Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Someone else's claimed Success Story (from Ukraine)

Discussion in 'General Treatment' started by herpesbaby, Jul 19, 2017.

  1. herpesbaby

    herpesbaby Senior Member

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    Hello. Besides PR I also read a Russian forum for CFSME. Anyway, yesterday a girl shared a success storty.

    Female, 27 y.o. was sick for 2 years, with constant low grade fever 37.2-37.5 C, and enlarged lymph nodes.

    Went to professor Maltsev, in Kiyev, Ukraine. Blood work showed high HHV-7 titres (10,000) and TTV.
    He prescribed a 3 months long treatment:
    Valtrex (for a month)
    Valcyt (from second month)
    Copegus
    Alpharona 3 ml
    A medicine for liver- she doesn't remember the name.


    A girl claims within 2 weeks after treatment fever disappeared and she's been in remission for a year.
    Just wanted to share what I've read online today.
     
    Little Bluestem, sb4, ErdemX and 5 others like this.
  2. herpesbaby

    herpesbaby Senior Member

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    I sent her bunch of questions asking about symptoms that she had had for those 2 years and asked to look up the name of the 'liver medicine' in her records. If she'll respond I will post here.
     
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  3. echobravo

    echobravo Keep searching, the answer is out there

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    Norway
    Do you know if professor Maltsev accepts patients from outside of Ukraine? Any info regarding approximate cost, length of stay, number of visits, skype followup etc?
     
  4. herpesbaby

    herpesbaby Senior Member

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    I will find out @echobravo

    I'd assume yes he does accept foreigners. I dont think doctors discriminate. People from Russia went to see him. But I don't think he speaks English. I'm sure you'll be able to find a translator. If I'll ever go, you can come along, I'll translate for free.

    People were discussing that they spent at least 200,000 Russian rubles on diagnostics and treatment when drugs like Octagam are involved.

    Where are you from?
     
    mrquasar likes this.
  5. herpesbaby

    herpesbaby Senior Member

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  6. herpesbaby

    herpesbaby Senior Member

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  7. herpesbaby

    herpesbaby Senior Member

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  8. PennyIA

    PennyIA Senior Member

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    If he can cure 1/3 or CFS patients with this (assuming that a third are from virus subgroup)... it's still better than no treatments nor cure. If we could identify the subgroup (which Younger posted a video recently that he might have some way to test a few subgroups)... then it looks like we might at least TRY this treatment.
     
    Little Bluestem, mrquasar and Mel9 like this.
  9. Snowdrop

    Snowdrop Rebel without a biscuit

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    If this turns out to be a viable treatment for a subgroup of PwME then I would hope that it would get more interest and confirmation. Why should only people who have money and access (ability to travel) get to have treatment. In Canada our tax dollars pay for health insurance so I would want this treatment here locally.

    Maybe it seems petulant but having people go (and they may not know if they are in the right subgroup even) and spend a great deal of money with this one dr undermines any incentive the dr has to share his knowledge through research validation. That's how medicine ought to work IMO.
     
    Little Bluestem, barbc56 and PennyIA like this.
  10. herpesbaby

    herpesbaby Senior Member

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    Amongst other things he uses peptides that are not approved by FDA or in Canada. Also, Octagam, doesn't seem to be approved in West.

    I almost went cuckoo reading all the reviews from the Russian forum, but it seems Maltsev has high success rates.
    He does treat people's immune systems and if titres are high, prescribes antivirals. Many people seem to feel better after him.

    Amongst negative reviews people called him cold, not caring about them or their finances, and that he speaks too fast (300 words a minute, they say).

    @Snowdrop @PennyIA
     
    Little Bluestem, sb4 and cigana like this.
  11. Gingergrrl

    Gingergrrl Senior Member

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    I Googled Octagam and it is a brand of IVIG so this would be available in the West and I do believe would help a specific sub-group(s) of patients as it has helped me (except Gamunex in my case, not Octagam).
     

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