking for help obtaining a specialist air flotation mattress outside of the NHS for my severe ME-suffering mum. We live in Surrey, Southeast England. She has suffered with severe ME for 15 years, bedbound for the last 13 years, and her condition has worsened significantly this year to the point where she is currently unable to feed herself and needs an air mattress because of build-up of pressure pain. She does not have surface sores, but pressure pain particularly around the coccyx due to lack of tissue to protect her bones, leaving her currently needing strong painkillers.
She has tried two different air mattress types recently but neither have succeeded in relieving her pain. We believe that she needs an air flotation mattress, which she has had in the past; however having engaged with the local district nurse and a specialist tissue viability nurse, this does not appear to be an option through local NHS provision. The most recent type we have been offered is a new type of foam mattress (Dyna Foam Mercury) which my mum fears will not be suitable. We are willing to pay the cost in order to obtain such a mattress; however we are unsure what the process or mechanism is to do so and engaging with local NHS professionals or searching the internet has not yielded any results.
I wondered if anybody in the UK has had experience of going through the process of being seen by a private specialist and supplied with such a mattress?
If anybody has advice that can help us resolve this solution, in terms of the process and who we need to contact, we would be hugely grateful.
Many thanks
Will
Apologies if i'm posting this in the wrong place - I couldn't find a suitable forum and this seemed the most appropriate.
We're looking for help obtaining a specialist air flotation mattress outside of the NHS for my severe ME-suffering mum. We live in Surrey, Southeast England. She has suffered with severe ME for 15 years, bedbound for the last 13 years, and her condition has worsened significantly this year to the point where she is currently unable to feed herself and needs an air mattress because of build-up of pressure pain. She does not have surface sores, but pressure pain particularly around the coccyx due to lack of tissue to protect her bones, leaving her currently needing strong painkillers.
She has tried two different air mattress types recently but neither have succeeded in relieving her pain. We believe that she needs an air flotation mattress, which she has had in the past; however having engaged with the local district nurse and a specialist tissue viability nurse, this does not appear to be an option through local NHS provision. The most recent type we have been offered is a new type of foam mattress (Dyna Foam Mercury) which my mum fears will not be suitable. We are willing to pay the cost in order to obtain such a mattress; however we are unsure what the process or mechanism is to do so and engaging with local NHS professionals or searching the internet has not yielded any results.
I wondered if anybody in the UK has had experience of going through the process of being seen by a private specialist and supplied with such a mattress?
If anybody has advice that can help us resolve this solution, in terms of the process and who we need to contact, we would be hugely grateful.
Many thanks
Will