1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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AVIVA Semi-Finals: National ME/FM Action Network is competing for $100,000
The National ME/FM Action Network in Canada is competing for $100,000 for biomedical research of ME and FM in the Aviva Community Fund contest. With thanks to all who helped, they made it through the first round of voting into the Semi-Finals.
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Sock It To ME

Discussion in 'Action Alerts and Advocacy' started by creekfeet, Apr 19, 2010.

  1. frenchtulip

    frenchtulip Senior Member

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    Is there a deadline for sending in socks for awareness day?
     
  2. creekfeet

    creekfeet Sockfeet

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    Okay, I'm keeping my socks on track but pacing gently so as not to wear them out!

    Just heard that the website got over 675 hits in a month. That's without the release going out to major news organizations: only to a handful of ME/CFS insider organizations---plus, most of those haven't even posted the link yet. So when other sites get around to linking and I get around to sending more releases out, these socks are going to fly. Wow.
     
  3. creekfeet

    creekfeet Sockfeet

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    No deadline. The connection with May 12 was just to set that as our "official launch date." But we're accepting sock submissions already, and will continue beyond May 12th, and ongoing. There's always room for more socks.
     
  4. spindrift

    spindrift Plays With Voodoo Dollies

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  5. talkingfox

    talkingfox Senior Member

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    The project is officially launching on May 12th :) Displays of socks will happen when we have enough sent to make a few garlands and will depend on bodies to help and availability of demonstration space and whatnot.

    All socks that are sent in will also be on view in a searchable database via the website, http://www.sockit2mecfs.org. So far the database isn't up, mostly because the socks haven't started coming in yet.

    First things first though! Socks from peoples :Retro smile:
     
  6. usedtobeperkytina

    usedtobeperkytina Senior Member

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    bumping

    Tina
     
  7. spindrift

    spindrift Plays With Voodoo Dollies

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    Six socks on the way!
     
  8. talkingfox

    talkingfox Senior Member

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    Outstanding spindrift! I'm all excited now!
     
  9. creekfeet

    creekfeet Sockfeet

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    I'll be back on the job soon as I can. I haven't been at all right since my ovary went splody, and now my poor kid has a dental emergency, so we'll be quite a pair, hobbling off to town. Please make supplications to Hermes on our behalf, and I'll hope to be back in my socks and running, soon.
     
  10. fds66

    fds66 Senior Member

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    Tried knitting a tiny sock but even with my smallest needles and wools they are too big so will have to wait to get smaller ones.
     
  11. spindrift

    spindrift Plays With Voodoo Dollies

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  12. frenchtulip

    frenchtulip Senior Member

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    On Good Morning America today, people from the Arthritis Foundation were standing in the front row as Sam Champion talked with the onlookers. They were holding two posters about arthritis and it was mentioned that May is Arthritis Awareness Month. Sam Champion allowed them to mention the URL for the Arthritis Foundation. The whole thing was very, very brief, but effective. I got the sense that it was definitely prearranged. So, if anyone is planning to go to Times Square to try and hit the morning shows, it might be a good idea to call the show(s) in advance to see if they are receptive to giving ME/CFS a couple of seconds. I believe the website for the Arthritis Foundation also said they will be trying to get a brief mention on the Today Show tomorrow.
     
  13. creekfeet

    creekfeet Sockfeet

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    Progress Report and Cry for Help

    I'm thrilled about the way the project is taking off.

    But I'm pushing hard: pushing the dialup connection and pushing my health. I'm going to need more help.

    Here's what I've done so far...

    I wrote a pre-release and cover email and sent it to about 20 ME/CFS insiders: researchers, clinicians, journalists and patient organizations.

    I wrote a full release and sent it with cover email and a 500-page article to an expanded list of about 30 ME/CFS insiders.

    I sent the release with a personal cover email and the 500-word accompanying article to the health editors at the Associated Press, Wall Street Journal, New York Times, Los Angeles Times, San Francisco Chronicle, National Public Radio, Good Morning America, Oprah Winfrey Show, Democracy Now and 5 journalists with whom I'm acquainted.

    I sent the same release and article to 20 additional journalists from a list given to me by a forum member.

    I created a powerpoint slide and sent it to Dr. Klimas because one of our forum members said that Dr Nancy offered to include one in her upcoming talk... but I haven't heard back from her about this.

    My daughter started the Facebook page for the project and I invited people to it, and it now has about 170 members. I've been posting updates there from time to time, as has talkingfox.

    Talkingfox and I wrote copy for the www.sockit2MEcfs website.

    And of course I blogged about the project here at Phoenix Rising.

    Talkingfox has been working like crazy on this, too, doing the physical, textile stuff and a ton of website work.

    So... what next?

    We've had some great suggestions for more publicity and sponsorship possibilities so I plan next to write a letter offering corporations the opportunity to sponsor the project so we can afford the cost of printed materials, the web hosting and display materials, sock and pin textiles, display permits and whatever else arises. I could really use some more help on the publicity front, with getting actual contact names and addresses and doing the mailing or emailing. We could get the word out farther, faster, with more of us doing that part. Right now I'm a bottleneck. A crashing bottleneck! And I'm sure talkingfox could use some help with making sock blanks and wee sockie lapel pins.

    It would also be fabulous if anybody wants to step forward to start a branch of the project outside of the US. It could grow really unwieldy receiving and displaying socks from all over the world. So how about it---start a branch in your country, if you're not in the US! We'll give you logos, banner graphics, web code, and lots of support and encouragement getting started.

    Oh, and I'm very slow getting snailmail out and I've researched all the email addresses I can handle so if someone has a valid email address for any of the following it would be a great help:
    Dr. Bell (website email generates discouraging auto-response)
    Dr. Peterson
    Hillary Johnson (other than website email)
    Fibromyalgia Network
    OFFER
    Assorted Health, Art and Craft Magazines (include an editor's name, please)

    And of course, send in your socks! Get on over to www.SockIt2MEcfs.org for the details.

    That's all the news and pleas I can think of at the moment but I'll keep you all posted... later.

    Resting now,
    Creek
     
  14. usedtobeperkytina

    usedtobeperkytina Senior Member

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    After May 22, I will help with publicity. But I can't now.

    Tina
     
  15. creekfeet

    creekfeet Sockfeet

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    Thanks, Tina, that will be wonderful if you can. Maybe there's not much more to be done before then anyhow? We've got it out to the community and some big media outlets, and we can line up more media and sponsors later---probably more easily once we have a garland of socks or two to show for our efforts. And when we have a garland or two of socks, we can start talking DISPLAY! Whee!
     
  16. creekfeet

    creekfeet Sockfeet

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    Countdown: Four Days to Go!

    The socks have started coming in at Sock Central!
     
  17. creekfeet

    creekfeet Sockfeet

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    L a u n c h t i m e !

    May 12 is upon us, and we're up and receiving socks. :victory:

     
  18. creekfeet

    creekfeet Sockfeet

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    Also be sure to take a look as the sock photos arrive here in the Show Us Your Socks thread. This is so much fun!
     
  19. spindrift

    spindrift Plays With Voodoo Dollies

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    Possible Sponsor for Sock Project and Design Contest

    Just bought a pair of socks from this brand and after checking their website think they
    are a really good candidate as a sponsor for our project. Also they have a sock design
    contest where we could win prize money for our sock project if anyone is computer
    savvy enough to design a cool sock pattern that they might use.

    http://www.sockittomesocks.com/design.html
     
  20. creekfeet

    creekfeet Sockfeet

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    :3 Gotcher: added to list.

    Way burnt out still, but aching to get back to it as soon as possible. Brain just will not respond with anything but pain. anywho, keep it going so it'll be here when I get back? <3
     

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