Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
Discuss the article on the Forums.

Sophia Mirza's Death Certificate = legal case against all the "Somatoform" crap?

Discussion in 'General ME/CFS News' started by SilverbladeTE, Jul 10, 2011.

  1. SilverbladeTE

    SilverbladeTE Senior Member

    Messages:
    2,860
    Likes:
    3,421
    Somewhere near Glasgow, Scotland
    Here's a point:

    on Sophia Mirza's death certificate, M.E. was listed as a primary cause of death, now although the thing which finally killed her was renal failure iirc, ME is listed there, in black and white on a UK death certificate
    note that, it's not a PHYSICAL cause of death, it's not death due to say "suicide under the effects of depression" or such

    The extensive post mortem on her spinal cord etc, showed peculiar inflammation and damage which has been seen before in M.E. victim's autopsies, back to the 1950s and the London outbreak and how it got it's name, iirc.

    Therefor, M.E. is surely a LEGALLY RECOGNIZED, LETHAL DISEASE BY RECOGNITION OF UK LAW? Hm, legal experts?
    So take that and shove it up yer pipe, Weasels! :victory:

    This issue should be hammered, as it's hard for the bastards to wriggle out from under a coroner's verdict.

    Since M.E. is a lethal disease (at least in the most severe cases), deliberate, willful failure to treat such with all due care for the patient's well being is therefor MANSLAUGHTER if a death results there after
    and possibly even murder considering the utter bigotry and abuse we often suffer, which is the same as refusing to treat a person's illness because of race creed or colour, and therefor, moves it into a very different category from "Negligent homicide".

    [​IMG]
     
  2. alex3619

    alex3619 Senior Member

    Messages:
    12,099
    Likes:
    32,545
    Logan, Queensland, Australia
    Hi SilverbladeTE, the usual case as I understand it that doctors are protected, or at least have laws that try to protect them, if the treatment they use is considered standard practice. The problem is that standard practice on ME and CFS is obsolete at best, and the laws were never written with ME or CFS in mind. No medical board is likely to find against a doctor who is using standard practice, regardless of outcome, unless there has been a severe breach of standard practice. If standard practice is what kills us, their response seems to be "so sad, not our problem, show us some research" while the establishment engages in an extreme go-slow attitude to funding said research.

    To get a doctor convicted, to force the medical profession to pay attention, will require a level of evidence I don't think we have yet. That doesn't mean we shouldn't check this out - at some point enough evidence will exist to start convicting doctors of criminal activity sufficient to bypass the legislation that protects them.

    Please note that legislation protecting doctors is country by country: each country has different laws so the situation may not be the same. Australia has extensive laws on this, and my opinion of the UK situation is that it is similar, but the US is probably very different.

    Bye,
    Alex
     
  3. Francelle

    Francelle Senior Member

    Messages:
    444
    Likes:
    24
    Victoria, Australia
    So what I want to know is - we can continue doing research, research, research on this condition but at what point does something which is being discovered become 'best practice' and accepted and established as the medical protocol? There are hundreds of findings in the many studies done so far. Who declares when THE DECIDING factor has been found?

    I suspect that even if XMRV was unequivocably found to be 'it' that it would take years to filter down to the average practitioner!
     

See more popular forum discussions.

Share This Page