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Sjogrens...anyone else have CFS/ME and Sjogrens?

Discussion in 'Connective Tissue Disorders/Ehlers-Danlos Syndrome' started by Misfit Toy, Apr 18, 2014.

  1. Misfit Toy

    Misfit Toy Senior Member

    Was just diagnosed. What else! CFS, Fibro, IC, CVID, Celiac and now Sjogrens and I am sure I am missing something.

    So, anyone else with Sjogrens and what are your experiences?

    It really is an immune system gone haywire.
    Allyson and Valentijn like this.
  2. CFS_for_19_years

    CFS_for_19_years Senior Member

    Seattle, WA
    I've had blood tests for Sjogren's that have always been negative BUT I have had dry eyes for 25 years so I "feel your pain." I've had 3 out of 4 puncta surgically cauterized, which helped. I use Genteal gel at night and Refresh drops during the day. Having dry eyes limits which medications I can take since a lot of them dry out my eyes. Waking up at night with my eyelid stuck to my eyeball is something I can do without.

    I have CFS/ME and FM. The dry eyes preceded these illnesses.
    Last edited: Apr 18, 2014
    Misfit Toy and Allyson like this.
  3. frenchmoxie


    Yup, Sjogren's Syndrome here. Diagnosed in 2007 at age 22.

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