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ME/CFS and the Magic of the Canine Factor
There's been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They've been fairly indifferent to my presence and we've shared a live-and-let-live...
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Sleep success!

Discussion in 'Sleep' started by madietodd, Sep 11, 2013.

  1. Dreambirdie

    Dreambirdie work in progress

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    Update on the FWS. By the tenth day of using this gadget, just once a day in the afternoon, I began to have over-stimulation symptoms. I felt an increase in my pulse and a hyperactive feeling, which continued for several hours afterwards. Luckily, it didn't make my sleep worse, but it also did not improve it at all. I'm relieved that there were no long-lasting adverse effects. Once I stopped using the device, the increase in pulse and hyperactivity diminished by the next day.

    This device, according to the marketing, is used for depression as well as insomnia. I don't have issues with depression. I'm a creative and enthusiastic person, with a tendency to get easily over-stimulated. Anything that boosts my mood and my enthusiasm beyond my already very adequate "normal" range, and pushes me into the hyperactive range, is guaranteed to fail as a remedy for me.

    The FWS has earned an F grade, and has been returned.
    Little Bluestem, rosie26 and MeSci like this.
  2. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Sorry to hear this, Dreambirdie, and also feel wrong about 'liking' your message - really meant :cry: of course.

    But it's very useful to know about adverse effects, so thanks for the warnings. Your self-description fits the character of a high proportion of us, I think.
    Dreambirdie likes this.
  3. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    I too am not kept awake by coffee. I also tried cocaine 3 times when much younger, and it had no effect at all other than making me feel slightly jittery. My companions were really enjoying themselves! I believe that cocaine and caffeine act on the same receptors.
  4. Dreambirdie

    Dreambirdie work in progress

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    Thanks. I feel you, MeSci. :hug: It would have been great to have had some positive results, but oh well :rolleyes: ...

    I'm not sure how many people here are enthusiastically creative types. That would be an interesting poll. There's not a day that goes by where I am not working on a painting, a song or a story. I just finished several essays for a book I'm writing, and have a CD project on the back burner, which is next in line. Ideas for creative projects are always churning in my mind, and they give me a lot of joy. I love tapping into the stream of the creative flow and waiting to see what comes out next. It's always an adventure.

    To balance the creative energies, I need quiet times in nature, along with sleep and rest. I wish I could find something that gave me the restorative sleep my brain is craving. That would be a dream come true. :angel:
    ahimsa and Marlène like this.
  5. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    My enthusiasms are more about science, learning, problem-solving, etc., but I do have a wide range of interests and tend to get very enthusiastic. I also love being in natural surroundings.

    My sleep is variable, but much better since starting the leaky-gut diet and supplements, and I do occasionally get a really good night's sleep and wake with a smile on my face and a spring in my step. I never stop hoping for further improvement...
    ahimsa, Marlène and Dreambirdie like this.
  6. Dreambirdie

    Dreambirdie work in progress

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    Enthusiasms are always a good thing, aren't they? I would feel totally DEAD without them.

    That sounds promising to me. I just ordered the leaky gut test and look forward to seeing what the results will have to say.
  7. madietodd

    madietodd Senior Member

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    UGH! I'm sorry this was another fail for you.

    I've just started testing sleep without the machine to see what happens. I've gotten only a few nights of better sleep in 6 weeks, and it's not the slow and steady improvement it looked like at first.
  8. Dreambirdie

    Dreambirdie work in progress

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    Darn! madietodd I thought it was working for you. It sounded promising. :(

    What I see about my own sleep issues is that they are caused by either: toxins, allergens, and/or pathogens. If I can find the right remedies to clear each of the toxins or allergens when their symptoms manifest, and knock down the viruses, when they are activated, then my sleep improves. If I don't find the right remedies, then it doesn't.

    When I'm really toxic, like I was from the fresh road tar about six weeks ago, then high doses of NAC (up to 3600 mg/day) are what helps me sleep. When the allergens nail me, then I need huge doses of isoquercitin.

    The viruses are the worst to deal with, because when they flare, it's really challenging to find the right supps and herbal prescriptions to knock them back. (Those damn herpes viruses live in the nervous system and totally disrupt it!) It's during those times of viral activation that my sleep is the worst.
  9. Wayne

    Wayne Senior Member

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    madietodd likes this.
  10. madietodd

    madietodd Senior Member

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    I have given up on the fisher wallace stimulator, and am now trying LDN. I'll look into the circumin, thanks.

    It's pretty wonderful to finally have a doctor who has ideas of his own, and is also completely open to trying mine. I feel a little like Edison with his 1000 experiments on the way to making a light bulb! I keep my focus on the fact that he did, in the end, get light.
    L'engle, Sparrowhawk and Wayne like this.
  11. Sparrowhawk

    Sparrowhawk Senior Member

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    Do let us know how the LDN works for you. I joined the related Yahoo group and have been learning more about it. My one concern is that in some people it may mess with their cortisol. Most reports though that I see on that group are very favorable, for a wide range of issues.
  12. madietodd

    madietodd Senior Member

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    0.5mg LDN at 10pm last night........went fine. So at least it's not going to worsen my insomnia. I slept a little better, but that happens sometimes anyway.

    A friend told me that you shouldn't take LDN if taking cortef. Maybe it inhibits its action?
  13. Sparrowhawk

    Sparrowhawk Senior Member

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    I don't know enough to comment on that, madietodd, but I had seen a couple of reports on the LDN yahoo group where folks who had cortisol issues found it lowered their cortisol.

    (Of course in some cases that might be seen as a benefit!)

    That's not something I want to toy with right now, though the possibility of LDN helping my gut is enormously appealing otherwise.
  14. Dreambirdie

    Dreambirdie work in progress

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    LDN gets very mixed reviews. Some people do well on it, some do horribly.

    I tried ENHANSA (the curcumin product produced by Lee Silsby Phamacy) a couple years ago. It worked well for me for a while, to lower brain inflammation and relax the jangle brain. Then it stopped doing its magic. It is VERY expensive, and I am not sure it is that much better than the cheaper kinds.
    Sparrowhawk likes this.
  15. kisekishiawase

    kisekishiawase sad

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    unfortunately i couldnt get the device ehere although before ive tried
    Transcranial magnetic stimulation but didnt noticed anything. or maybe they applied that wrong i dont know

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