Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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SIBO / Dysbiosis herbal treatment

Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by Aubry, Sep 1, 2017.

  1. Banana94

    Banana94 Senior Member

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    Otherwise I also think KDM wouldn't treat dysbiosis with ABX if he wouldn't have success in some cases..
     
  2. unicorn7

    unicorn7 Senior Member

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    I am very curious what the plan is, hope you are going to be ok:)
    Did you have the microbiome testing in between all the treatment? Do you know which treatment made it go off?
    Are all the other markers (inlammation, prostaglandines, cd14, zonuline) worse as well?
     
    Learner1 likes this.
  3. Banana94

    Banana94 Senior Member

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    My markers are sometimes up and sometimes down, there is no marker which is always high. Only bacteroidetes stay high..
    Zonulin is and was always normal...
    In conclusion I dont know how much I can trust them
     
    ljimbo423 likes this.
  4. unicorn7

    unicorn7 Senior Member

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    My markers have been pretty consistent up until now:) lower when I feel better, higher when I got worse again.
     
    jpcv likes this.
  5. Banana94

    Banana94 Senior Member

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    Are you KDMs patient?
     
  6. unicorn7

    unicorn7 Senior Member

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  7. pibee

    pibee Senior Member

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    I am very concerned for patients when I hear about KDM treatments, he continues to piss me off ... even as layperson It always sounded off to me, intuitively. And more I know, more off it sounds.

    Everything in the field of ME treatment is so far experimenting but again there are some treatments based on at least weak evidence, and others too far from it..only based on hypotheses. like KDM's.

    Also 'first, do no harm' part is missing
     
    Aubry likes this.
  8. Banana94

    Banana94 Senior Member

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    If you want "proven" treatment in Switzerland than you go to the psychiatrist who prescribes you some Antidepressants or sends you to a psychosomatic clinics. Doctors here are totally overwhelmed. We are all guinea pigs, nobody is forced to visit KDM. But I also understand that you are skeptical to his treatments, which are experimental.
     
  9. JES

    JES Senior Member

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    It seems weird to me that a CFS/ME doctor who actually attempts to treat his patients and has 20+ years of experience doing it pisses you off. Actually if we consider CFS/ME strictly as its own disease, then no, there are currently NO treatments that have any evidence unless you count CBT/GET. But there are things within CFS/ME that you can treat, such as bacterial infection, gut dysbiosis, etc. When I check high for Mycoplasma antibodies I will get almost any doctor in my country to prescribe antibiotics and the way KDM operates isn't much different from this IMO. During my lifetime I have been prescribed countless different antibiotics for infections and I actually think they did me more harm than KDM ever could.
     
  10. Aubry

    Aubry Senior Member

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    Only time I got throughout labs and testings was in the very beginning. The last two years nothing special except every time that ridiculous expensive MSA gut test (every 3-6 months) and every time it got more bad so this approach defiantly doesn't work for me personal. I was stupid to believe it would work and stupid to think KDM would adjust my treatment. Now he said he is going to look at my "whole file" again... But I am sure if I receive my treatment plan nothing new will be on it. I am very disappointed and feel like I was just a stupid number. Last consult when I had some questions he didnt even wanted to answer and I had to show my MSA results on my smartphone cause he didnt receive them from his administration... It is 10 past 12 for me and it looked like he didn't care at all ... 6 months of SIBO herbals did many people very bad I heard from others BTW. So it was again an incalculated risk for many patients. And if I didn't do an extra MSA test myself 7 weeks ago I would prob get another 3 months of SIBO herbals which would further destroy my tiny good gut flora.
     
    Thinktank and pibee like this.
  11. Vassie

    Vassie

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    I’m sorry this happened to you Aubry. That’s very sad. Many people have the same experience.
     
    Last edited: Dec 17, 2017
  12. Diwi9

    Diwi9 Senior Member

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    The greatest improvement I've had with any single treatment for ME, was Rifaximin (although I had improvement with LDN and Equilibrant for some months prior). On Day 10 of my first course of Rifaximin, I felt unchained by this disease. It didn't mean I had energy to do crazy aerobic activity, but I could do light activity without feeling horrible and a significant reduction in brain fog.

    I then did an 8 wk course of herbal treatment (Candibactin AR/BR) and was miserable...definitely slid back with energy, time in bed, and increased brain fog.

    I recently started on a course of Flagyl and Rifaximin. I had to drop the Flagyl after one week because side effects were intolerable (nausea, no appetite, flu-like, hypersominia, brain fog, metallic taste in mouth, and vomiting). I felt better calming in my GI after 24 hours of starting treatment. At this time, I'm still on the Rifaximin and feeling an upward trend in my health again.

    I've also commenced on a ketogenic diet. So far it's good with my gut and some bonus weight loss (I need to lose about 20 lbs. that came on quickly during my relapse).
     
    Sushi, Aubry, jpcv and 2 others like this.
  13. leocolo25

    leocolo25

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    Hi, I would like to understand if there are valid alternatives to the product ATRANTIL. It' s very expensive...it's sold to be used in particular in Sibo-C, because of it's suppression effect on Hydrogen and Methane production by some bacteria. With are the Antimicrobials to use in this case, to have the same effect of Atrantil.....to stop Hydrogen and Methane production? to overcame SIBO-C ?

    And another type of bacteria that affects me, causing me incredibly sulfur sensivity, are probably Sulfate /Sulfur Reducting Bacteria....for this type, wich are the best antimicrobials?

    Last.....Probiotics...I would like to try them but I'm quite scared about previous reactions that I had, and because I've read probiotics can also feed some Parasites.....

    Thank you very much in advice, I hope you can help me....
     
  14. Banana94

    Banana94 Senior Member

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    D
    Did he prescribed it to you?
     
  15. Aubry

    Aubry Senior Member

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    Yes, 3 months, pulsing 15days/month
     
  16. Thinktank

    Thinktank Senior Member

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    I don't understand where he gets those numbers from. 50% is almost the participants average on Ubiome.org

    Enteric clindamycin caused acute colitis within 3 days for me.
     
    pibee likes this.
  17. Aubry

    Aubry Senior Member

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    Hmm I highly doubt... Maybe some other testing method? I guess Redlabs used healthy controls to compare with etc :/
     
  18. Thinktank

    Thinktank Senior Member

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    There is NO data that proofs that bacteroides must be below 10% but i too think 50% is a bit high. The gut biome differs hugely between even healthy persons, and diet can completely change the composition of it within days.
    The perfect ratio is a myth. The american gut project has tried to find the perfect composition and failed, there is none.
     
    pibee and ljimbo423 like this.
  19. Aubry

    Aubry Senior Member

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  20. Thinktank

    Thinktank Senior Member

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    I will go through that study. but skimming through it i only see a very small control group, not really representative of anything.
     

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