1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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Should Chronic Fatigue Syndrome be expanded to include other fatigue related..?

Discussion in 'Action Alerts and Advocacy' started by Snow Leopard, Jan 3, 2012.

  1. Ember

    Ember Senior Member

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    I agree, Alex. But an interim step here might be to affirm the changes that have already been made elsewhere. The descriptors on PR, ME/CFS (Chronic fatigue syndrome) and Chronic Fatigue Syndrome (ME/CFS) are incomplete. Why not include myalgic encephalomyelitis? It too should be a searchable term, so that people can find this site.

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