A Little Poisoning Along the Road to ME/CFS
Looking at my symptoms, many of which are far less these days and some are gone, it would be easy to figure that I'd just been dealing with some heavy-duty menopausal issues.
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Spanish govt withdraw disability pension because patient gives online support

Discussion in 'Petitions' started by JoanDublin, Jul 11, 2014.

  1. JoanDublin

    JoanDublin Senior Member

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    Dublin, Ireland
    Came across this on Twitter. Spanish govt have taken away the disability pension of a severely ill MEcfs person because they say if he can give online support, then he can work! Please read the attached and perhaps consider sending an image and/or a note of support for their campaign. Email is in the attached link Many thanks
    https://t.co/DheIL5O5ua
     
    Esther12, SilverbladeTE and Valentijn like this.
  2. chipmunk1

    chipmunk1 Senior Member

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    would they have done the same if he had MS? doubt it.
     
  3. Valentijn

    Valentijn Activity Level: 3

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    How ridiculous ... I wonder if they're targeting him because he's the president of a support group. There's a huge difference between giving advice at your convenience over the internet, and holding down a job with ANY quality or hours-based requirements.

    Disgraceful.
     
    taniaaust1, Ema, SOC and 4 others like this.
  4. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    f' typical!

    yes I can chat on the Net, yet get sick worn out walking to local shop , and doing art purely for fun rips hell out of me.
    Now we can't work unless we have this very light and do suitable low intensity, little if any travel work

    more weights on the scales against government tosspots, bureaucratic jellyfish and psych scum
     
    JoanDublin likes this.
  5. Mij

    Mij Senior Member

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    There were cases here in Canada where people were stripped of their disability benefits from posting vacation pictures on their facebook pages. Not neccessarily people with ME but we have to be careful because they don't understand our illness.

    This was on the news a few years ago
     
    Cheshire and Valentijn like this.
  6. IreneF

    IreneF Senior Member

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    Interesting. So if you are getting disability you have to stay home while the rest of the family takes a vacation? And lying on your couch and typing a few lines between naps means you are employable?
     
    taniaaust1, SDSue, MeSci and 2 others like this.
  7. Esther12

    Esther12 Senior Member

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    Best luck to all affected, especially the person mentioned here. Good way of undermining any attempt at advocacy.
     
    taniaaust1, Sean, Aileen and 3 others like this.
  8. Gingergrrl

    Gingergrrl Community Support Volunteer

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    Wow that is disgraceful. I guess it validates why I am not on Facebook Twitter or any website in which you use your real name or picture.
     
  9. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Cornwall, UK
    I found a webpage in Spanish about this, and got a rather poor Google translation of it:

    http://translate.google.co.uk/trans...HuM&rls=org.mozilla:en-US:official&channel=sb

    So, if they want to make people work because they can, and do, help fellow-patients (and who else does if you have ME or MCS?), perhaps they could find a suitable job for such people. One with completely flexible hours that allows one to suddenly stop work and lie down for unpredictable periods, to take days, weeks or months off sick, to work slowly, to be unable to meet deadlines, to take frequent breaks of unpredictable length, to avoid chemical exposure, and perhaps to work from one's bed?

    I'm sure many of us would happily do such a job - paid work is better than benefits! But where are such jobs?
     
  10. Mij

    Mij Senior Member

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    . . . and would allow us not shower for days or weeks because it makes those of us with OI or NMH symptoms worse.
     
  11. IreneF

    IreneF Senior Member

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    Finally, another one of the great unwashed. I really miss those long, hot soaks.
     
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  12. Countrygirl

    Countrygirl Senior Member

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    This is a horrid situation that also threatened those of us in the UK who helped other patients a few years ago. Please take action to help the Spanish patients who are having their benefits removed for helping others on the internet.

    Thanks.

    CG.




    http://www.ligasfc.org/?p=704

     
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  13. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    Those who forget the past, are doomed to repeat its mistakes

    the Elite are pushing Eugenics again, same as before, all really about saving them pittance in tax no matter how many die
     
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  14. Mij

    Mij Senior Member

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  15. Countrygirl

    Countrygirl Senior Member

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    Last edited by a moderator: Jul 16, 2014
  16. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    if it was someone with cancer supporting others, there would be donations flooding in for them.
    WEIRD?
     
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  17. taniaaust1

    taniaaust1

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    Yeah, its just another example of how differently "biases" we are being treated compared to other illnesses.
     
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