1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
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Sign petition re. Today show attack on invisible diseases

Discussion in 'Petitions' started by Nielk, Jun 18, 2013.

  1. Nielk

    Nielk

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    snowathlete and Valentijn like this.
  2. Nielk

    Nielk

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    I am one of those people who use wheelchairs at the airport, yet I am able to walk a very short distance. The statement by Hoda was so insensitive. Yes, I chose to be embarrassed and have others stare at me by using a wheelchair only
    because I want to board the plane first! I have dreamed about this since a child...if only I can board a plane before most others! Now, God answered my dreams and i am able to do this with the help of the freely available wheelchairs at the airports!

    I just sent in a comment to the Today Show directly at: comments:http://www.today.com/id/29041920/ns/today/t/email-today/#.UcDAv_lOP0c
    Tally, john66, Valentijn and 3 others like this.
  3. Ruthann

    Ruthann

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    Let's turn this unfortunate incident into something positive! Sign the petition, send an e-mail, try and think of other things to advocate for awareness about invisible illnesses.
    SpecialK82, Sasha and Nielk like this.
  4. Nielk

    Nielk

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    Someone on Facebook actually posted about the idea of somehow getting the Ryan prior with the Blue Ribbon documentary project to come on the Today Show to "educate" them about invisible illness and to give a plug for the documentary.
    SpecialK82, SOC and Valentijn like this.
  5. Hugocfs

    Hugocfs Senior Member

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    Who watches this crap anyway?
    SpecialK82, Valentijn and ggingues like this.
  6. Nielk

    Nielk

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    You would be surprised. They are actually pretty successful.
    Their Facebook page has 552,000 likes.
    vli likes this.
  7. WillowJ

    WillowJ Senior Member

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  8. Nielk

    Nielk

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    vli, WillowJ and alex3619 like this.
  9. Valentijn

    Valentijn Activity Level: 3

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    Sometimes I just really want to eat all of the foods I'm not "allergic" to, and go swell at these people.

    Yes, my intolerances make my entire frigging body swell up. It's painful and the swelling is easy to see.

    An IgE allergy isn't the only immune reaction in existence!
    Tally likes this.
  10. WillowJ

    WillowJ Senior Member

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    I think the allergy docs defined "immune reaction" as "stuff we can treat with allergy shots" :confused:
    Valentijn likes this.
  11. SOC

    SOC Moderator and Senior Member

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    :rofl: :rofl: I can't even remember how many times I've thought something similar!

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