Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Sep 6, 2013.
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Nice going 'partner'. Methinks a certain physio could be 'running for them ther' hills'
Great article - it's unreal what some of these ''experts'' come up with...
I think credit has to go to Dr. Charles Shepherd for his extensive and sheer number of answers in this clinic.
Hopefully the sheer volume of questions here will be taken note of with regards to the way ME seems to get shunned.
I was also very impressed with Dr Shepherd and most of the other experts. They put in an amazing amount of time and effort, and really helped a lot of people.
Thank you for this article Valentijn .
Thanks for highlighting the motely collection of predjudice, half-truths and down-right lies peddled by this crew of 'experts' (Dr S a notable exception).
Management/denial/deprivation seem to define our teatment as PWME and the locking down of toublesome comment on the site is perhaps the most telling event exposing the sham nature of the exercise.
I feel like a canary in the medical mine flagging up grave deficiencies in the medical model. Miners didn't try to persuade the little birds they were depressed( though who would blame them) they saw what was happening and ran.
Not that it helped them in the long run, because the people with the power are not those at the coal face.
Re: TYMES and NICE
Several Charities (including TYMES and the ME Association) came out against the NICE guideline. There was a large groundswell against NICE by patients and a challenge in court.
<snip from submission to NICE from TYMES>
OVERALL VIEW OF THE NICE GUIDELINE
The Trust believes that the present draft of the NICE guideline on CFS/ME is unacceptable, and not fit for purpose for patients suffering from ME.
From memory the ME Association also condemned the NICE guideline as "not fit for purpose".
Thanks, Valentijn - and for your efforts during the clinic to get some straight answers to questions about some of the 'experts' blithely recommending GET. It's very important to challenge these claims with the existing research findings to the contrary when they arise.
A superb article. Dr Charles Shepherd has a card in his hand [I won't refer to it as an 'advantage'] that very few of the propounders of a psychosomatic cause for ME/CFS have; he has had to cope with this debilitating ilness himself for decades. A few short days of experiencing the symptoms themselves and the psychobabblers would rapidly change their opinions.
Valentijn - you are a star - thanks so much for your efforts - super article.
Good article Valentijn.
Thank goodness Dr Shepherd was there!
My observation of too many "experts" is that they don't know how to think or reason things through. They seem to have been told what to think and that's that. And like people who are told what to think they can't face being contradicted. It must be true because they have been told it's true so it must be true -- even when the evidence screams a complete contradiction at them.
Valentijn I popped your article link onto ME Association Facebook. Dr Shepherd replied:
Yes, some of the experts seemed to understand that ME is very much a physiological disease, and that symptoms most certainly should be treated - but would then also show complete and unquestioning deference to NICE and other sources of authority.
Because they seem to be very intelligent people, my impression is that some of the experts are more or less incapable of (or unwilling to be) disagreeing with authority, even when the reasoning used by that authority to create their recommendations is clearly contradictory to their own observations.
Thus we get health care professionals who acknowledge that we have a physiological disease with serious and disabling symptoms which should be treated, and cannot be cured by changing our beliefs and behaviors. Yet at the same time they also advocate treatments based on a purely psychosomatic hypothesis which emphasizes minimizing investigations and physiological treatments.
When I saw the name of the author I knew I was in for a good read
nice job Val!!
Well done and thanks.
Thank you Valentijn. I did not follow the clinic while it was up but you gave an excellent overview. I really liked your style of 10 myths. It was very clear and informative.
Bizarre and very troubling stuff, isn't it.
Ah yes, the question of authority.
It seems that in not being taught how to think, the "intelligent ones" have lost sight of what the true meaning of authority is. To be in a position of authority is to be in position of service. They are supposed to serve others, not force power over them.
Of course the problem with thinking what you've been told to think, even in the face of all the evidence against it, requires an armour of arrogance. And then we are the ones of the receiving end.
When it comes to psychological problems (although maybe this is deeper even than that) THEY are the ones that need some serious CBT.
Hi everybody, I've just checked out the NHS site - what a piece of blatant propagandising.
Did anyone ask if it was possible to sue a doctor for medical damages following a relapse provoked by exercise programmes such as those promoted by this site?
I'd love to see the "expert's" reaction online.
You can also try a Google Site Search
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