The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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Sir Simon defends the newsletter. On Twitter

Discussion in 'General ME/CFS News' started by Kati, Oct 31, 2015.

  1. Kati

    Kati Patient in training

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    barbc56, Valentijn, catly and 2 others like this.
  2. Wildcat

    Wildcat

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    moosie, barbc56, justy and 8 others like this.
  3. Scarecrow

    Scarecrow Revolting Peasant

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    After the end of recruitment? That's ok then.
     
    barbc56, Hutan, Effi and 2 others like this.
  4. Sasha

    Sasha Fine, thank you

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    He thinks he can defend the trial in 140 characters?
     
    barbc56, Valentijn, Chrisb and 7 others like this.
  5. Kati

    Kati Patient in training

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    Reply from David Tuller:

    davidtuller (@davidtuller1) tweeted at 1:41pm - 31 Oct 15:

    @WesselyS @TheLancetPsych Simon, this argument is not working. There were 200+ people still being assessed. (https://twitter.com/davidtuller1/status/660557282460110848?s=17)
     
    moosie, barbc56, Valentijn and 7 others like this.
  6. msf

    msf Senior Member

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    The title of this thread reminded me of the Chili Peppers. Sir Psycho Wessely, that´s his name...
     
    barbc56 likes this.
  7. Kati

    Kati Patient in training

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    I wanted to highlight his knighthood obtained for his work with patients with me/cfs (call it what you want)
     
    Antares in NYC, barbc56 and catly like this.
  8. msf

    msf Senior Member

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    Can anyone with a Twitter account when he is going to give up the game and apologise to us for all the harm he has done? And then ask him again the next day, and the next day, and so on, ad infiniteum?
     
  9. Kati

    Kati Patient in training

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    There is no point of doing this @msf. It is probably best not to engage with him, but engage with everybody else. Science or the lack of it, will make that judgement.

    It must have hurt when he heard the NIH director saying they didn't have the right skill set the other day
     
  10. msf

    msf Senior Member

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    Well, maybe not now, but once the science is all in our favour, we should make sure he apologises.
     
    Never Give Up likes this.
  11. Kati

    Kati Patient in training

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    Not holding my breath.
     
    justy likes this.
  12. SOC

    SOC Senior Member

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    And this answers the question of interfering with the patient response how? That they did it in a way that interfered equally across all arms? o_O The point is that they shouldn't have been touting the success of the study to the study participants in any way whatsoever before the study was over . That's basic research protocol and ethics, people. It is particularly egregious because they were using subjective outcome measures, so anything that might influence how the participants answer the questionnaires (such as CBT :rolleyes:) should be avoided at all costs.

    Deflection, misdirection, deliberate obtuseness.

    Emperor Simon, you have no clothes.
     
    Ritto, Antares in NYC, SDSue and 12 others like this.
  13. msf

    msf Senior Member

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    I didn´t see that Francis Collins had said that, that´s hilarious, the scientific equivalent of ´you don´t know what the hell you are talking about.´
     
  14. SOC

    SOC Senior Member

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    Yep. The scientific world will take him down. Maybe not the UK branch -- the jury is still out on which way they'll jump-- but the rest of the scientific world is going to make clear what a pile of doodoo his work is. Being embarrassed by, and in front of, those he thinks of as his peers is going to be much more painful than being bothered by the ME patients he considers his social and intellectual inferiors.
     
    Last edited by a moderator: Oct 31, 2015
  15. msf

    msf Senior Member

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    Nah, in my opinion he is giving Wessely credibility by engaging him in rational debate. The Wess understands one thing, and one thing only: PR campaigns.
     
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  16. msf

    msf Senior Member

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    Ok, I deleted the ones about the H-Word.
     
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  17. user9876

    user9876 Senior Member

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    It should be said that he went on to tweet that opposition to the trial would have had more of an effect than the newsletter. In doing so he brings into question the whole notion of subjective measures. It seems obvious to me that the biggest effect on subjective measures is the treatments that say 'change how you think about your symptoms and you will get better'. Followed by the question 'how do you feel about your symptoms'!
     
    barbc56, maryb, Valentijn and 13 others like this.
  18. msf

    msf Senior Member

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    If you feel that way, Bob, why are you posting on this thread? It´s about Wessely on Twitter.
     
  19. Bob

    Bob

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    I don't understand? Shouldn't I be posting here? BTW, thanks for deleting. Appreciated.
     
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  20. msf

    msf Senior Member

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    No, I wasn´t trying to tell you what to do, I was just pointing out that this thread is about how Wessely is giving his side of the story on Twitter. I took your comments to mean that you don´t care what he says or doesn´t say on Twitter. Perhaps I misunderstood you/came to the wrong conclusion.
     

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