Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Short video on Wheldon protocol for Chlamydia Pneumonaie in MS

Discussion in 'Multiple Sclerosis' started by justy, Jan 27, 2015.

  1. justy

    justy Donate Advocate Demonstrate

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    Hi, this is a great video about the theory of CPN bacterial infection as a cause of MS - but very interesting for anoyne with Cpn diagnosis.

    I have been diagnosed with Chlamydia Pneumoniae infection and have many MS symptoms, although I have never seen a neuro despite many neurological issues. Instead I have the catch all diagnosis of M.E.

    The video swerves off to discuss H Pylori briefly in the middle, but comes back to Cpn again after that. It has a transcript below the video for anyone who prefers that method.

    http://www.abc.net.au/catalyst/stories/3572695.htm
     
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  2. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    wow very interesting, again its evidence based medicine, profits of big pharma and old school thoughts that are hard to crack.

    thanks for sharing.
     
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  3. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Theres treatments i have seen of late for MS with chemotherapy and stem cell transplants. I wonder if this sort of treatment it treating CPN and the blood vessels??
     
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  4. Abha

    Abha Abha

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    Thanks for the post Justy.Like you I have Cpn infection too.The IgG is positive(past exposure----no serological evidence of a recent exposure).Dr Jadin(Jo'burg) marked "in the tissues"(mine) beside the positive part of the result.I too have many symptoms similar to MS.It would be interesting to know if anybody on this site has followed Dr Wheldon's Protocol and how they have fared.In the past I followed two years of various antibiotics(plus other drugs?)as advised by Dr Jadin(mainly for Rickettsia treatment/and my condition).I am considering trying this type of treatment again for a longer period.Dr Wheldon also mentions Lyme/Rickettsia on one of his pages.The video was interesting too.I wonder how Dr Wheldon's wife is faring today.
     
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  5. minkeygirl

    minkeygirl But I Look So Good.

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    @justy I've tested positive for CPN and M Pneumonia. I'm going to try Roxi and see if that helps any. I didn't have much luck with Bactrim and I felt pretty unwell from doxycycline which maybe was die off? I have crap load of neuro problems.
     
  6. justy

    justy Donate Advocate Demonstrate

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    Have you read up on the protocol at cpnhelp.org? I believe it requires a number of antibiotics at once. Not sure which abx roxi is? good luck anyway, and yes Doxy is well known to cause herx, especially if you have Lyme as well I think.
     
  7. minkeygirl

    minkeygirl But I Look So Good.

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    I've seen the protocol there but there is a thread here about using Roxi and bactrim for 5 weeks to treat Lyme's. I don't know if I have Lymes but I thought I'd give the Roxithromycin (sp?) with bactrim to see if I kill anything. I could never tolerate all those Abx at once on multiple fronts.
     
  8. justy

    justy Donate Advocate Demonstrate

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    I think the point of the multiple drug combo is to target all the different forms that cpn can take. Not taking the correct drugs targeted for that illness will not work. Have you a doctor you can work with, treating these infections can be hard.
     
  9. minkeygirl

    minkeygirl But I Look So Good.

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    I understand why so many, I just don't think I can handle it. And I have multiple things
    Going on that could benefit from ABX

    I have a doc. She supports what I do.
     
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  10. helen1

    helen1 Senior Member

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    I've just started Buhner's herbal protocol for c.pneu following sphinx's success on the cpn forum. I've added die-off countering supplements from Weldon and Buhner as well as increasing my coffee enemas.

    I'm on day 5 and so far I'm doing surprisingly okay. I thought I'd get hit by die-off but I guess I started low enough and with enough die-off supports. I'm using these for die-off:

    Ginger tea - one thumb-sized piece of ginger daily grated & steeped in boiling water 2-3 hrs
    Isatis - 20 drops x3
    Quercetin - 500 mg (is an efflux pump inhibitor and counters the proinflammatory cytokines in macrophages)
    Vitamin C - 2 g x2
    GLA from evening primrose oil (may defend against endotoxin damage, especially peripheral neuropathy; only in cell and animal studies though).
    NAC (the usually limiting factor in glutathione synthesis)

    I realize sphinx did use abx for quite a while before doing the herbal protocol. But he does say he thinks the herbal one got him fully recovered. If anyone's interested I can post his protocol. My apologies for somewhat detracting from the thread topic.

    Does anyone know of any other good die-off supports?
     
    Last edited: Feb 2, 2015
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  11. minkeygirl

    minkeygirl But I Look So Good.

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    @helen1 Why not post the protocol in it's own thread? I'd be interested in seeing it and I'm sure lots of people would be interested in things that can help with die off.
     
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  12. helen1

    helen1 Senior Member

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    Ok. I posted it in the Antivirals, Antibiotics and Immune Modulators section. Hope it's helpful for someone and would be great to get some feedback!
     
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  13. Hanna

    Hanna Senior Member

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  14. sarah darwins

    sarah darwins I told you I was ill

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    By chance I happened upon this letter to the BMJ in 2007 from a retired consultant pathologist, John E Tovey, which posits Chlamydia pneumoniae as a potantial cause in some cases of ME and also questions the NICE guidelines for discouraging doctors from looking for infectious agents in ME cases.

    full letter here: http://www.bmj.com/rapid-response/2...tion-treatable-cause-chronic-fatigue-syndrome

     
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