Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Solve MC/CFS Initiative -Update webinar from July 2014

Discussion in 'Latest ME/CFS Research' started by catly, Aug 7, 2014.

  1. catly

    catly Senior Member

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    I know that many here have a problem with this organization and my apologies if this has already been posted.

    But if any are interested. Here is the youtube video to their lastest webinar-update.

     
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  2. *GG*

    *GG* senior member

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    They might be better in the future, time will tell. Probably a good thing they are going to focus more (only?) on research and not advocating for us! (M.E.)!!

    GG

    PS Still need to listen to this, they talk about getting a blood sample in, I think. How do I go about this, if I wanted to? Don't think my Drs office would do it, would a blood drawing lab do it?

    I have an appt with a new Dr in Sept, wonder if they would do it, for cheap!
     
  3. catly

    catly Senior Member

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    At GG. They do say in the video that there are multiple ways to give blood. Through your MD, one of the major labs in the US (e.g. Quest, which has drawing stations all over) and for some that can not get out they have a contract with a lab that will do home blood draws. I thought this was good. I don't know what the cost would be??? Didn't even think of that.

    The thing is I signed up for the biobank (you can do so through their website), I think close to a year ago and haven't heard anything from them.
     
  4. *GG*

    *GG* senior member

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    Cool, thanks for the information. I have attempted to sign up in the past, but I think the emails get buried in my emails, but I do recall seeing emails from Gloria E. Smith at biobank@solvercfs.org
     
    catly likes this.

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