- Messages
- 59
Hi there,
My name is Dave, here I am introducing myself in the 'Introduce Yourself' section in 2017: http://forums.phoenixrising.me/inde...ring-if-i-should-take-up-running-again.50131/
I was diagnosed with ME in 2009 and had a relapse in 2016. Using this ME Disability Scale: https://www.mesupport.co.uk/index.php?page=m-e-disability-scale my symptoms currently present as "60% moderate symptoms at rest" occasionally improving to 50%.
Since my 2016 relapse my biggest improvements in symptoms have come from 1. starting Amitriptyline (which gives me more restful sleep) and 2. since March 2018 I have began sleeping in, sleeping longer and only walking for 20 minutes a day.
Prior to March 2018 I averaged 7.5 hours sleep a night and I was waking up at 8 AM to an alarm every morning. I was also trying to walk for one hour a day in 30 minute blocks. Since March 2018 I am averaging 8.5 hours sleep a night, sleeping in till I naturally wake up and only walking 20 minutes a day. I have found my symptoms present more mildly if I observe this approach. Now, I had been told years ago not to simply try to "sleep my fatigue away". But honestly I feel a lot better for this approach and I was just wondering if anyone on this forum has any advice about continuing/stopping this approach to sleep?
It is possible that because I changed my exercise routine at the same time the benefits I am seeing is simply a reduction of PEM. I haven't tried going back to 7.5 hours sleep a night/8 AM alarm wake up but keeping the walking reduction to 20 minutes a day, perhaps I should do that?
Thanks
My name is Dave, here I am introducing myself in the 'Introduce Yourself' section in 2017: http://forums.phoenixrising.me/inde...ring-if-i-should-take-up-running-again.50131/
I was diagnosed with ME in 2009 and had a relapse in 2016. Using this ME Disability Scale: https://www.mesupport.co.uk/index.php?page=m-e-disability-scale my symptoms currently present as "60% moderate symptoms at rest" occasionally improving to 50%.
Since my 2016 relapse my biggest improvements in symptoms have come from 1. starting Amitriptyline (which gives me more restful sleep) and 2. since March 2018 I have began sleeping in, sleeping longer and only walking for 20 minutes a day.
Prior to March 2018 I averaged 7.5 hours sleep a night and I was waking up at 8 AM to an alarm every morning. I was also trying to walk for one hour a day in 30 minute blocks. Since March 2018 I am averaging 8.5 hours sleep a night, sleeping in till I naturally wake up and only walking 20 minutes a day. I have found my symptoms present more mildly if I observe this approach. Now, I had been told years ago not to simply try to "sleep my fatigue away". But honestly I feel a lot better for this approach and I was just wondering if anyone on this forum has any advice about continuing/stopping this approach to sleep?
It is possible that because I changed my exercise routine at the same time the benefits I am seeing is simply a reduction of PEM. I haven't tried going back to 7.5 hours sleep a night/8 AM alarm wake up but keeping the walking reduction to 20 minutes a day, perhaps I should do that?
Thanks