The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
Discuss the article on the Forums.

Sinusitis Misery: Mast Cell Madness???

Discussion in 'Mast Cell Disorders/Mastocytosis' started by ahmo, Sep 23, 2016.

  1. ahmo

    ahmo Senior Member

    Messages:
    4,353
    Likes:
    6,562
    Northcoast NSW, Australia
    I think xylitol was helpful in finally clearing my infection. I now make my own xylitol spray, use it AM/PM. I've been doing this 5-6 months, no evidence of fungus. Also make xylitol mouthwash. nice.
     
  2. Kathevans

    Kathevans Senior Member

    Messages:
    566
    Likes:
    444
    Boston, Massachusetts
    @ahmo I haven't read through this thread, and don't know if someone has mentioned it, but what about oil pulling? I tried his for about five days running recently, using about a half a tablespoon of coconut oil for twenty minutes, then rinsing with salt water,brushing with baking soda, and gargling with peroxide solution and water.

    Every time I do the oil pulling, there's a moment some period into it when my sinuses clear,and the effect remains when I'm done. This reminds me that I have to get back to this! For me it was very healing. My mouth has been problematic since I got sick twenty years ago...not yeast, but something that causes red soreness and fissures. The oil pulling had it looking and feeling much improved...
     
  3. Gondwanaland

    Gondwanaland Senior Member

    Messages:
    4,617
    Likes:
    3,595
    @ahmo @Kathevans
    I am going thru a sinusitis quickly developed from a rhinitis caused by sulfites. I wonder if the xylitol and oli pulling (coconut?) work thru homeopathic principle by giving more of the same insult (sulfites, phenols) to provoke a healing reaction.
     
  4. Basilico

    Basilico Florida

    Messages:
    872
    Likes:
    2,057
    This may not help most people, but I wanted to put this out there in case it helps someone.

    My husband had chronic sinusitis and general congestion for his entire life. In thinking back to his childhood, he remembered that his congestion disappeared when he spent summers in a dry desert climate on the Mediterranean.

    We live in Florida, which is super humid, and thinking that the humidity in the air (or the mold it supports) might be contributing to his issues, we started running a dehumidifier all day and all night - keeping the humidity under 50% at all times (lower if possible). As soon as we were able to get the apartment 'dried out' his congestion disappeared. The minute we get lazy with the dehumidifier and the humidity creeps back up, his congestion returns instantly.

    Running an A/C is not enough to get the humidity low enough to make a difference, it really needs to be a dehumidifier. The temperature of the air is not really important, just that the humidity is under 50% (under 40% is ideal, but under 50% retards mold growth). I'm still not sure if it's the mold or something else that's been bothering him, but it definitely is tied to the moisture in the air.
     
    Kathevans likes this.
  5. Gondwanaland

    Gondwanaland Senior Member

    Messages:
    4,617
    Likes:
    3,595
    It has been mentioned before at some other thread some enzymes which can't properly function due to excess humidity, unfortunately I didn't take note of which ones.
     
    Basilico likes this.
  6. Gondwanaland

    Gondwanaland Senior Member

    Messages:
    4,617
    Likes:
    3,595
    I have a progress to report:

    Yesterday I tried to soften the hardened mucus inside my sinuses and did Vick inhalation with a pan with hot water. It seemed to help like 20%, and later in the day the mucosa in my nose and throat became dry and burning. At bedtime the burning feeling was very uncomfortable and I came up with a moisturizing potion: 1 tsp of honey + 1 tsp of melted butter. I swallowed it (it tasted delicious) and got immediate relief from the rawness AND the sinus immediately cleared. I guess the sinus has already cleared during the inhalation, but due to the mucosa rawness, I had the sensation it was still clogged.

    Washing the nasal passages with warm saline solution causes the same dehydration of the mucosa as the vick vapors.

    I suppose the vitamin A from the butter was responsible for the mucosa rehydration.
     
  7. Kathevans

    Kathevans Senior Member

    Messages:
    566
    Likes:
    444
    Boston, Massachusetts
    @Gondwanaland Washing nasal passages using the saline in a neti pot? I have done this to great effect particularly when I was severely congested with a cold and had to fly. I was afraid of bursting an eardrum. Using the neti pot helped enormously.

    Honey, was always a remedy my grandmother gave me at night to sooothe a cough. No butter though!
     
  8. Gondwanaland

    Gondwanaland Senior Member

    Messages:
    4,617
    Likes:
    3,595
    Since I don't have a netti pot, I use a syringe (w/o needle of course).
    I added it with moisturizing purpose. I guess the vit A helped my dry mucosa, otherwise I guess vit A stimulates mucus secretion and would be not indicated in such cases.
     
    Kathevans likes this.
  9. Thinktank

    Thinktank Senior Member

    Messages:
    1,267
    Likes:
    1,434
    Europe + Asia
    I've mast cell problems and sinusitis, bronchitis + asthma since the early stages of this disease.

    I found great relief with the following supplements and i no longer need my inhaler and nasal steroid spray:
    Quercetin (phospholipid formulation from Thorne)
    Boswellia (in MCT oil gelcaps from NOW foods)
    Curcumin (Phospolipid, soy free formulation from Thorne)
    Butterbur + feverfew (from NOW foods)

    I rotate these or combine two to three products on severe days, can't take it all the time because somehow it causes a feeling of overstimulation, like an abundance of adrenalin flowing through my body.
     
  10. taa2

    taa2

    Messages:
    28
    Likes:
    19
    what immune modulator did you use please?
     
  11. Gondwanaland

    Gondwanaland Senior Member

    Messages:
    4,617
    Likes:
    3,595
    I know we discussed it before, but last night I had confirmation about salicylate allergy causing the nasal congestion (I had it from drinking a tea). In this case vit B5 should help, but the one I have at home is in tablets which contain contra-productive ingredients. Also I read the following, and remembered zinc being mentioned in this (and other) thread:

     

    Attached Files:

    ahmo and ebethc like this.
  12. ebethc

    ebethc Senior Member

    Messages:
    1,217
    Likes:
    793
    Thanks for the carnosine tip, @Gondwanaland !

    My body really likes zinc, so having a co factor should help
     
  13. Gondwanaland

    Gondwanaland Senior Member

    Messages:
    4,617
    Likes:
    3,595
    There is a thread on Carnosine
     
    ebethc likes this.
  14. ebethc

    ebethc Senior Member

    Messages:
    1,217
    Likes:
    793
    Thanks.. that's one of those things that I tried when I was more sick and I should try again now that I've narrowed down my problems .. my gut is way better
     
  15. Cinders66

    Cinders66 Senior Member

    Messages:
    417
    Likes:
    1,811
    I have chronic rhinitis not sinusitis as diagnosis - anti histamines no help, I'm on prescription decongestant sprays. They help a bit but it's a major symptom for me and it's severity is based on the intensity of the M,E day to day so they're definitely related and I think chronic rhinitis has been associated with CFS. Most of the time I can't actually breathe through my nose. We need mast cell research, immune research, allergy research and even blood vessel research, is the issue circulatory? So much research needed across many areas, and I see 3-5 noteworthy projects happening in the UK, how inadequate.

    Baranuik https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3650978/
    Idiopathic nonallergic rhinitis (iNAR) has been difficult to define because of the long differential diagnosis of rhinopathy in the absence of allergic rhinitis. iNAR has traditionally been a diagnosis of exclusion with no clear unifying pathophysiology. Increased sensitivity to triggers such has climate changes, cold air, tobacco smoke, strong odors, and perfumes have been thought to be characteristic, but recent studies do not support this hypersensitivity hypothesis. New investigations of the local nasal environment and systemic "functional" syndromes have offered new insights into this condition. iNAR may be a heterogenous disorder that includes (1) anatomic abnormalities requiring nasal endoscopy for diagnosis, (2) incipient, local atopy (entopy), (3) dysfunction of nociceptive nerve sensor and ion channel proteins, and (4) autonomic dysfunction as found in chronic fatigue syndrome and other functional disorders.

    Baranuik again talking about neurogenic non allergic rhinitis
    http://link.springer.com/chapter/10.1007/978-4-431-88317-3_5
    Chronic fatigue syndrome (CFS) is an enigmatic and often disputed illness. The initial cases were described as rapid onset fatigue with flu-like symptoms of malaise, myalgia and a sensation of feverishness that were detected in infection-like epidemiological clusters. Almost 74% of CFS subjects have nonallergic rhinitis of probable neurogenic origin. Other potential pathological mechanisms such as allergy, infection and immune deviation are unlikely to play causative roles. These subjects are likely to find their way into our offices making it imperative that we learn to recognize the condition and its allied syndromes, and develop an empathetic but structured approach to their long-term care.
     
    Last edited: Apr 20, 2017
    Harown likes this.
  16. ebethc

    ebethc Senior Member

    Messages:
    1,217
    Likes:
    793
    @Cinders66 whats the diff between rhinitis and sinusitis?
     
  17. Gondwanaland

    Gondwanaland Senior Member

    Messages:
    4,617
    Likes:
    3,595
    Interestingly dietary salicylates play a significant role.
     
    Chocolove likes this.
  18. Gondwanaland

    Gondwanaland Senior Member

    Messages:
    4,617
    Likes:
    3,595
    Lately I have been considering the hypothesis of high Selenium inhibiting Zinc.
     
    ebethc likes this.
  19. ahmo

    ahmo Senior Member

    Messages:
    4,353
    Likes:
    6,562
    Northcoast NSW, Australia
    Hmmm...I take 50mg zn + 400mcg se together, early AM. Seems to be ok.
     
    Gondwanaland likes this.

See more popular forum discussions.

Share This Page