The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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South Africa joins the ME/CFS "Fold"

Discussion in 'General ME/CFS News' started by Old Bones, May 27, 2016.

  1. Old Bones

    Old Bones Senior Member

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    CANADA
    My search this morning for news articles on ME/CFS found the following:
    http://benonicitytimes.co.za/257890...red-or-woman-home-bound-by-invisible-disease/

    An interesting quote: “In 2005, a woman in Roodepoort was the first in South Africa, whose cause of death was classified as ME,”

    Despite a few "small errors" in the article, the women interviewed, one of them a founder of the recently-established ME CFS Foundation of South Africa, were generally satisfied that the devastation of the illness comes across, as reported in their facebook page.

    http://mecfssa.org/
    https://www.facebook.com/MECFSFoundationSA/

    They've done a good job on the websites -- very professional with many well-chosen links.

    Here's another link to a recent newspaper article.
    http://northeasterntribune.co.za/182223/foundation-seeks-help-raising-funds-for-invisible-illness/

    Great to see the word being spread from another location.
     
    Jennifer J, actup, Justin30 and 24 others like this.
  2. Sushi

    Sushi Senior Member Albuquerque

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    Albuquerque
    This is very interesting for me as I had my first ME/CFS symptoms while living in South Africa. I tried various doctors, naturopaths--you name it--in South Africa for 15 years and then gave up on finding any help. So glad that awareness is growing there.
     
    Sidereal, Jennifer J, rosie26 and 7 others like this.
  3. JaimeS

    JaimeS Senior Member

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    Mid-Ohio Valley, United States
    I wrote to them awhile back about #MillionsMissing -- no response. But it was awhile back, and they may have just been getting their feet under them :)
     
    actup, rosie26, ballard and 4 others like this.
  4. Art Vandelay

    Art Vandelay Senior Member

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    Adelaide, Australia
    Coincidentally, my interest in an infectious cause for my ME/CFS and my odd reactions to antibiotics led me to the website of a doctor who treats ME/CFS in South Africa. She was finding that many patients had rickettsia infections and developed an antibiotic protocol to treat it: http://cecilejadin.info/about-dr-cecile-jadin.html
     
    Sushi, JaimeS, sarah darwins and 4 others like this.

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