International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
Discuss the article on the Forums.

Sleep, what finally helped

Discussion in 'General Treatment' started by Lou, Oct 22, 2011.

  1. Lou

    Lou Senior Member

    Messages:
    582
    Likes:
    434
    southeast US
    I hardly slept for years after I got ME. You know the story, lay down dead tired but wide awake, finally drift off only to wake again in a couple of hours. Then, the long wait for dawn.

    Immunepro, a superior form of whey protein, greatly helped. Taken in a couple ounces of water just before bed usually gets me to sleep and keeps me there much longer than before. It you try it you should know it can be a pain to mix. Use something like a tall bottle, pour in small amount of water FIRST, then a scoop or two of Immunepro, and swoop it around in the container like a little tornado. Or, I guess you could use a mixer.

    The other thing you might try, is Osteo-Strontium Complex(not to be confused with strontium 90 isotope, that's a whole different way of putting yourself to sleep) by Nutricology and in the powder form(the tablets didn't work for me at all). Again, I took it just before bed.

    Hope this helps some of you. Not sleeping is its own nightmare.
     
  2. soxfan

    soxfan Senior Member

    Messages:
    950
    Likes:
    551
    North Carolina
    Where can I find Immunepro? I am willing to try just about anything as long as it isn't through prescription. I really am aiming to do this with herbal or other supplements. Thanks again...

    My worse problem is unrefreshing sleep even though the lunesta knocks me out. The other problem is either I don't sleep even though I took a lunesta which makes me feel so much worse the next day or taking too much stuff and having a terrible hangover the next day. I can't seem to find a solution to this...
     
  3. Lou

    Lou Senior Member

    Messages:
    582
    Likes:
    434
    southeast US
    You can google it, buy it off the internet.
     
  4. Andrew

    Andrew Senior Member

    Messages:
    2,221
    Likes:
    2,542
    Los Angeles, USA
  5. Lou

    Lou Senior Member

    Messages:
    582
    Likes:
    434
    southeast US
    Drugs? Really? My experience was they either didn't work, work only a short duration, worked somewhat but with side effects, or worked but turned you into a zoombie next morning.
     
  6. ukxmrv

    ukxmrv Senior Member

    Messages:
    4,372
    Likes:
    4,505
    London
    Lou, glad the Immunopro worked for you!

    I wonder if It fits in with the other milky drinks that some people take before bed to help them sleep? Sadly, Immunopro didn't work for me. Even a small amount made my viral symptoms much worse and over time my health really did deteriorate, didn't help sleep at all. A real pity as a nice simple way to get to sleep would be great.

    Hope it continues to work for you.
     
  7. Lou

    Lou Senior Member

    Messages:
    582
    Likes:
    434
    southeast US
    Man, that sucks. You know, ukxmrv, that's why I was a little reluctant to post some of my own remedies, that just as in your case what may work for me, may actually cause harm to someone else. This is some strange illness. Hope you find something that helps.
     
    Nielk likes this.
  8. aquariusgirl

    aquariusgirl Senior Member

    Messages:
    1,575
    Likes:
    550
    I hear you Lou. this illness is a mine field and you don't want to steer someone wrong.
    I tried it, can't remember if it helped, but gave up when I read that it could cause excitotoxicity.
    The reason I stay away from it now is that I came up positive for casein intolerance (casein..dairy..etc.)
    Just fyi.
     
  9. Lou

    Lou Senior Member

    Messages:
    582
    Likes:
    434
    southeast US
    Just to add another layer of strangeness to our varying symtoms, aquariusgirl, the excitotoxicity, if I understand it correctly, is exactly what the Immunepro addressed in my case. Go figure.
     
  10. Valentijn

    Valentijn Senior Member

    Messages:
    14,281
    Likes:
    45,887
    Whey protein has cysteine in it, which is probably what our bodies are ultimately lacking. With enough cysteine, your body can form some more glutathione, thereby using up some of the extra glutamate (another component of glutathione) that's trying to fry your brain when you just want to sleep.
     
  11. ukme

    ukme Senior Member

    Messages:
    169
    Likes:
    8
    I guess this is not OK for the lactose/casein intolerant?
     
  12. Lou

    Lou Senior Member

    Messages:
    582
    Likes:
    434
    southeast US
    Again, this is only one guy's experience, but I have those intolerances, and the benefits of such a small amount of Immunpro offset the side effect.
     
  13. Lou

    Lou Senior Member

    Messages:
    582
    Likes:
    434
    southeast US
    That's insightful, Valentijn, thanks. Your description of the excess glutamate problem is perfect.
     
  14. SOC

    SOC Senior Member

    Messages:
    7,839
    Likes:
    16,566
    So I should be taking my whey protein drink at night instead of in the morning?

    Geez, minefield is right. Just when you think you've got something figured out....
     
  15. Valentijn

    Valentijn Senior Member

    Messages:
    14,281
    Likes:
    45,887
    I doubt taking cysteine in any form is going to make you sleepy, and I have absolutely no idea how fast anything is getting absorbed by the body. But getting glutamate levels lowered somewhat could help with a lot of neurological problems, including trouble falling asleep and waking up a lot.
     
  16. SOC

    SOC Senior Member

    Messages:
    7,839
    Likes:
    16,566
    Whew! It's hard enough keeping up with all the routines we have to make to manage life. I didn't really want to have to figure out how to adjust my food schedule.
     

See more popular forum discussions.

Share This Page