Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
Discuss the article on the Forums.

sorry i want to die, 33 years old and early menopause.....

Discussion in 'Hormones' started by Berzerkerina, Oct 12, 2017.

  1. Berzerkerina

    Berzerkerina

    Messages:
    2
    Likes:
    9
    Hello everyone,
    I am 33 and i suffer from ME since i was 24. This illness has impact in my life so hart i am not able to work since i was 28 and even getting social help in the country where i live (Germany) i live in isolation and financial misery. No familiy, no friends, and no boyfriend.
    I developed wiith the years severe dysautonomia, pots, hashimoto thyroiditis, heart insufficiency, endometriose and my hormone levels are very low, no testosterone (what means this? ) .
    But the worse thing i am experiencing now is , since 3 years i have a violent, PMS (premenstrual syndrome) and i bleed too much or nothing. I got to the doctor all this years, telling him, the week before my period, i cant sleep from NIGHT SWEATS and nobody got to the idea, i was maybe premenopausical?
    its this possible, if i have this terrible night sweats, and mood changes, depression and hairloss, that i am going into the menopause ?
    thanks :(
     
  2. Joh

    Joh Inactivist

    Messages:
    665
    Likes:
    4,243
    Germany
    Hi @Berzerkerina, welcome to Phoenix Rising! :hug:

    I like your profile pic, it looks how I feel too. Sorry, can't contribute anything meaningful regarding your question but I'm sure others can. You could also check out the search function, I think I've read here about early menopause before.
     
    Last edited: Oct 12, 2017
    Jennifer J and boombachi like this.
  3. frederic83

    frederic83 Senior Member

    Messages:
    228
    Likes:
    205
    France
    Have you tested Epstein-Barr and other viruses ? Your Hashimoto makes me think of EBV.
     
    Last edited: Oct 12, 2017
    Tammy and boombachi like this.
  4. Berzerkerina

    Berzerkerina

    Messages:
    2
    Likes:
    9
    yeah i have epstein barr and herpes viruses, also lyme
    the complete kit , but i thougt this is normal with cfs? thanks for your attention, hugsss
     
    boombachi likes this.
  5. Countrygirl

    Countrygirl I'm with Cheesus

    Messages:
    2,842
    Likes:
    14,517
    UK
    @Bzererkerkerina

    I am sorry to hear that you are having such a wretched time. Most of us here can relate as many/most of us have been or are still in a similar position.

    The night sweats are a typical symptom of ME. For years, (sorry if this is too much information :redface: ) I drenched the sheets every night with cold sweats. I live alone, had no strength to change wet sheets, so would throw a pillow on the floor and lie on the carpet in front of an electric fire while an electric blanket dried the bed. After an hour or so, I would clamber back in only to soak the bed again with drenching cold sweats. My nocturnal experiences with this wretched disease finally drove me to the point of not using a bed anymore as I cannot deal with the laundry and have no one to help. So, for the past ten years have given up using a bed at all.

    Perhaps your sweats then maybe a result of the illness, and not the menopause???
     
    jpcv, Dainty, Hutan and 3 others like this.
  6. lycaena

    lycaena

    Messages:
    15
    Likes:
    56
    Germany
    Hi, @Berzerkerina, I am sorry you have such a diffcult time :(

    I have read about patients in german ME/CFS-online-groups (cfs-treffpunkt.de , https://www.facebook.com/groups/292707130807803/ ) who have endometriosis. In these groups is often posted too much quackery and pseudoscience (for my taste), but they can be helpful to find online-friends in your country with similiar problems, to find a good gynecologist and so on.
     
    Last edited: Oct 12, 2017
    jpcv, Hutan and boombachi like this.
  7. boombachi

    boombachi Senior Member

    Messages:
    161
    Likes:
    584
    Hampshire, UK
    Hi @Berzerkerina, I am sorry I can't answer your question. I am sorry to hear how ill you are and how long from such a young age. I hope you can find some comfort in the support from this community and maybe members with more knowledge than me can help you.
     
  8. Paralee

    Paralee Senior Member

    Messages:
    513
    Likes:
    553
    USA
    @Berzerkerina , if you have zilch hormones I wonder if getting them fixed would help? That's what I'm fixing to try, anyway. Even at 33 if you have low hormones, that could just be symptoms, but if you could fix those it might give a clue. I have a cardio worried about my heart, but I've read that the print outs can show where adrenals and things are low looking at bumps in a wave? Not sure about that, but I'm going to look into it.
    Good luck.
     
    boombachi likes this.
  9. frederic83

    frederic83 Senior Member

    Messages:
    228
    Likes:
    205
    France
    Which other herpes virus ?
    I have seen profiles like yours many time with EBV.
    I would not bother with Lyme except if you feel better with antibiotics. If you don't, consider only treating EBV.
    EBV is one of the virus that often triggers CFS.

    My best advice is firstly to treat the symptoms, it is easily said but is quite hard to achieve sometime or just not possible. POTS, sleep, thyroid, hormones...
    I would consider LDN because you have autoimmunity and EBV, if you have not tried it yet. It is not a cure all but can eases off some symptoms. Start low.

    Sometime, people feel better with a clean diet because it lowers inflammation.

    Regarding antivirals, it is quite tricky. Valtrex helps some people with EBV. Again, it is not (or rarely) a cure for CFS.

    Hope this helps.
     
    Last edited: Oct 12, 2017
    soofke, boombachi and echobravo like this.
  10. TigerLilea

    TigerLilea Senior Member

    Messages:
    1,140
    Likes:
    3,414
    Vancouver, British Columbia
    @Berzerkerina If your hormones levels are out of whack that can definitely make you feel awful and seriously affect your emotions. Is your doctor willing to work with you to try and get your hormone levels back to what they should be for a young woman of your age? Low testosterone for example can cause depression, muscle weakness, heart issues, and fatigue.
     
    boombachi, Dainty and Paralee like this.
  11. Diwi9

    Diwi9 Senior Member

    Messages:
    430
    Likes:
    1,622
    USA
    @Berzerkerina - Sounds like you are struggling. I just wanted to welcome you to the forum and send you a hug. :hug:
     
  12. Binkie4

    Binkie4 Senior Member

    Messages:
    501
    Likes:
    2,351
    Do you have correct treatment for your hormone issue? I had really bad pms in my early 30s. Felt dreadful depression ( even suicidal) and other symptoms in the week leading up to my period: no help from gp who thought I was depressed.
    Eventually referred to a Dr Katherina Dalton in Harley Street who specialised in treating pms.
    She treated me with cyclogest, a natural progesterone. I felt so different. Colours became brighter and I was alive again.

    This was 40 years ago so she is no longer here, but could you check that your hormonal issues are being dealt with properly.

    I wish you well @ Berzerkerina.
     
    boombachi and TigerLilea like this.
  13. Mary

    Mary Senior Member

    Messages:
    2,647
    Likes:
    5,881
    Southern California
    @Berzerkerina - your hair loss and crazy periods and night sweats could all be connected to your hashimoto's. You need a good doctor who will properly treat your hashimoto's and help with your low hormone levels. And women do need some testosterone, that should be addressed too. So I think there's a good possibility you're not dealing with early menopause but you definitely need help with your thyroid and hormones, etc.

    I'm sorry you're having to deal with all this from a young age, and hope you get some help soon!
     
    lafarfelue, boombachi, jpcv and 2 others like this.
  14. Wonkmonk

    Wonkmonk Senior Member

    Messages:
    201
    Likes:
    286
    Germany
    Are you familiar with the work of Dr Martin Lerner and Dr Jose Montoya? In some CFS patients, persistent herpes virus infection seems to play a role for their CFS and substantive improvement can be made in these patients with anti-viral therapy. This isn't based on quackery, but on serious scientific research, part of it published in leading academic journals.

    Here is Dr Lerner's homepage where he explains his research and treatment approach. Dr Montoya's is similar. (sadly, he is deceased in 2015)

    http://www.treatmentcenterforcfs.com/

    As someone else mentioned, it rarely cures CFS, but it helped many patients at least to get better.

    Also please note the Norwegian trials with Rituximab for treatment of CFS. Their research will be published early next year, and results obtained so far seem to be very promising. They found ~33% completely in remission, 33% improved to some degree, and 33% unchanced, a few worse, after treatment with Rituximab. So that's a two-thirds chance of at least getting better.

    Also note that Rituximab is used off-label for Hashimoto and has helped some patients with complicated or severe disease. Plus there is so much research and progress going on with monoclonal antibodies and in other areas of medicine. In the next years, there will be treatment options we can't even imagine today.

    So, I think for CFS patients, now is the worst time ever to give up :)

    If you are interested, I can give you more information and links to studies about these topics. I am doing antiviral therapy since January with significant success.
     
    soofke, Jessie 107 and boombachi like this.
  15. kangaSue

    kangaSue Senior Member

    Messages:
    834
    Likes:
    906
    Brisbane, Australia
    @Berzerkerina Autonomic Neuropathy (AN) often accompanies severe dysautonomia, sudomotor dysfunction is common with AN and the dysregulated sweating that you get with sudomotor dysfunction can be hard to tell apart from the sweat dysregulation issues that you get with menopause.

    Autonomic function sweat tests of QSART and TST diagnose sudomotor dysfunction.
     
    boombachi likes this.

See more popular forum discussions.

Share This Page