Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Some GOOD fundraising news to share- $500,000 donation to End ME/CFS!!!

Discussion in 'Fundraising' started by Gingergrrl, Aug 7, 2015.

  1. Gingergrrl

    Gingergrrl Senior Member

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    I just received this email update (and eliminated my name) but wanted to share the good news that OMF just received their first $500,000 donation for their Severely Ill Big Data Patient Study!!!

    It made my day after seeing that other post re: congress cutting our funding to zero. Thank you so much to whoever made that amazing donation and God bless you.

    Here is email:

    Dear --------- ,
    Yes, we received the $500K check today!
    You are the first to know (our supporters!) and may share this exciting news!
    Thanks again for your support- we could not do this without you!
    [​IMG]

    Kindest regards,
    Linda
    Linda Tannenbaum
    Executive Director

    Address postal inquiries to:
    Open Medicine Foundation
    29302 Laro Drive
    Agoura Hills, CA 91301

    Powered By
    [​IMG] [​IMG]
    [​IMG]
     
  2. JAH

    JAH Senior Member

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    I think their goal was 1,000,000., so this is incredible news. I don't know who these half a million donors are, but God bless 'em, we need them - this and the Lipkin study truly hold promise for us.

    J


    Add my 30$ donations and we're almost there....
     
    snowathlete, beaker, WillowJ and 12 others like this.
  3. Bob

    Bob

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    :star: Great news! :star: :)

    $1m per year if I remember correctly? For a five year project? Or have I completely miss-remembered that?
     
    Last edited: Aug 7, 2015
    Sasha likes this.
  4. Gingergrrl

    Gingergrrl Senior Member

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    @JAH, hey do not knock your $30 donation and I give small donations to OMF (and once to Lipkin) and it all adds up.
     
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  5. Bob

    Bob

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    Yep, every donation counts massively! The smaller donations are essential because they demonstrate wider support from the community, and they help to create a buzz, momentum, and a head of steam, that gets more and more people involved and raises awareness to a wider audience. The large numbers of smaller donations also helps to motivate and reward the researchers and the crowdfund team. (It's like saying "thank-you" to them; "we're grateful and we're behind you".) It also helps to create an important dialogue between the researchers and the community, and it gets friends and family involved in raising money, which all ultimately helps spread the message about ME/CFS to the wider population and raises awareness.

    So keep donating everyone, if you can! If you can't donate then help spread the message. It all helps massively.

    Edit: As an example, the crowdfund for Prof Lipkin's team created a huge amount of awareness for their research program, which then led to Dr Lipkin's chilli-challenge, which led to the $500k donation to Dr Lipkin. Without the buzz created by the crowdfund, the $500k donor may never have become aware of Dr Lipkin's research program.
     
    Last edited: Aug 9, 2015
  6. JAH

    JAH Senior Member

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    That's how I feel. I don't have any money that can make a real difference, but I want to support the great work these researchers are doing. And the numbers do help in fundraising...J
     
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  7. Gingergrrl

    Gingergrrl Senior Member

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    I totally agree with JAH and Bob and if every person from PR donated just $20, imagine how much they could raise.
     
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  8. Sasha

    Sasha Fine, thank you

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    This is brilliant! First CII gets $500k, now the OMF. I like the way some people are thinking in big chunks of money!

    And I agree with @Bob and everyone that lots of small donations not only add up in and of themselves but bring attention to these projects and demonstrate that they have the support of patients. Crucial!

    It looks as though the 'Severely Ill, Big Data' project needs $1m for the first phase and that for their whole programme they're looking for $5m/year. I don't see the total cost of the SIBD study anywhere but maybe they're just going to do as many patients as they can with the money they raise in a certain timeframe.

    So let's give them some more money!
     
    snowathlete, rosie26, beaker and 2 others like this.
  9. Sasha

    Sasha Fine, thank you

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    @Gingergrrl - what do you think to adding "$500,000 donation to END ME/CFS" to your title? It would be good to really draw attention to this.

    I was so blown away that I forgot to thank the mystery donor! If you're reading this, thank you for your spectacular generosity. This is just amazing of you, and we're all so very, very grateful. You've got this crowdfund off to a brilliant start, right from the beginning, and it's going to encourage a lot more donations.

    Thank you! :balloons::trophy::star:
     
    rosie26, beaker, *GG* and 7 others like this.
  10. Gingergrrl

    Gingergrrl Senior Member

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    Sasha yes I will change the post title later today and hoping you can remind me how!
     
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  11. Sasha

    Sasha Fine, thank you

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    Go to 'Thread tools' just above your post, to the right - and then 'Edit thread'. :)
     
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  12. caledonia

    caledonia

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    This is amazing good news. Many thanks to the generous donor.
     
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  13. Gingergrrl

    Gingergrrl Senior Member

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    Thanks @Sasha and I just changed the title. Let me know if it is okay!
     
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  14. Nielk

    Nielk

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    Amazing news!
     
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  15. Sean

    Sean Senior Member

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    :):):)

    :love::love::love:
     
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  16. Sasha

    Sasha Fine, thank you

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    Great, thanks! :thumbsup:
     
    Gingergrrl likes this.
  17. snowathlete

    snowathlete

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    I was so pleased when I heard this news. This is such a great project as is evident (no one gives you 500k unless you're doing things right) and the people working on it are super ppl.

    I am SO SO GRATEFULL to whoever is supporting this work, I believe it will pay off. So thank you very much to this generous donator and to every generous donator, no matter the size of the donation. It all counts.
     
    Gingergrrl, Sasha and Bob like this.
  18. Battery Muncher

    Battery Muncher Senior Member

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    Amazing!
     
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  19. Sidereal

    Sidereal Senior Member

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    Awesome news! Aside from the Lipkin microbiome project and the Phase III RTX trial, this is the most important proposed/ongoing study, IMO.
     
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  20. geraldt52

    geraldt52 Senior Member

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    Linda Tannenbaum is a force of nature, and her importance in the fundraising for OMF can't be overstated. If anyone wanted to send along their thanks I'm sure it would be appreciated. Maybe some sort of group thing would save her inbox from being overloaded?
     
    rosie26, snowathlete, catly and 3 others like this.

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