Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Some ME/CFS resources

Discussion in 'General ME/CFS Discussion' started by Andrew, Feb 11, 2013.

  1. Andrew

    Andrew Senior Member

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    Los Angeles, USA
    Some time ago I created a series of blog entries where I attempted to answer the questions other patients most often ask me in chat, or elsewhere, but where too difficult to answer in a few words. This way I could just point them to the blog entry. I think the only time I posted about this in the forum area was in relationship to the reading list (educating your doctor). So I'm posting this here so it will be more visible.

    Topics include:
    How to find a chronic fatigue syndrome doctor
    Managing your medical records
    Educating your doctor (and you)
    Exercise
    Movies about cfs/me
    Caregivers
    Food tips

    I've updated the reading list (Educating your doctor and you) a bunch of time. I also recently added a resource in the article about finding a doctor. I hope to update the one about exercise soon (I noticed there is a dead link there).

    To see it, go here: http://forums.phoenixrising.me/index.php?blog/andrew.179/
     
    overtrain likes this.
  2. Battery Muncher

    Battery Muncher Senior Member

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    This looks very helpful, Andrew.

    Thanks for putting in the effort to do this!
     

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