In light of the recent very well coordinated messages coming from the United Kingdom I was wondering if we as a patient community were interested in mounting a nice attack of our own and if so for what, doing what and to what ends? I would personally like to send a reply directly to the Wellcome Trust stating that the research done by Hue et al and others does not negate XMRV as a human pathogen and that their current press release was in direct opposition to their stated mission (see below) and specifically ask them to retract the statement. Not that I think they will but I love stuffing up mail boxes. (grins) It makes the Computer techs complain to the CEO's a lot. (big grins) Second I would like to send a round of e-mails to the various journals asking why they are not publishing additional information in regards to XMRV/HGMV's in a timely manner. I would also like to include a CC to the heads of NIH, FDA, CDC and others regarding a more fair and balanced role in publishing information in a timely manner as well. While the government can't make the journals publish anything they don't want to publish, shining a light on the fact that there are many unpublished data in regards to XMRV/HGRV's may put the pressure on to bump those chocolate studies and publish XMRV information instead. Third I think questioning Johnathan Stoyes overstepping his bounds as a questioner at the FDA panel meeting would be a good ideal. It's not that you can't have an invited speaker which he was but to have him interjecting during the questioning was out of place. Again shining a light and letting members of the FDA (not the panel but the people at the top) know that we see this behavior and question it could work in our favor. I think also sending out links to all of the media outlets with a link to the XMRV Global action facebook page they have a very nice write up that questions the poor journalism or printing the the Wellcome Trust Press Release without checking facts. That would be a good ideal as well. I know everybody is busy for the holidays but I think if we could get these four simple e-mail campaigns up and running with a nice template for folks to use we could at least let our voice be heard and let the people behind this nice blitz know that we are not cowed by all their hard work and bluster it would help us all feel more empowered. It would also show support for the scientist that are working so hard on our behalf. So what do folks think???