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Sign the petition and help Dutch patients: "ME is not MUPS"

Discussion in 'General ME/CFS News' started by Sasha, Apr 7, 2016.

  1. Sasha

    Sasha Fine, thank you

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    From #MEAction:

    Read the rest:

    http://www.meaction.net/2016/04/06/petition-me-is-not-mups-medically-unexplained-physical-symptoms/

    Over 1,000 signatures on the petition already (including moi).

    You will be need to give your email address and will be sent a validation link.
     
  2. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Toronto, Canada
    done.
     
    Jennifer J and Sasha like this.
  3. ballard

    ballard Senior Member

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    Signed
     
    Jennifer J and Sasha like this.
  4. Mary

    Mary Senior Member

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    Signed - thanks Sasha --
     
    Jennifer J and Sasha like this.
  5. sarah darwins

    sarah darwins I told you I was ill

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    Cornwall, UK
    Ondertekend.
     
    Joh, Jennifer J, Sasha and 2 others like this.
  6. Amaya2014

    Amaya2014 Senior Member

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    Signed
     
    Jennifer J and Sasha like this.
  7. *GG*

    *GG* Senior Member

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    Concord, NH
    Another email not sent to my inbox, thanks for this site to keep me informed!

    GG
     
    Jennifer J and Sasha like this.
  8. Sasha

    Sasha Fine, thank you

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    Impressive! :thumbsup:
     
    Effi and sarah darwins like this.
  9. sarah darwins

    sarah darwins I told you I was ill

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    Cornwall, UK
  10. Dolphin

    Dolphin Senior Member

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    I got sent this. I'm not sure how different it is from the text on #MEaction site but it is different.

    It involves some long paragraphs so if somebody wants to repost it later in the thread with more paragraph breaks, that could be useful.

     
    Last edited: Apr 21, 2016
    Valentijn likes this.
  11. MEisnotMUPS

    MEisnotMUPS

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  12. Jennifer J

    Jennifer J Senior Member

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    Signed.
     
    MEisnotMUPS likes this.
  13. justy

    justy Donate Advocate Demonstrate

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    Signed
     
    Jennifer J and MEisnotMUPS like this.
  14. MEisnotMUPS

    MEisnotMUPS

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  15. NL93

    NL93 Senior Member

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    Signed it:thumbsup:. And made friends and family members sign it too:angel:
     
    Jennifer J and MEisnotMUPS like this.
  16. MEisnotMUPS

    MEisnotMUPS

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    Thank you NL93!!!
     
    NL93 likes this.
  17. *GG*

    *GG* Senior Member

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    Cool, how do you do that? I send much along, never hear anything back. So what should I take away from that non-interaction? I do sometimes ask people to respond if read. No response, life is grand!

    People are busy, have families, living life. How do they think this makes me feel?!

    GG
     
    Jennifer J likes this.
  18. NL93

    NL93 Senior Member

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    @ggingues i understand. I once send a groupemail for another ME petition and i think only 5% actually signed it.
    For this i just asked people i normally chat with personally. It takes a bit longer, but works like a charm. :D
     
    mango, MEisnotMUPS and Jennifer J like this.
  19. MEisnotMUPS

    MEisnotMUPS

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  20. Solstice

    Solstice Senior Member

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    My mom handles stuff like that for me. She usually bullies people into submission after which they sign. Works like a charm. 100% succesrate.
     
    Joh, char47, Luther Blissett and 3 others like this.

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