1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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Small Fiber Neuropathy in CFS

Discussion in 'Peripheral Neuropathy' started by alex3619, Oct 7, 2010.

  1. PNR2008

    PNR2008 Senior Member

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    OH USA
    I was diagnosed with SFN after my third tilt test, no sweating. Even when I was young I hardly perspired in a sauna, others remarked at how lady-like that was. Now if someone wanted to kill me just stick me into a heat box for 10 minutes preferably with Tattinger's and chocolate covered strawberries.
  2. adreno

    adreno 3% neanderthal

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    Tundras of Europa
  3. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Southern USA
    At least as important as B's is Benfotiamine (a better fat and water soluble B1) and Alpha Lipoic Acid. All are need to heal nerves. Works very well. My POTS is healing with these as well as the rest of my supplements. These are very important.
  4. PNR2008

    PNR2008 Senior Member

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    OH USA
    Adreno, when reading the info on B12 protocol by Fredd I am so confused I have little energy to shower much less navigate a supplement store. Can this be combined in a few bottles or liquids? Usually better at this but not lately. Thanks Sally
  5. adreno

    adreno 3% neanderthal

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    Tundras of Europa
    In the study they used Metanx, which is 2mg methylcobalamin, 3mg methylfolate, and 35mg P5P, taken twice daily.

    You can order all three on iHerb.
  6. PNR2008

    PNR2008 Senior Member

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    395
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    OH USA
    Adreno, Thank You looking into it.

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