Discussion in 'General ME/CFS News' started by Sasha, Mar 26, 2016.
I've done my duty. There is no mention of whether they only want US residents, but there is a box on the contact form for "Country". Since they are only collecting data and no samples until researchers actually need them, I don't see any obvious reason to limit this to US residents.
I signed up for this again. I would really like to be included this time!
They welcome international contributors/participants. I'm in the UK and I signed up.
Have they said so? I had a quick look yesterday and couldn't see anything. I thought they were purely a biobank and just wanted good info on people who could provide bio specimens - and assumed that they'd want the specimens sent to the US.
Yes, that's correct. In case I've caused confusion, when I said "participants" I meant "contributors" to the biobank.
Edit: See @jimells' post, below.
Yes, they've said that they welcome international participants. I don't know where it's written - I signed up a couple of years ago.
Note, as far as I understood it, international contributors have to arrange for any samples to be collected and sent privately; They give you instructions about how to do this. To begin with, they just ask you to complete forms online, and you don't send samples until a researcher requires your specific samples. I had to drop out when my health deteriorated and so I haven't had contact with them for a while, so things might have changed.
It's not really a "biobank" but rather a database to be made available to researchers. Since samples aren't collected until the researchers need them, I assume they will be shipped directly to the researchers or whatever lab is handling samples for them. So if a UK researcher uses this database, there would be no reason to ship samples to the US. Certainly Solve would not want the samples sent to their office!
I asked Solve what countries and here is their reply
You can also try a Google Site Search
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