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Soundtrack of your CFS life…

Discussion in 'Lifestyle Management' started by SB_1108, Dec 15, 2015.

  1. SB_1108

    SB_1108 Senior Member

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    I thought it would be a good idea to start a thread of songs that you feel relate to your CFS life. Maybe this could be ongoing thread and could serve as inspiration for future CFS documentaries? Or just those that need music they can identify with...

    I have three songs that I will post but I would love for others to add their CFS songs!

    I’ll do sad ones first and end with a more upbeat one! ;)

    First one: Adele - "Million Years Ago”
    (I had a difficult time finding audio for this one on YouTube - so I don’t know how long this link will work):


    Lyrics

    I only wanted to have fun
    Learning to fly learning to run
    I let my heart decide the way
    When I was young
    Deep down I must have always known
    That this would be inevitable
    To earn my stripes I'd have to pay
    And bare my soul

    I know I'm not the only one
    Who regrets the things they've done
    Sometimes I just feel it's only me
    Who can't stand the reflection that they see
    I wish I could live a little more
    Look up to the sky not just the floor
    I feel like my life is flashing by
    And all I can do is watch and cry
    I miss the air I miss my friends
    I miss my mother I miss it when
    Life was a party to be thrown
    But that was a million years ago

    When I walk around all of the streets
    Were I grew up and found my feet
    They can't look me in the eye
    It's like they're scared of me
    I try to think of things to say
    Like a joke or a memory
    But they don't recognise me now
    In the light of day

    I know I'm not the only one
    Who regrets the things they've done
    Sometimes I just feel it's only me
    Who never became who they thought they'd be
    I wish I could live a little more
    Look up to the sky not just the floor
    I feel like my life is flashing by
    And all I can do is watch and cry
    I miss the air I miss my friends
    I miss my mother I miss it when
    Life was a party to be thrown
    But that was a million years ago
    A million years ago

    Second Song: Sia - "I’m in Here"


    Lyrics

    I'm in here, can anybody see me?
    Can anybody help?
    I'm in here, a prisoner of history
    Can anybody help?

    Can't you hear my call?
    Are you coming to get me now?
    I've been waiting for you to come rescue me
    I need you to hold
    All of the sadness I can not, living inside of me

    I'm in here, I'm trying to tell you something
    Can anybody help?
    I'm in here, I'm calling out but you can't hear
    Can anybody help?

    Can't you hear my call?
    Are you coming to get me now?
    I've been waiting for you to come rescue me
    I need you to hold
    All of the sadness I can not, living inside of me

    I'm crying out, I'm breaking down
    I am fearing it all, stuck inside these walls
    Tell me there is hope for me
    Is anybody out there listening?

    Can't you hear my call?
    Are you coming to get me now?
    I've been waiting for you to come rescue me
    I need you to hold
    All of the sadness I can not, living inside of me

    Can't you hear my call?
    Are you coming to get me now?
    I've been waiting for you to come rescue me
    I need you to hold
    All of the sadness I can not, living inside of me

    I'm in here, can anybody see me?
    Can anybody help?

    Third Song: Florence & the Machine - “Shake it Out"
    Maybe not quite as relevant but it gives me motivation.


    Lyrics

    Regrets collect like old friends
    Here to relive your darkest moments
    I can see no way, I can see no way
    And all of the ghouls come out to play

    And every demon wants his pound of flesh
    But I like to keep some things to myself
    I like to keep my issues drawn
    It's always darkest before the dawn

    And I've been a fool and I've been blind
    I can never leave the past behind
    I can see no way, I can see no way
    I'm always dragging that horse around

    All of his questions, such a mournful sound
    Tonight I'm gonna bury that horse in the ground
    So I like to keep my issues drawn
    But it's always darkest before the dawn

    Shake it out, shake it out, shake it out, shake it out, ooh whoa
    Shake it out, shake it out, shake it out, shake it out, ooh whoa
    And it's hard to dance with a devil on your back
    So shake him off, oh whoa

    And I am done with my graceless heart
    So tonight I'm gonna cut it out and then restart
    'Cause I like to keep my issues drawn
    It's always darkest before the dawn

    Shake it out, shake it out, shake it out, shake it out, ooh whoa
    Shake it out, shake it out, shake it out, shake it out, ooh whoa
    And it's hard to dance with a devil on your back
    So shake him off, oh whoa

    And it's hard to dance with a devil on your back
    And given half the chance would I take any of it back
    It's a fine romance but it's left me so undone
    It's always darkest before the dawn

    Oh whoa, oh whoa...

    And I'm damned if I do and I'm damned if I don't
    So here's to drinks in the dark at the end of my road
    And I'm ready to suffer and I'm ready to hope
    It's a shot in the dark aimed right at my throat
    'Cause looking for heaven, found the devil in me
    Looking for heaven, found the devil in me
    Well what the hell I'm gonna let it happen to me, yeah

    Shake it out, shake it out, shake it out, shake it out, ooh whoa
    Shake it out, shake it out, shake it out, shake it out, ooh whoa
    And it's hard to dance with a devil on your back
    So shake him off, oh whoa

    Shake it out, shake it out, shake it out, shake it out, ooh whoa
    Shake it out, shake it out, shake it out, shake it out, ooh whoa
    And it's hard to dance with a devil on your back
    So shake him off, oh whoa

    What are your CFS songs?
     
  2. TiredSam

    TiredSam The wise nematode hibernates

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  3. Effi

    Effi Senior Member

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    A lot of the words of this song really capture the feeling of being isolated from any kind of social life, indefinitely. Especially the chorus was a part that I used to sing in my head when friends would ask me when when when I was gonna hang out with them again:

    If I ever feel better
    remind me to spend some good time with you
    You can give me your number
    When it's all over I'll let you know

    (warning - thick accent)
     
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  4. msf

    msf Senior Member

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    I don´t have any ME songs per se, as I still listen to all the types of music I listened to before I fell ill, but it´s funny how a song can remind you of your state of mind (PACE idiots please note, this was largely a result of my state of bodily health) when you first listened to it. When I discover some new music I like I listen to it over and over, which really reinforces this association. When I first fell ill with ME, and my state of mind (see above) was more depressed than it is now, I listened to Dillon´s first album a lot. When I hear it now I feel as ill as I did last year! I still like the album, but it doesn´t go with my mood at the moment. I had the same thing with Arcade Fire´s Funeral, which I happened to discover whilst I had a particularly bad cold/earache thing, and now when I listen to it I am transported back to sitting in my apartment in Taiwan and listening to the album whilst taking Chinese medicine which made my headache worse!

    It´s funny also how hearing a song again can make you realise you were depressed when you first listened to it. I had this experience with Sparklehorse. When I first discovered them, I just thought it was really good music, which I still do, but now when I listen to it it also makes me think that I must have been really depressed back then!

    Just to show I´m not a total downer, and to show that my state of mind has improved since last year, I listened to Public Enemy´s Harder Than You Think on repeat for about a week, and the title seems kind of appropriate for ME.
     
    Last edited: Dec 17, 2015
  5. worldbackwards

    worldbackwards A unique snowflake

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    Do I have ME songs as such? I don't know, but I suppose occasionally bits of songs pick up a certain resonance. I take music very seriously, indeed I still buy records, so it's something that I think about a fair bit.

    I think this song is my favourite of the year that I could crowbar into being an ME song. It's obscene that Grimes is that talented and she must be about 12 or something. Makes me feel very old.


    It's a bit too cheerful to be an ME song really, but I feel like I'm getting somewhere so maybe that's okay. If I felt miserable about it I suppose I might listen to Comet Gain, who aren't very well known even in the UK, but excel in a kind of doomed romantic poetry that I can relate to on some days.


    They're cheery like that. Actually they aren't always that miserable.

    Finally, this is to be played loudly and often on the day when the PACE authors are forced into retreat!
    (No video - the old git's taken it down)
     
    Last edited: Dec 15, 2015
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  6. Jennifer J

    Jennifer J Senior Member

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    It seems that this song runs through my head when my brain is not up to par.

    Wizard of Oz's - If I Only Had a Brain.

     
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  7. Groggy Doggy

    Groggy Doggy Senior Member

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    1. River
      Joni Mitchell
      It's coming on Christmas
      They're cutting down trees
      They're putting up reindeer
      And singing songs of joy and peace
      Oh I wish I had a river I could skate away on

      But it don't snow here
      It stays pretty green
      I'm going to make a lot of money
      Then I'm going to quit this crazy scene
      Oh I wish I had a river I could skate away on

      I wish I had a river so long
      I would teach my feet to fly
      I wish I had a river I could skate away on
      I made my baby cry

      He tried hard to help me
      You know, he put me at ease
      And he loved me so naughty
      Made me weak in the knees
      Oh, I wish I had a river I could skate away on

      I'm so hard to handle
      I'm selfish and I'm sad
      Now I've gone and lost the best baby
      That I ever had
      I wish I had a river I could skate away on

      Oh, I wish I had a river so long
      I would teach my feet to fly
      I wish I had a river
      I could skate away on
      I made my baby say goodbye

      It's coming on Christmas
      They're cutting down trees
      They're putting up reindeer
      And singing songs of joy and peace
      I wish I had a river I could skate away on


    Jewel
    i'm sensitive
    i was thinking that i might fly today / just to disprove all the things that you say / it doesn't take a talent to be mean / your words can crush things that are unseen

    so please be careful with me, i'm sensitive / and i'd like to stay that way

    you always tell me that it's impossible / to be respected and be a girl / why's it gotta be so complicated? / why you gotta tell me if i'm hated?

    so please be careful with me, i'm sensitive / and i'd like to stay that way

    i was thinking that it might do some good / if we robbed the cynics and took all their food / that way what they believe will have taken place / and we can give it to people who have some faith

    so please be careful with me, i'm sensitive / and i'd like to stay that way

    i have this theory that if we're told we're bad / then that's the only idea we'll ever have / but maybe if we are surrounded in beauty / someday we will become what we see / 'cause anyone can start a conflict / it's harder yet to disregard it / i'd rather see the world from another angle / we are everyday angels / be careful with me 'cause i'd like to stay that way

     
    Last edited: Dec 16, 2015
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  8. aaron_c

    aaron_c Senior Member

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    I mostly have songs that are about ME/CFS if you squint. I tried to include the lyrics that seem pertinent.

    First, two from Bruce Springsteen, the king of the down-but-not-out.

    The River

    Actually, I always thought it was "is a dream still alive if it don't come true / or is it something worse." You know, like Harlem by Langston Hughes:

    One Step Up

    On a lighter note (if you watch the music video, anyhow). I definitely identify with the chorus of this song.


    Finally, A Thousand Kisses Deep. I love this song, so maybe I was just looking for an excuse to include it. But as far as it is a song about finding meaning after "your little winning streak" is done, I think it fits.


     
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  9. Groggy Doggy

    Groggy Doggy Senior Member

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    This one if perfect for a ME movie soundtrack.

    Don't let the sun go down on ME



    I can't light no more of your darkness
    All my pictures seem to fade to black and white
    I'm growing tired and time stands still before me
    Frozen here on the ladder of my life

    It's much to late to save myself from falling
    I took a chance and changed your way of life
    But you misread my meaning when I met you
    Closed the door and left me blinded by the light

    Don't let the sun go down on me
    Although i search myself, it's always someone else I see
    I'd just allow a fragment of your life to wander free
    But losing everything is like the sun going down on me

    I can't find oh, the right romantic line
    But see me once and see the way I feel
    Don't discard me just because you think I mean you harm
    But these cuts I have, oh they need love to help them heal

    Don't let the sun go down on me
    Although I search myself, it's always someone else I see
    I'd just allow a fragment of your life to wander free
    But losing everything is like the sun going down on me

    Don't let the sun go down on me
    Although I search myself, it's always someone else I see
    I'd just allow a fragment of your life to wander free
    But losing everything is like the sun going down on me
     
  10. hellytheelephant

    hellytheelephant Senior Member

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    Great idea for a thread!!! Here is mine- I find this an enigmatic song that I can come back to again and again..to me it is about hanging on to hope in the middle of not really having it ( if you see what I mean.,,)
    Sometimes it is as if it is only memories keeping me held together.



    The The -This is the Day

    Well you didn't wake up this morning 'cause you didn't go to bed
    You were watching the whites of your eyes turn red
    The calendar on your wall was ticking the days off
    You've been reading some old letters
    You smile and think how much you've changed
    All the money in the world couldn't buy back those days

    [Chorus]
    You pull back the curtain
    And the sun burns into your eyes
    You watch a plane flying
    Across a clear blue sky
    This is the day, your life will surely change
    This is the day, when things fall into place

    You could have done anything, if you wanted
    And all your friends and family think that you're lucky
    But the side of you they'll never see
    Is when you're left alone with your memories
    That hold your life together, like glue
     
  11. Christian Godbout

    Christian Godbout

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    This thread is a great idea! I hope @SOnset joins it, I find his use of music in his videos so well done.

    The following would be my pick. Sorry if it is a bit on the heavy side (Wagner…) - the mesmerizing prologue to the movie "Melancholia".

    No lyrics, just music and images, but some are great metaphors of what coming down with this illness is (not the least of which is the cosmic crash…)

    And above all, it's as sloooooooooow as can be... Time nearly stops…

     
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  12. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    On 9 December 2009, Portishead released the song "Chase the Tear" for Human Rights Day to raise money for Amnesty International UK.
    International human rights day (10 December) marks the anniversary of the United Nations historic Universal Declaration Of Human Rights on 10 December 1948. The UDHR set out for the first time in a single document the fundamental rights to which everyone, everywhere is entitled - including the right to life, liberty, security, the freedoms of opinion, association and expression, and the right not to be subjected to torture or cruel, inhumane and degrading treatment.


    Looking out Looking in
    Going where Never been
    Running round Hiding in stairs

    Unafraid Felt the grain
    Open doorways full of shame
    My own life I resented

    Winter sigh Summer's gone
    Holding off tomorrow's sorrow

    Brushing out Brushing in
    Losing out Losing thee
    Didn't take My heart

    Didn't fold Chase the tear
    Never let go Now I'm there
    It's over It's over

    Winter sigh Summer's gone
    Holding off tomorrow's sorrow
    So I don't want anymore
     
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  13. halcyon

    halcyon Senior Member

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  14. meandthecat

    meandthecat Senior Member

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    I have tended to use music to ..fuel my fire, support my ..rage at the machine that has left me in this place and help with ..Insomnia.
    Perhaps the soundtrack to the worst of times was.. UAV, limp bizkit. It's good for preparing to meet the doc.
    Anger is a gift.
     
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  15. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    @meandthecat - what kind of cat is that? It has such striking markings.
     
  16. hellytheelephant

    hellytheelephant Senior Member

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    If I can be permitted another song: Reasons to Be Cheerful Part 3. By Ian Dury
    Guaranteed cheer up music....and I particularly like the line 'Why don't you get back into bed?' - Often how I feel!!!




    Reasons to be Cheerful - Part 3

    Why don't you get back into bed
    Why don't you get back into bed
    Why don't you get back into bed
    Why don't you get back into bed...

    Reasons to be cheerful part 3
    1 2 3

    Summer, Buddy Holly, the working folly
    Good golly Miss Molly and boats

    Hammersmith Palais, the Bolshoi Ballet
    Jump back in the alley and nanny goats

    18 wheeler Scammels, dominica camels
    All other mammals plus equal votes

    Seeing Piccadilly, Fanny sniffin' Willie
    Being rather silly and porridge oats

    A bit of grin and bear it, a bit of come and share it
    Your welcome we can spare it, yellow socks

    Too short to be haughty, too nutty to be naughty
    Going on forty no electric shocks

    The juice of a carrot, the smile of a parrot
    A little drop of claret, anything that rocks

    Elvis and Scotty, the days when I ain't spotty
    Sitting on a potty, curing smallpox

    Reasons to be cheerful part 3
    Reasons to be cheerful part 3
    Reasons to be cheerful part 3
    Reasons to be cheerful - 1 2 3

    Reasons to be cheerful part 3

    Health service glasses, gigolos and brasses
    Round or skinny bottoms

    Take your mum to Paris, lighting up a chalice
    Wee Willie Harris

    Bantu Steven Biko, listening to Reko
    Harpo Groucho Chico

    Cheddar cheese and pickle, a Vincent motorcycle
    Slap and tickle

    Woody Allan, Dali, Domitrie and Pascale
    Balla balla balla and Volare

    Something nice to study, phoning up a buddy
    Being in my nuddy

    Saying okeydokey, sing-a-long a Smokie
    Coming out a chokie

    John Coltrane's soprano, Adie Celentano
    Beuno Colino

    Reasons to be cheerful part 3
    Reasons to be cheerful part 3
    Reasons to be cheerful part 3
    Reasons to be cheerful - 1 2 3

    Yes, yes - dear, dear
    Perhaps next year
    Or maybe even never
    In which case

    Woody Allan, Dali, Domitrie and Pascale
    Balla balla balla and Volare

    Something nice to study, phoning up a buddy
    Being in my nuddy

    Saying okeydokey, sing-a-long a Smokie
    Coming out a chokie

    John Coltrane's soprano, Adie Celentano
    Beuno Colino

    Reasons to be cheerful part 3
    Reasons to be cheerful part 3
    Reasons to be cheerful part 3
    Reasons to be cheerful 1, 2, 3

     
    Last edited: Dec 19, 2015
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  17. Ekaterina

    Ekaterina

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    I fell ill a few days after i've seen a movie Stand by me with young River Phoenix. That was the last time I enjoyed watching movie, enjoyed feeling great. And when I hear this song now I always cry, because it reminds me about my previous life.
     
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  18. hellytheelephant

    hellytheelephant Senior Member

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    Great movie- great song
     
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  19. meandthecat

    meandthecat Senior Member

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    As he has aged Gus has become more beautiful, and trusting and I think he enjoys the good things in life with more relish, he is probably just a moggie, bit like me.
     
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  20. meandthecat

    meandthecat Senior Member

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    Ahh... Ian Dury... introduced to me by John who used to screech like a chimpanzee as he swung around the 2 storey rackwork in the bend room of the oil company we both worked for......reasons to be cheerful
     
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