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Should I start a ME/CFS clinic?

Discussion in 'ME/CFS Doctors' started by jpcv, Feb 22, 2018.

  1. Countrygirl

    Countrygirl Senior Member

    I think it is a terrific idea, if you can find some colleagues to help shaare the burden. There is a huge need for clinics run by doctors who understand the severity and nature of the illness. I wish you the very best and hope you can achieve this.

    Let us know when you are in the position to start a chain of clinics with some outposts in the UK. You would be welcomed with open arms. :)
    ScottTriGuy and Hip like this.
  2. Jesse2233

    Jesse2233 Senior Member

    Southern California
    Health permitting I think you definitely should

    You could use it as an opportunity to replicate research findings in clinical practice and help a lot of people with treatments most doctors don’t use like IVIG, regular saline, and apheresis

    Simultaneously treating POTS, MCAS, infections, and autoimmunity would likely have the biggest positive impact on outcomes
    Learner1, ScottTriGuy and Countrygirl like this.
  3. jpcv

    jpcv Senior Member

    SE coast, Brazil
    Thank you all , the positive feelings I got from your response, as well as the advices regarding balancing work with my health condition wee great!
    I can´t answer to everyone now, but some general observations

    -IVIG is very expensive, covered only by health insurance in very selected cases, not ME.
    -The ampligen thing : I would like to hear some experience from Argentina. We can´t get it here-
    -ME is not recognized as a disabling disease as far as I know here, I think fibromyalgia is not recognized either, there was a discussion on Facebook recently, I´ll have to check it out.
  4. jpcv

    jpcv Senior Member

    SE coast, Brazil
    I´ll keep elaborating this idea, this is not something for now but maybe for the near future.
    I have this weird idea of traveling to some places in the country to meet some patients that I know from social media/youtube channel, I´ve talked briefly to some of them and they were supportive.
    If this interaction with patients work, then I can take another step and activate the plans for the clinic.
    Diwi9 likes this.
  5. Sushi

    Sushi Moderation Resource Albuquerque

    I was a patient of a dysautonomia specialist who himself had dysautonomia and POTS. He had had to retire from his practice as an Internist because of his illness and was on disability. He did go back to medical school to study the autonomic nervous system under the guidance of another dysautonomia specialist.

    He was extremely helpful to me and his other patients, but his life was extremely difficult as he usually overextended himself in order to try to help his patients and his own health suffered. He also had to cancel a lot of appointments due to his own illness. So it would be walking the razor's edge: you would be in a position to fully understand and validate your patients, but you would have to be cautious to guard your own health. Best wishes in whatever you decide.

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