Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

Solve biobank recruiting patients and healthy controls

Discussion in 'General ME/CFS News' started by Sasha, Mar 26, 2016.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    12,782
    Likes:
    34,193
    UK
    Roll up! :)


     
    moosie, Dolphin and jimells like this.
  2. jimells

    jimells Senior Member

    Messages:
    1,998
    Likes:
    6,108
    northern Maine
    I've done my duty. There is no mention of whether they only want US residents, but there is a box on the contact form for "Country". Since they are only collecting data and no samples until researchers actually need them, I don't see any obvious reason to limit this to US residents.
     
    Last edited: Mar 26, 2016
    Valentijn and *GG* like this.
  3. *GG*

    *GG* Senior Member

    Messages:
    6,146
    Likes:
    4,740
    Concord, NH
    I signed up for this again. I would really like to be included this time!

    GG
     
    Valentijn and jimells like this.
  4. Bob

    Bob

    Messages:
    9,844
    Likes:
    33,946
    England (south coast)
    They welcome international contributors/participants. I'm in the UK and I signed up.
     
    Last edited: Mar 27, 2016
  5. Sasha

    Sasha Fine, thank you

    Messages:
    12,782
    Likes:
    34,193
    UK
    Have they said so? I had a quick look yesterday and couldn't see anything. I thought they were purely a biobank and just wanted good info on people who could provide bio specimens - and assumed that they'd want the specimens sent to the US.
     
  6. Bob

    Bob

    Messages:
    9,844
    Likes:
    33,946
    England (south coast)
    Yes, that's correct. In case I've caused confusion, when I said "participants" I meant "contributors" to the biobank.

    Edit: See @jimells' post, below.

    Yes, they've said that they welcome international participants. I don't know where it's written - I signed up a couple of years ago.

    Note, as far as I understood it, international contributors have to arrange for any samples to be collected and sent privately; They give you instructions about how to do this. To begin with, they just ask you to complete forms online, and you don't send samples until a researcher requires your specific samples. I had to drop out when my health deteriorated and so I haven't had contact with them for a while, so things might have changed.
     
    Last edited: Mar 27, 2016
    Sasha and Valentijn like this.
  7. jimells

    jimells Senior Member

    Messages:
    1,998
    Likes:
    6,108
    northern Maine
    It's not really a "biobank" but rather a database to be made available to researchers. Since samples aren't collected until the researchers need them, I assume they will be shipped directly to the researchers or whatever lab is handling samples for them. So if a UK researcher uses this database, there would be no reason to ship samples to the US. Certainly Solve would not want the samples sent to their office!
     
    Bob likes this.
  8. Bob

    Bob

    Messages:
    9,844
    Likes:
    33,946
    England (south coast)
     
    Dolphin and Valentijn like this.
  9. jimells

    jimells Senior Member

    Messages:
    1,998
    Likes:
    6,108
    northern Maine
    I asked Solve what countries and here is their reply

     
    Valentijn, Bob, TiredSam and 3 others like this.

See more popular forum discussions.

Share This Page