May 12, 2017 Is International ME/CFS and FM Awareness Day
International ME/CFS and FM Awareness Day is May 12th, 2017. Jody Smith shares some information about upcoming events and ways you can be heard ...
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Solve ME/CFS Discovery Forum Saturday 14 October - live coverage

Discussion in 'General ME/CFS News' started by Sasha, Oct 14, 2017.

  1. Sasha

    Sasha Fine, thank you

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    Last edited: Oct 14, 2017
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  2. Sasha

    Sasha Fine, thank you

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  3. Nickster

    Nickster Senior Member

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  4. Sasha

    Sasha Fine, thank you

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    I'm a bit confused about the livestreaming on FB! Does anyone have a good link? I've added one to my first post but I'm not sure whether that's just for Zaher Nahle's talk.
     
  5. Nickster

    Nickster Senior Member

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    I was able to get the live feed thru Solve mecfs Facebook.
     
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  6. Sasha

    Sasha Fine, thank you

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    Do you have a specific weblink? There's all sorts of stuff on Solve's FB. :)
     
  7. Nickster

    Nickster Senior Member

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    It's the first video at the top that I clicked on and got thru to the livestream.
     
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  8. aimossy

    aimossy Senior Member

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  9. Cinders66

    Cinders66 Senior Member

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    It was a really good talk by zaher. Great to see all the great minds there. I still don't see why nih don't just put in more money right away and let the field flourish, they neglected it years so it's not finding new money, it's paying back what they owe. I will be interested to see the nih presentation if there is one because we have such a lot of time to make up for, a big knowledge gap as zaher says.
     
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  10. Joh

    Joh Inactivist

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  11. Joh

    Joh Inactivist

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  12. *GG*

    *GG* Senior Member

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    Cute, what they owe. Gov't doesn't work that way!

    GG
     
  13. Cinders66

    Cinders66 Senior Member

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    Well that's what my limited energy summarised it as, as it basically is. We aren't suddenly demanding an unfair , staggeringly high amount of money as a special favours vs other debilitating chronic illness we are saying you have neglected this for years, this has had a shocking impact on sufferers and this is the cause of the knowledge gap so you need to invest intensively now to make up for your neglect.

    I saw jen brea make a similar point although I'm sure far better argued on the ME action page. Some people in government act as if they can just start in 2017 in a small way , building up slowly, as if those years of neglect and waste aren't there.
     
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  14. Joh

    Joh Inactivist

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