Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Shingles vaccine. Yes or no?

Discussion in 'Addressing Biotoxin, Chemical & Food Sensitivities' started by BEG, Aug 20, 2011.

  1. SOC

    SOC

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    I think this is the difficulty for PWME working with uninformed GPs. In my daughter's case, my husband specifically asked the doctor if the chicken pox vaccine would be okay given our daughter's ME/CFS and was told that there are no problems with that vaccine, it's been given for years, yadda, yadda, yadda. They just don't get that what's good for everybody else is not necessarily good for us. :rolleyes:

    I wonder if Dr Vernon was speaking more specifically about flu vaccines, which are usually killed virus vaccines. I have a hard time imagining anyone who knows anything about ME/CFS suggesting PWME should intentionally be injected with a live (even attenuated) herpesvirus given how much trouble herpesviruses give us ordinarily.
     
  2. Ocean

    Ocean Senior Member

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    I've had bad vaccine reactions too and have made that same decision so far.
     
  3. slayadragon

    slayadragon Senior Member

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    twitpic.com/photos/SlayaDragon
    I've heard many, many stories of people whose CFS came on or greatly worsened shortly or soon after getting an adult vaccine. The stories that I've heard that vaccines can be problematic to us are convincing to me, while the arguments of "experts" are unconvincing to me. Personally, I would do everything in my power to avoid such vaccines.

    Best, Lisa
     
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  4. Shellbell

    Shellbell Senior Member

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    Just to give my two cents worth, my regular doc and practitioners all went over the side effects (more like possible adverse reactions) of vaccinations and both told me to avoid all of them because of my ME/CFS. They also went on to warn against my own children having any further vaccines because of the genetic link.
     
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  5. voner

    voner Senior Member

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    I was reading this thread and I want to clarify my comment about talk to Suzanne Vernon.

    I was at a meeting in Denver are your two ago and someone asked a question about getting the flu vaccine. Dr. Vernon said that all the experts that she has asked have said to get a vaccine.

    I think it's important to keep in mind ME/cfs people are very heterogeneous group.

    You might consider asking the question to Dr. Vincent Racaniello, on his virology blog. I'm curious what his answer would be.

    BEG: Personally, I stay away from the flu vaccine, but I did get a shingles vaccine. I know this make no sense to many people, but it's a personal decision and humans are not totally logical people.
     
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  6. BEG

    BEG Senior Member

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    voner, thanks for the additional information. If you don't mind, could you tell us how you tolerated the shingles vaccine?
     
  7. fibrodude84

    fibrodude84 Senior Member

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    I have had shingles, maybe it kicked in my CFS. I'd consider the shingles vaccine if it helped CFS but I can't take live vaccines since I'm immunocompromised.
     

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