Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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So tired. Heres a clip of my day. I really thought Adderall would help :(

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by MAOAr297r, Oct 12, 2017.

  1. MAOAr297r

    MAOAr297r

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  2. *GG*

    *GG* Senior Member

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    You really need to research this illness more, False energy is going to cause True/real crashes!

    GG

    Edit: Find a new psychiatrist!
     
    Last edited: Oct 12, 2017
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  3. MAOAr297r

    MAOAr297r

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    I agree. How do I get real energy? I'm here to learn.
     
  4. *GG*

    *GG* Senior Member

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    Well, as you know, we don't have the "normal" amount of energy. I wish I knew the answer on how to get my Energy back!

    You should listen to your body as well as you can, someone people do that, and still crash. But perhaps you will not suffer like that segment of our population.

    Could try some supplements that are supposed to help with energy. Perhaps L carnitine fumarate and Coq10/Ubiquinol?

    Wish my college education was closer to my illness, perhaps I would remember more of my biochemistry studies.

    GG
     
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  5. tyson oberle

    tyson oberle Senior Member

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    I wouldn't see that psychiatrist anymore. Why are you even seeing a psychiatrist? When I was younger my parents made me see a psychotherapist. Not just psychiatrists, but many people sometimes try to blame symptoms on so-called mental issues, past experiences, etc. They can't believe how we can be like this, but yet they'll believe in bizarre psychological theories. We just have to wait for the ME/CFS researchers to find something that will help us or we have to experiment ourselves with different things.
     
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  6. *GG*

    *GG* Senior Member

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    I saw a psychiatrist when i fell into a little depression (after getting a bad letter at work or was it coming off that Fentanyl crap! or Both, many years ago!). He believed me, and was supportive and very kind! He said I was bright :)

    GG
     
  7. MAOAr297r

    MAOAr297r

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    I agree. I see him for depression (which I don't have much of anymore) and he keeps my meds straight. So of their old school "theories" are so bazar. I'm going to try to see a doc thats more like a clinical neuroscientist or neurologist. More science less woo woo. I agree. We need a good biomarker test sooooo bad. I'm messing around with an idea at my house but I just don't have an adequate education yet to make it work.
     
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  8. MAOAr297r

    MAOAr297r

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    I've had maybe 9 or 10 psychiatrist because of refractory depression. All except 2 have been absolutely wonderful, smart and kind. I agree with you.
     
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  9. *GG*

    *GG* Senior Member

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  10. markielock

    markielock staying independent, one day at a time

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    Does anyone have any good information regarding pacing for @MAOAr297r I know for a fact there must be something on here (in fact, I think I even made a post asking this ages ago). I'm a bit too exhausted to explore right now, sorry :(. It won't give you more energy but it will help you manage what you have.
     
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  11. hamsterman

    hamsterman Senior Member

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    Everything I've learned about pacing was from here: https://www.facebook.com/groups/ME.CFS.HRM/

    It has been very effective for me... I desperately needed instant feedback for when I was pushing too hard. Also, I had to learn to stop socializing. :(

    The key to managing CFS/ME always has to start at stopping PEM (ie crashes) first. Its super tough... but once you can stop the PEM, everything else becomes more doable. Its a bit like trying to build a house of cards where the wind keeps blowing it down. Step 1 needs to be... 'close the window'.

    After I stopped crashing... I started doing other things... ie... monitoring daily fluxuations, trying to fine-tune my diet... A lot of things that I initially thought didnt help actually did... but the crashing always 'got in the way' and eclipsed any improvement I might have gotten. Once you've stop PEMing... you can also look into careful use of stimulants. But they may not be the best avenue for you.... and may even be causing you to crash at times.
     
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