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Simon Wessely wins prize for "Standing Up For Science."

Discussion in 'General ME/CFS News' started by urbantravels, Nov 6, 2012.

  1. Simon

    Simon

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    There's a critque of the viral fatigue study you mention here:
     
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  2. Desdinova

    Desdinova Senior Member

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    o_O
    Yes how dare we the powerful minority be our own advocates and express our opinions in relation to the very health issues that afflict us under the guise of (aka fake) support groups. Yes how dare we indeed, Bad ME/CFS patients Bad Bad.

    :rolleyes: Good Lord, laying it on thick ain't they. Listening to them you'd think Wessely was receiving mail bags full of hostile threatening letters addressed to him. Kind of like the scene from the movie Miracle on 34th street.
     
    Min likes this.
  3. Enid

    Enid Senior Member

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    I recall various models for this sort of behaviour in psychology - all lacking any reason. "Under the guise of self-help organisations" - sounds straight out of a John Le Carre novel......spooky.
     
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  4. Min

    Min Senior Member

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  5. Nielk

    Nielk

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    I found this quote regarding his father being a Holocaust survivor:

    "I've never made a secret of the fact that I greatly admire our armed services and feel we don't value them enough. Those feelings have no doubt been influenced by my father's background." As a teenager his dad travelled alone on the Kindertransport from Prague to Britain to escape the Nazis. He was fostered then adopted by a family in Cottingham, near Hull and went on to serve in the Royal Navy before becoming a teacher.

    http://www.yorkshirepost.co.uk/news...ht-to-explain-our-casualties-of-war-1-2354350
     
  6. In Vitro Infidelium

    In Vitro Infidelium Guest

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    Sorry I couldn't resist the irony of going against your advice, by er ...agreeing with youo_O:)

    IVI
     
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  7. Tito

    Tito Senior Member

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    It's more the sort of comment a 'celeb' would make rather than a scientist. I've never heard KDM, Bell, Peterson, ... making that sort of statement.
     
  8. Merry

    Merry Senior Member

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  9. Nielk

    Nielk

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    Please watch this video at your own risk.

     
    Merry likes this.
  10. Merry

    Merry Senior Member

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    In a way, Simon Wessely receiving the John Maddox Prize is fitting because here's what Wikipedia has to say about John Maddox's view of AIDS:

    "Maddox penned an editorial in April 1983 entitled 'No Need for Panic about AIDS' that voiced the then-common thinking that 'male homosexuals should be persuaded to change their ways' of' 'pathetic promiscuity' and described AIDS as a 'perhaps non-existent condition'."
     
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  11. notinfinite

    notinfinite Guest

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    Brilliant and yet strangely familiar.
     
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  12. biophile

    biophile Places I'd rather be.

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    Oh the irony ...
    I guess asking for the evidence is different than evaluating it.

    Some brief churnalism from New Scientist magazine:

    http://www.newscientist.com/article...d-psychiatrist-awarded-prize-for-bravery.html
    Some concerning background to Sense About Science and the Science Media Centre:

    http://www.guardian.co.uk/education/2003/dec/09/highereducation.uk2

     
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  13. Bob

    Bob

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    Coincidently, I've exchanged communications with Sense About Science before.
    They have an active (quite aggressive) pro-GM stance, and have recently been involved in promoting GM in the UK, whilst claiming to be neutrally pro-science.
    I asked them to respond to a number of concerns that I have about GM. The response failed to properly address or acknowledge most of my concerns. (They acknowledged the reality of one or two of my concerns, in their response, but then dismissed them as unimportant.)

    Here is Sense About Science's Twitter account:
    https://twitter.com/senseaboutsci
     
    Min likes this.
  14. taniaaust1

    taniaaust1

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    thanks.. by the actual article, as they said son of holocaust "survivors".. it made it sound as both his parents were (seems by the above as both parents werent mentioned in the quote Nielk posted.. only one of his parents were).
     
  15. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    http://www.ajr.org.uk/journal/issue.Mar03/article.419

    Association of Jewish Refuges

    Mar 2003 Journal

    [...]

    ...Among the children who gave their recollections to Esther Rantzen were Lord Alf Dubs, Vera Schaufeld, Lady Milena Grenfell-Baines, Käthe Strenitz (last month’s AJR Journal profilee), Vera Gissing and Rudy Wessely, a 77-year-old retired university lecturer with whom Esther returned to Prague, a city he had last seen at the age of 14.

    [...]

    ...Sitting with Esther in the Wessely family’s former flat, in which he had spent his last day with his parents, Rudy confessed that there were memories too much to bear and “too many ghosts” for him to return to Prague once again. From the Czech Jewish community’s archives he learned that his father, a judge who was imprisoned in the small fortress in Theresienstadt, and his mother, had been reunited for their final journey to Auschwitz.
     
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  16. taniaaust1

    taniaaust1

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    Thanks Dx Revision for finding the facts for us. At least we now know he isnt making that up to draw attention to himself.
     
  17. Enid

    Enid Senior Member

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    Yes it is genuine - but my husband and family went through like circumstances, but does not dwell on it - it is far too sad. And then of course so very many too.....not special to SW.
     
    Sing likes this.
  18. Min

    Min Senior Member

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    Statement from the UK charity Invest in ME:

     
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  19. Min

    Min Senior Member

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    response from: angliameaction.org.uk Subject: [CO-CURE] ACT: PLEASE CAN WE SEE OBJECTIVE EVIDENCE OF THREATS AGAINST PROFESSOR WESSELY?

    PLEASE CAN WE SEE THE OBJECTIVE EVIDENCE OF WIDESPREAD M.E. PATIENT
    "THREATS" AGAINST PROFESSOR SIMON WESSELY?

    To whom it may concern,

    Re the recent award of the John Maddox Prize to Professor Simon Wessely
    for 'standing up for science': /*"*/Simon Wessely, Professor of
    Psychological Medicine at Kings College London, is awarded the Prize for
    his ambition and courage in the field of ME (chronic fatigue syndrome)
    and Gulf War syndrome, and the way he has dealt bravely with
    intimidation and harassment when speaking about his work and that of
    colleagues./*"*/[1]

    Professor Wessely, and sections of the media, have previously claimed
    that he has been the object of death threats[2]. The widespread press
    coverage of which in 2011 just happened to coincide with the publication
    of an International Expert Consensus Panel document[3]. That ME
    International Consensus Criteria (ME-ICC) document eruditely refuted
    much of what Professor Wessely has claimed with regard to both the
    nature of and the World Health Organization (WHO) classification of the
    serious neurological disease that is Myalgic Encephalomyelitis (ME).

    One of the authors of the ME-ICC document, Dr Terry Mitchell, was until
    recently one of the most experienced consultant NHS ME specialists in
    the UK - having cared for tens of thousands of ME patients over many
    years. He had previously expressed grave concerns about Professor
    Wessely's favoured CBT/GET 'treatments', the unrepresentative nature of
    the National Institute for Health and Clinical Excellence (NICE)
    guideline development group on 'CFS/ME' and its apparent skewed
    appraisal of the scientific evidence base[4]. Along with other
    documentation[5], objective study of material produced by said
    international panel would, I believe, considerably undermine the case
    for Professor Wessely being awarded a prize for scientific excellence
    with regard to "ME (chronic fatigue syndrome)".

    Turning to the matter of alleged threats against Professor Wessely and
    given the associated grave accusations of widespread abuse from the ME
    community. Is it not time that questions were asked in parliament and
    elsewhere demanding conclusive proof of these alleged threats against
    him? Have such matters been investigated by the Police and been shown to
    have any substantial basis to them? Is there for example actual evidence
    of Police issuing warnings to individuals from the ME community? Has the
    Crown Prosecution Service ever issued court proceedings against any such
    individual from the ME community? If independent evidence of individuals
    threatening violence does exist, are they many in number and can they be
    fairly described as being representative of the ME community?

    Claims of such threats, are not only thus far Iacking publicly
    verifiable supportive evidence to my knowledge, they are lacking
    perspective. It feels to me like Professor Wessely and sections of the
    media are effectively daemonising an entire generation of unfortunate
    people with serious WHO-classified (ICD-10-G93.3) neurological
    illness[6]. All because, as far as I am aware, perhaps a few so far
    unnamed, unrepresentative individuals have allegedly issued threats
    against his personal safety.

    There most certainly is however to my knowledge evidence available for
    public scrutiny that Professor Wessely has misrepresented both the
    nature of the disease that is Myalgic Encephalomyelitis (ME) and its
    World Health Organisation (WHO) classification and nomenclature[7].
    There is also serious evidence that the kind of psychosocial views on
    "ME (chronic fatigue syndrome)" advocated by Professor Wessely and his
    colleagues have had very unfortunate consequences for patients[8].

    It would clearly be wrong for any person with ME to issue a credible
    threat of bodily harm to anyone. Is it not however understandable that
    vulnerable patients will express different orders of frustration if
    irresponsible misrepresentation has in fact been done by someone who has
    a professional duty of care and scientific accuracy? Moreover, there is
    a world of difference between patients venting understandable
    frustration and patients actually issuing threats of bodily harm. Do we
    not need objective evidence to show that Professor Wessely's claims of
    "intimidation" properly differentiates between the two? We also clearly
    need assurance that Professor Wessely and his media friends
    differentiate between abusive threats and legitimate erudite complaints
    regarding alleged professional and scientific misconduct[9]. Do not all
    medical professionals, particularly those receiving substantial public
    funding, need to be properly accountable to professional and public bodies?

    In summary, if there is any hard evidence that ME patients have actually
    gone beyond venting frustration and have issued actual "threats"
    regarding Professor Wessely's personal safety then the extent and
    objectivity of that evidence needs to be independently verified and put
    into proper context and perspective? It is not right that tens of
    thousands of innocent and vulnerable patients are associated with the
    alleged misdemeanors of a few and denied appropriate biomedical care
    that is increasingly justified by good science[10].

    Anglia ME Action [UK], 7 November 2012.
    contact@angliameaction.org.uk
    REFERENCES:

    [1] Source, Sense about Science, November 6, 2012:
    http://www.senseaboutscience.org/pages/2012-maddox-prize.html
    [2] On BBC Radio 4, Friday, 29 July 2011, for example:
    http://news.bbc.co.uk/today/hi/today/newsid_9550000/9550947.stm

    [3] Myalgic Encephalomyelitis: International Consensus Criteria
    [ME-ICC], Carruthers et al, Journal of Internal Medicine, 2011. Doi:
    10.1111/j.1365-2796.2011.02428x:
    http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/abstract
    http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/pdf
    Also see the important 2012 follow-up document from the
    International Consensus Panel:
    Myalgic Encephalomyelitis -- Adult & Paediatric: International Consensus
    Primer for Medical Practitioners, Carruthers et al, International
    Consensus Panel, 2012. ISBN 978-0-9739335-3-6:
    www.angliameaction.org.uk/docs/ME-ICC-Primer-2012.pdf

    [4] Dr Terry Mitchell, witness statement to the UK High Court, 23 June 2008:
    http://www.angliameaction.org.uk/NICEJRdocs/Terry_Mitchell_WS.pdf

    [5] See, for example, documentation at the 'ME Action UK' website:
    http://www.meactionuk.org.uk/

    [6] 'ME/Myalgic Encephalomyelitis (benign)' is classified along with
    'PVFS/Postviral Fatigue Syndrome' by the World Health Organization (WHO)
    in the tenth revision of 'The International Statistical Classification
    of Diseases and Related Health Problems' (ICD-10) in chapter VI,
    diseases of the nervous system, other disorders of the nervous system,
    other disorders of the brain (G93.3) - ICD-10-G93.3. See:
    http://apps.who.int.classifications/icd10/browse/2010/en

    [7] See for example the many documented reports and sources of Professor
    Wessely's statements and claims at the 'ME Action UK' website:
    http://www.meactionuk.org.uk/

    [8] See for example the case of Sophia Mirza in 2005, a young ME patient
    who was accused of exaggerating and misattributing her illness, was
    forcibly removed into psychiatric 'care' and died shortly after from
    renal failure. The subsequent autopsy revealed considerable damage to
    her central nervous system along with other serious physical pathologies
    long associated with ME:
    http://www.sophiaandme.org.uk/
    http://www.sophiaandme.org.uk/docsindex/212.jpg

    [9] Such as, for example, Professor Malcolm Hooper's concerns with the
    widely criticised MRC-funded 'PACE Trial into CFS/ME' - see:
    http://www.meactionuk.org.uk/COMPLAINT-to-Lancet-re-PACE.htm
    http://meactionuk.org.uk/Update-on-the-PACE-Trial-110712.htm
    http://meactionuk.org.uk/Further_Articles.htm

    [10] See for example the Website of 'Invest in ME' a national UK charity
    running fully accredited annual scientific conferences in Westminster:
    http://www.investinme.org/index.htm
    And see:
    Myalgic Encephalomyelitis: International Consensus Criteria [ME-ICC],
    Carruthers et al, Journal of Internal Medicine, 2011. Doi:
    10.1111/j.1365-2796.2011.02428x:
    http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/abstract
    http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/pdf
    Also see the important 2012 follow-up document from the
    International Consensus Panel:
    Myalgic Encephalomyelitis -- Adult & Paediatric: International Consensus
    Primer for Medical Practitioners, Carruthers et al, International
    Consensus Panel, 2012. ISBN 978-0-9739335-3-6:
    www.angliameaction.org.uk/docs/ME-ICC-Primer-2012.pdf

    [ PERMISSION TO REPOST].
     
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  20. Merry

    Merry Senior Member

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    Thanks, Min. Yesterday I wondered if Sense About Science was connected to the Science Media Centre, but I forgot to check. So scatter-brained. I shouldn't have bothered giving Sense About Science a piece of my mind.

    I already knew about Simon Wessely's conection to Science Media Centre and Spiked. Incestuous, all of this.

    What is the history of connections, if any, between John and Brenda Maddox and Nature to Sense About Science and the Science Media Centre?
     
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