Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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sheknows article: Chronic fatigue syndrome is so much more than exhaustion

Discussion in 'General ME/CFS News' started by AndyPR, May 13, 2016.

  1. AndyPR

    AndyPR Senior Member

    Stephanie Land spreading the word again - rest of the article at http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome
     
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  2. barbc56

    barbc56 Senior Member

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    Very insightful writing. Thanks. I wasn't aware of this blog.
     
  3. Roy S

    Roy S former DC ME/CFS lobbyist

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    Stephanie Land is impressive.
     
    "it often lasts a lifetime"
     
    That is excellent. It is the first time I've seen that stated in any article. In my opinion that is one of the single most important things that needs to be widely known. Most statements are words to the effect that it may last for years; as if that's only in rare cases.
     
     
    "A brilliant physician I knew was one of the top public health officials on the AIDS crisis at its height," says Justin Reilly, who has both Lyme disease and ME. "He said to me: ‘The CDC did the same thing to the AIDS patients as they are doing to you: They put their absolute worst people on it and ignored it as long as possible. But then people started dying grisly deaths in big numbers, and it wasn't feasible to ignore it anymore. Unfortunately for you, your death will not be as grisly or swift.’"

    Nice quote, Justin @justinreilly

    That's another thing I haven't ever seen before about putting their worst people on it. For over 25 years I've just been saying that they're... not putting their best people on it. I hope that's starting to change now.
     
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  4. Roy S

    Roy S former DC ME/CFS lobbyist

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  5. Roy S

    Roy S former DC ME/CFS lobbyist

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    Comet and Jennifer J like this.

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