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Sign Jen Brea's #MEAction international petition to Congress for $250m research equality for ME/CFS

Discussion in 'Action Alerts and Advocacy' started by Sasha, May 13, 2015.

  1. Sasha

    Sasha Fine, thank you

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    Yesterday Jen launched her exciting new mass-advocacy platform, #MEAction, and among its first actions is a mass petition to US Congress for equality for ME/CFS research funding - $250m a year.

    Jen's prominence in the community gives this the potential to be hugely successful so let's get behind it!

    It's automated and easy to do. I've already done it and sent a link to all my friends and family.

    Here's the page for US people:

    http://my.meaction.net/efforts/tell-congress-to-support-funding-equality-for-me-cfs/near/new

    and here's the page for non-US people:

    http://my.meaction.net/petitions/us...-around-the-world-care-about-funding-equality

    Go, go, go! :rocket::rocket::rocket:
     
  2. Scarecrow

    Scarecrow Revolting Peasant

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    Great idea to have a petition for non USers to sign!
     
    beaker, mango, Sean and 3 others like this.
  3. aimossy

    aimossy Senior Member

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    I think this is excellent. I'm having a serious joy moment! :)
    SIGNED!
     
    Last edited: May 13, 2015
    ahmo, Sean, Scarecrow and 2 others like this.
  4. Sasha

    Sasha Fine, thank you

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    It is, and the whole thing is extremely well-organised. I think this is going to go great guns.

    I think we should have a race and get those numbers up before America wakes up today! :)

    Everyone on this forum should be signing this, wherever they live in the world. A bigger US research budget will benefit all of us - the US has research teams ready to go right now if they get the funding, and the US operates on a scale that other countries can't or don't, in terms of targeted funding and infrastructure.

    We should all be getting involved in this - and it takes just seconds to do.
     
    snowathlete, beaker, mango and 3 others like this.
  5. John Mac

    John Mac Senior Member

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    Done.
     
    Sasha likes this.
  6. Cheshire

    Cheshire Senior Member

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    Done
     
    Sasha likes this.
  7. Gemini

    Gemini Senior Member

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    Sasha likes this.
  8. Sasha

    Sasha Fine, thank you

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    Yes, you just put your state in and it sorts out for you who to send it to. Very, very easy and well thought out.
     
  9. Sasha

    Sasha Fine, thank you

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    US folks - a question!

    In the UK, we have a national organisation called '38 Degrees' (the angle that a slope needs to be before a pebble will start a landslide) that emails its huge list of supporters and invites them to do 1-click petitions. Today, for example, I got an email from them asking me to sign a petition to object to our new government's plan to ditch the Human Rights Act (which protects disabled people, among others). They've already got 100,000 signatures and it's only 1pm. :jaw-drop::jaw-drop::jaw-drop:

    Do you have such a national organisation in the US?
     
  10. SOC

    SOC Senior Member

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    Great work by Jen! Let's get all the signatures we need, and more. :D

    Now, where's the equivalent petition to other countries' government agencies asking them to spend more of their country's budget on ME/CFS? I want to sign those, too. It's not all up to the US. We need funding from every major nation to make the kind of progress we need.
     
    Last edited: May 13, 2015
    mango, rosie26, halcyon and 3 others like this.
  11. waiting

    waiting Senior Member

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    Sasha likes this.
  12. Soundthealarm21

    Soundthealarm21 Senior Member

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    Signed! I shared it over on Reddit too!
     
    aimossy, snowathlete and Sasha like this.
  13. Sasha

    Sasha Fine, thank you

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    Great stuff - you are of course Reddit Man!
     
  14. SDSue

    SDSue Southeast

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    Done and shared.
     
    Sasha likes this.
  15. beaker

    beaker ME/cfs 1986

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    Done and shared via twitter
     
    Sasha likes this.
  16. ahmo

    ahmo Senior Member

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    Done and shared. Thank you Sasha.:)
     
    beaker and Sasha like this.
  17. Sasha

    Sasha Fine, thank you

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    300 signatures so far. :)
     
    beaker likes this.
  18. acer2000

    acer2000 Senior Member

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    Done. Also, I'm impressed with the MEAction site.
     
    aimossy, beaker and Sasha like this.
  19. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    That was easy!
     
    Sasha and Kati like this.
  20. Sasha

    Sasha Fine, thank you

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    It really is, isn't it? I'm hugely impressed with that platform!

    450 signatures now... it needs a lot more US people for balance, though! :cool:
     

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