Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
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SMCI Storms DC, Makes Needs of ME/CFS Patients Known

Discussion in 'Action Alerts and Advocacy' started by Rowena Ilagan, Mar 23, 2017.

  1. Rowena Ilagan

    Rowena Ilagan

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  2. Nielk

    Nielk

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    SMCI's statement "During over 30 advocacy meetings on Capitol Hill, we:.." is deceptive. SMCI under Carol Head only started lobbying on the Hill for the past year or two.

    In years prior and under CFIDS Association, the org had stopped being an advocacy org - choosing instead to be exclusively a research org.
     
  3. Silencio

    Silencio Senior Member

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    Sounds like quiet the marathon week @Rowena Ilagan. Bravo to the team over there and all their hard work! 30 meetings in one week is amazing. It's great to have smci fighting for us.. not sure what @nielks comment about years prior has to do with last weeks success.
     
  4. Nielk

    Nielk

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    I just rechecked and realized that I misread. I thought they wrote 30 years of meetings! I apologize for the mistake. (This is what happens when I read and comment while dealing with a migraine).
     
    Last edited: Mar 23, 2017
    Solstice and trishrhymes like this.

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