The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
Discuss the article on the Forums.

Sign the petition: Stop graded exercise therapy trial at University of NSW (Australia)

Discussion in 'Petitions' started by Sasha, Dec 6, 2016.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    12,796
    Likes:
    34,258
    UK
  2. AndyPR

    AndyPR Senior Member

    Signed :)
     
    barbc56, Mary, MeSci and 2 others like this.
  3. Richard7

    Richard7 Senior Member

    Messages:
    552
    Likes:
    985
    Australia
    ditto
     
    barbc56, Mary, MeSci and 2 others like this.
  4. TiredSam

    TiredSam The wise nematode hibernates

    Messages:
    2,677
    Likes:
    21,545
    Germany
    No-brainer. Signed.
     
    barbc56, Mary, MeSci and 3 others like this.
  5. Sasha

    Sasha Fine, thank you

    Messages:
    12,796
    Likes:
    34,258
    UK
    Bump!
     
    barbc56 and AndyPR like this.
  6. slysaint

    slysaint Senior Member

    Messages:
    2,124
    Likes:
    11,469
    here we go again:)
    557 votes so far
     
    barbc56, AndyPR, Mary and 1 other person like this.
  7. Mary

    Mary Senior Member

    Messages:
    2,894
    Likes:
    6,551
    Southern California
    Done!
     
    barbc56 and AndyPR like this.
  8. GlassHouse

    GlassHouse

    Messages:
    37
    Likes:
    103
    Signed!

    What drives me crazy is that doctors would face serious consequences for advising mitochondrial disease patients to undertake aerobic exercise as "therapy," but they are lauded for giving the same advice to CFS/ME patients who have an acquired mitochondrial dysfunction. Facepalm.
     
  9. alex3619

    alex3619 Senior Member

    Messages:
    12,591
    Likes:
    35,504
    Logan, Queensland, Australia
    My comment: Does GE help CF? Generally so. Not CFS however, the S is important, and definitely not ME. The latest evidence based update is that there is no substantive evidence that GET helps ME. We already knew that however. The PACE trial has affirmed the null hypothesis. Trials with substantive objective evidence have shown that either there is no benefit or patients get worse. There is no ethical, scientific or moral justification for this kind of study.
     
    Sean, Comet, barbc56 and 6 others like this.
  10. alex3619

    alex3619 Senior Member

    Messages:
    12,591
    Likes:
    35,504
    Logan, Queensland, Australia
    I think we are at the point where its abundantly clear that anyone who reads the supporting literature for GET in CFS, and has the training to understand scientific papers, must conclude that GET is not justifiable in CFS, and completely unjustifiable in ME. To ignore this leaves me with three options to conclude about the GET proponent, but more than one can be correct:

    1. They have biased allegiance to this therapy. This can be for many reasons.
    2. They did not perform due diligence and actually investigate the literature.
    3. They are not capable of even basic understanding of scientific papers. Some of the errors and faults, which invalidate the research supporting GET in ME and CFS, are very basic and obvious. Nobody who is not biased, and has the training, and reads the papers, can miss every one of the failures.
     
    Sean, ScottTriGuy, barbc56 and 5 others like this.
  11. Barry53

    Barry53 Senior Member

    Messages:
    2,277
    Likes:
    13,708
    UK
    Which leads one to conclude the perpetrators are unethical, unscientific and immoral in trying to justify it.
     
  12. barbc56

    barbc56 Senior Member

    Messages:
    3,652
    Likes:
    5,009
    Can those of us in the states sign?

    Thanks!
     
  13. alex3619

    alex3619 Senior Member

    Messages:
    12,591
    Likes:
    35,504
    Logan, Queensland, Australia
    (my bolding)
     
    AndyPR likes this.
  14. barbc56

    barbc56 Senior Member

    Messages:
    3,652
    Likes:
    5,009
    alex3619 likes this.

See more popular forum discussions.

Share This Page