Looking Ahead to Change: Little by Little
I don't make New Year's Resolutions. I don't think I ever really did, but the last decade or two would have been enough to stifle that impulse. I've just been too aware that I don't have that much control over what happens in my life.
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"Six ‘biases’ against patients and carers in evidence-based medicine"

Discussion in 'Other Health News and Research' started by Kyla, Sep 1, 2015.

  1. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    Canada
    http://www.biomedcentral.com/content/pdf/s12916-015-0437-x.pdf
    (Open access)


     
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  2. Denise

    Denise Senior Member

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    Kyla likes this.
  3. whodathunkit

    whodathunkit Senior Member

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    Great article, @Kyla! I sent this on to the nurse educators I know!
     
  4. ahimsa

    ahimsa Senior Member

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    Very important point. Those who are undiagnosed, those who can't get the right tests (blocked by doctors or insurance rules), those who can't afford certain treatments, those who have just given up trying to get health care (not believed, too hard to make it to doctor) -- the list goes on and on.

    I have not yet read the article but it looks interesting. Thanks for posting!
     
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  5. sarah darwins

    sarah darwins I told you I was ill

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    And always nice to see something from a serious research institution published under a Creative Commons license. Knowledge shared, not bought and sold.
     
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  6. Dolphin

    Dolphin Senior Member

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  7. Dolphin

    Dolphin Senior Member

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    I think this would be relevant to ME/CFS and say the focus on fatigue:
    They do give the impression that things may be changing
    e.g.
     
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  8. Dolphin

    Dolphin Senior Member

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    One could imagine this could be relevant with some appointments on ME/CFS e.g. therapists prescribing exercise and the like.
     
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  9. Dolphin

    Dolphin Senior Member

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  10. Dolphin

    Dolphin Senior Member

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    This reminds me of quite a few of the quotes in the ME Association CBT/GET/Pacing survey
    http://www.meassociation.org.uk/2015/05/23959/

    Some people were saying the plans did not fit in with their responsibilities e.g. as a single parent.

    And more generally I think the very regimented management programs with lots and lots of fixed rested periods across a day and a lot of energy being used up on exercising do not fit in with a lot of the responsibilities and preferences patients with ME/CFS have.
     
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  11. Dolphin

    Dolphin Senior Member

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    I get the impression that this is missing from many appointments people with ME/CFS have (perhaps particularly when a biopsychosocial approach is brought to the consultation).
     
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  12. Dolphin

    Dolphin Senior Member

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    One could see that happening sometimes with ME/CFS.

     
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  13. Dolphin

    Dolphin Senior Member

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    Not sure whether this is exactly what the authors have in mind but I could see somebody avoiding or postponing having surgergy because of responsibilities they have to others.
     
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  14. Dolphin

    Dolphin Senior Member

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  15. Dolphin

    Dolphin Senior Member

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  16. Dolphin

    Dolphin Senior Member

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  17. Dolphin

    Dolphin Senior Member

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  18. Snowdrop

    Snowdrop Rebel without a biscuit

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    Yes, this is a health management system based on a theoretical person in a void. With no past and no future the theoretical person can fit quite nicely without any fuss and bother into the Dr's busy schedule. No need to consider the person in the void an actual being with a life with meaning beyond accepting medical help. To them you exist only in the moment--makes it sound almost buddhist except for the implications.
     
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  19. Dolphin

    Dolphin Senior Member

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  20. Dolphin

    Dolphin Senior Member

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