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spasmophilia

Discussion in 'General ME/CFS Discussion' started by kisekishiawase, Nov 20, 2013.

  1. kisekishiawase

    kisekishiawase sad

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    i have posted a reply on the news section about ME/CFS name internationally. but since theres no answer i have to try here :( i noticed there some people mention spasmophilia is another name for cfs, me, in other country. i also read it got correlated with fibro.
    since im still pretty clueless i was hoping if someone who knows more could shed some light.
    i got diagnosed with spasmophilia. but when i heard the symptoms some of it i dont experience like twitch, spasm, hyperventilation. but what i do have the symptoms listed as muscle ache, cramp, weakness. it does say theres some electrolyte imbalance to it.
    ME/CFS, POTS are not widely known here (i dont know about fibro might have to ask).
    also i read many people who have fibro also got heart problems so i wonder if that also my case.
  2. Valentijn

    Valentijn Activity Level: 3

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    @kisekishiawase - Spasmophilia should prominently involve violent spasming. I think ME/CFS generally involves more along the lines of muscle twitching, and not as what I'd consider to be a major symptom. At least, it's not particularly disabling or painful, just annoying. They really don't seem to be the same thing at all.

    Fibromyalgia shouldn't involve consistent post-exertional malaise. Though the two conditions do have a lot of overlapping symptoms and are often co-morbid.
    helen1 and Snowdrop like this.
  3. kisekishiawase

    kisekishiawase sad

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    @Valentijn

    well thats what i dont get i dont notice i got spasm but cramp yes. also they said spasmophilia usually have electrolyte imbalance, mainly cal, mag and pot, natrium. but i did blood test before and they still in ormal range although some on borderline.

    http://www.independent.co.uk/life-s...th-you-it-depends-where-you-live-1675127.html
    Britain and France: chronic fatigue and spasmophilia

    French doctors do not recognise the condition known as ME (myalgic encephalitis) or Chronic Fatigue Syndrome (CFS), which is widely known and frequently diagnosed in Britain. Often the condition is triggered by a viral illness, such as glandular fever. Most people get over it but some become trapped in monitoring their symptoms, restricting their activities beyond what is necessary and getting demoralised.

    Professor Wessely, a specialist in the problem, said: "In Britain, people with chronic fatigue think that if they do too much the virus that caused it is still there and will come back and make them worse. That is catastrophising the illness. They don't think like that in France and they don't have the same outcomes. It is how you respond to symptoms that determines the outcome."

    He described how a French physician from Lyon who spent a sabbatical in the UK was astonished at the sight of children with chronic fatigue in wheelchairs at Great Ormond Street hospital. "He returned to Paris and wrote an article about how there was just no equivalent in France."

    In place of chronic fatigue, the French suffer from spasmophilia –<<-- here
  4. Valentijn

    Valentijn Activity Level: 3

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    I'm not sure how Wessely thinks they'd keep track of outcomes if the disease doesn't exist there :rolleyes:
    Tito likes this.
  5. Allyson

    Allyson *****

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    I
    HI I have never heard of spasmophilia sorry!
    YOu may want ot read up about your symptoms more on forums like this to clarify what you DO have ie which precie sympotoms - make a list - it usually takes some time.
    this will help you sort out things like ME/cfs fibro, POTS , EDS ( Ehlers-Danlos syndrome) etc as many of them have similar-seeming symptoms .

    Then ask around for good doctors near you who can believe you and help you and not harm you

    good luck


    Ally
  6. Allyson

    Allyson *****

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    Wessely is a magician - we just need to think a disease is not true and it will magically go away!

    Great ! a cure for all illnesses is finally here then.

    Can't wait to see him try it out on cancer, diabeties, epilepsy, polio, MS too!



    A
  7. kisekishiawase

    kisekishiawase sad

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    well this is what i found which pops up some question. does it have connection. too bad i could have access to some of the books though i want to find more info.
    [​IMG]
    [​IMG]
    [​IMG]

    @Allyson looks like another little known disease :( and have some similiar symptoms. i do have joint crack and ache though. and thx for the link in pm i will ask more about it.
  8. Cheshire

    Cheshire Senior Member

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    France
    The claim made by Wessely that ME/CFS does not exist in France relies on nothing more than his own belief that ME/CFS is a psychosocial construction where psychological distress expresses in a cultural form, the French cultural form being spasmophilia, according to him. These are two different conditions with nothing in common. Spasmophilia is the french name for hyperventilation syndrom. This term is less used now, as it does not fit the international classifications, but is still quite popular. ME/CFS is really less diagnosed than fibromyalgia which is quite common, but it does not mean that there are no ME/CFS sufferers in France!
    Allyson and Valentijn like this.

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