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Simmaron Research, Patient Day, 9th September 2017

Discussion in 'Upcoming ME/CFS Events' started by AndyPR, Sep 3, 2017.

  1. AndyPR

    AndyPR Senior Member

    From their email newsletter - http://mailchi.mp/0a19070f974f/simmaron-research-news-updates?e=db85dc6e2d
    In this Facebook postupdate, https://www.facebook.com/SimmaronResearch/posts/1685627484802734, they say
     
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  2. A.B.

    A.B. Senior Member

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    It's a live video stream.
     
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  3. AndyPR

    AndyPR Senior Member

    Yeah, sorry, I knew that but it didn't occur to me to provide a bit more explanation.
     
  4. Gemini

    Gemini Senior Member

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    East Coast USA
    @A.B. do you know if one has to have a Facebook account to view it or is it available to all?
     
  5. A.B.

    A.B. Senior Member

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    I think it's available to all but don't know for sure. Simmaron Research videos are publicly visible on their facebook page. I assume the live stream will appear like a regular video, just live.
     
  6. Cort

    Cort Phoenix Rising Founder

    I'll be there. Looking forward to it.
     
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  7. shannah

    shannah Senior Member

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    Last edited: Sep 9, 2017
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  8. Snow Leopard

    Snow Leopard Hibernating

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    Can you please ask the researchers about whether anyone has any ideas about the link of CFS following Guillain–Barré syndrome?

    There seems to be a pervasive myth that most GBS patients have good recoveries.

    Patient experiences:
    http://www.steadyhealth.com/topics/guillain-barre-and-chronic-fatigue?page=1

    http://www.sciencedirect.com/science/article/pii/S0022510X12000482
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4162023/
    https://www.ncbi.nlm.nih.gov/pubmed/27077919

    etc.

    At the very least this seems like an interesting subgroup of patients with specific disease pathology.
     

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