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Sir Simon defends the newsletter. On Twitter

Kati

Patient in training
Messages
5,497
I believe PR has a thread going on regarding what Sir Simon said over the years.

We can remind him. We can find comfort in reminding him what he said.
 

TiredSam

The wise nematode hibernates
Messages
2,677
Location
Germany
There's also a little comfort to be had from the fact that he's now obviously realising that he can't go on making the ridiculously unacceptable kinds of claims he's made in the past, and that he'd better try and disassociate himself from them (not that he can, but in his delusional universe it's worth a try). He might not understand that what he's done is appallingly wrong, but a least he's realising that he'd better shut up. It's a progress of sorts.
 

jimells

Senior Member
Messages
2,009
Location
northern Maine
I don't think we can influence him directly in any way. I think the influence can only come from his peers.

I don't care about influencing him. I care about driving him back into whatever hole he and his pals crawled out of, after he is called to account in a court of law. His fraud has led to suffering and death for many patients, who have done nothing wrong besides getting sick.

We owe it to the families of dead patients to see that justice is done. Personally, I would like to see him on trial for manslaughter. Not just him, but he's probably going to be the sacrificial scapegoat. His insurance industry handlers are just as guilty, maybe more so, but they are probably untouchable and will remain in the shadows, laughing all the way to the bank.
 

Ellkaye

Senior Member
Messages
163
They used the Oxford Criteria.
Says it all really.
Plain barmY.
What on earth were they thinking !!!
What I find funny is that as psychiatrists they really thought that depressed patients would improve with little boring incremental activity increases!!! Not very stimulating is it !!

5 million pounds...

Retract retract retract !!!!!

What an idiotic fiddle ! They took depressed patients and tried to say they had ME and kept lowering the limit ridiculously low to fit into smthg not even depressed patients could be forced to fit into....Shows how much they know about depression!!

Plain barmy

The 5 million fiddle
The most expensive instrument of the band.

And the band plays on
 
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jimells

Senior Member
Messages
2,009
Location
northern Maine
What on earth were they thinking !!!

Their heads were filled with visions of fame and fortune by getting into bed with the Masters of the Universe. But it's a funny thing about working for gangsters. When a wise guy becomes a liability, they are kicked to the curb, just like we have been.

I can hear Sir Simon whining

But I was only following orders!!!
 

Ellkaye

Senior Member
Messages
163
The 5 million pound fiddle is the most expensive instrument of the band playing on.
You clear the co-infections first and/or strengthen the immune system.
Then you go in and take out what's causing the grief. Bingo.
Forget everything else.
It's 2015 !!!!
The Oxford criteria came out 20years ago. What planet are they on?!!
Five million pounds !!
 
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Antares in NYC

Senior Member
Messages
582
Location
USA
It is best to let David Tuller and James Coyne argue with him in my opinion. They are both in powerful position to argue and defend what they wrote and defend us patients.

Every argument coming from a patient will be discounted and/or interpreted as abuse.
Actually, this bunch is extremely thin-skinned.
I looked for the examples of "abuse" the PACE researchers claim that are getting online, and to me it looks like your average Twitter banter. It may be a generational thing, their lack of familiarity with how unrestricted free-speech works on the Internet, or the fact that they are used to receiving nothing short of reverential treatment from those around them.

Unless there's something I'm missing, I haven't seen the horrible abuse" they are receiving in social media. Questioning their flawed methodology is not abuse. Even heated exchange is not abuse.

For example, when Tuller asked for all their PACE research data via FOIA, the PACE authors called it a "vexatious" act. So we are to believe their thesis without question; questioning their methods becomes an act of humiliation.

I don't think it's just that they suffer of an incredibly thin skin; I think they have been 'crying wolf" every time time someone criticized them in the last few decades. If anything, Wess and Co are great PR managers and were successful at characterizing criticism as "abuse" and their critics as an irrational "angry mob" out to get them.

Now that other scientific peers are parsing and questioning their methods, this strategy of "crying wolf" doesn't work anymore, but they sure keep using it. One-trick ponies with very thin skin.
 
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Antares in NYC

Senior Member
Messages
582
Location
USA
Is it time for some knowledgeable tweeter to start tweeting these quotations into some of these conversations about the PACE trial?
Wow, SOC, that would be so..."vexatious". ;-)
Yes, someone should do it. It would only be fair.
 
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biophile

Places I'd rather be.
Messages
8,977
Simon Wessely ‏@WesselyS

Good op piece by @IsabelHardman in @SpecCoffeeHouse on CFS, responding to Rod Liddle http://blogs.new.spectator.co.uk/20...ed-that-me-is-not-actually-a-chronic-illness/

https://twitter.com/WesselyS/status/661234915963494400

James C.Coyne ‏@CoyneoftheRealm

.@WesselyS We are now officially on opposing sides. @IsabelHardman @SpecCoffeeHouse should have set former assoc editor Liddle into exile.

https://twitter.com/CoyneoftheRealm/status/661349744283906049
 

Valentijn

Senior Member
Messages
15,786
I've jumped on board with the #SimonSays tweeting of choice quotes.

I've done 5 for now, regarding his statements about benefits and carer assistance for ME patients, since they're the most shocking.

https://twitter.com/ME_Valentijn/status/661471520217292800
https://twitter.com/ME_Valentijn/status/661468697844928512
https://twitter.com/ME_Valentijn/status/661467763979001856
https://twitter.com/ME_Valentijn/status/661466705797992448
https://twitter.com/ME_Valentijn/status/661465338362597376

I did a short quote or paraphrase for each, with a small image attached showing the full quote and source. Please Like and/or Retweet :)

To make the images I took screenshots of the Wessely Quotes page and cropped them in the standard Paint program which comes with Windows. Then they can be directly added to tweets via the "Media" button right under the bit where you type in the tweet message.

Make and tweet your own favorites!