Hutan
Senior Member
- Messages
- 1,099
- Location
- New Zealand
@JaimeS and @viggster
That's really interesting about the punctate lesions observed in the early stages of your illnesses, with viggster's later disappearing.
For most of us, I expect early in our illnesses we were just at the point of trying to convince our GP to investigate further. Where I lived, even after the GP wrote the referral letter, it took months to get to see a specialist who could order the MRI.
I wonder if there is a pattern of punctate lesions that later heal in ME but that it is being missed because the MRIs typically aren't being done early enough or being repeated. I too had aphasia in the first year, but it is only a problem now if I am very fatigued.
@JaimeS, you haven't thought about having another scan?
That's really interesting about the punctate lesions observed in the early stages of your illnesses, with viggster's later disappearing.
For most of us, I expect early in our illnesses we were just at the point of trying to convince our GP to investigate further. Where I lived, even after the GP wrote the referral letter, it took months to get to see a specialist who could order the MRI.
I wonder if there is a pattern of punctate lesions that later heal in ME but that it is being missed because the MRIs typically aren't being done early enough or being repeated. I too had aphasia in the first year, but it is only a problem now if I am very fatigued.
@JaimeS, you haven't thought about having another scan?