Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

Share your story! Dr. Oz seeking health stories of 25-35 y.o.'s

Discussion in 'Action Alerts and Advocacy' started by anncavan, Mar 23, 2011.

  1. anncavan

    anncavan Senior Member

    Messages:
    100
    Likes:
    5
    San Francisco, CA
    I just saw this on Twitter today. He's asking for our stories! Let's flood him with ME/CFS, Lyme, Neuroimmune, XMRV stories. This is such a huge opportunity as he's actually seeking our information. Please take a minute to fill out the form found at the link provided: bit.ly/eMMcvb

    Dr. Mehmet Oz (@DrOz)
    3/23/11 12:11 PM
    If you're between the ages of 25 and 35, what are your major health concerns? Get in touch and let us know. bit.ly/eMMcvb

    Thanks!!!
    Lannie
     
  2. WillowJ

    WillowJ คภภเє ɠรค๓թєl

    Messages:
    3,763
    Likes:
    4,839
    WA, USA
    great info, Lannie, thanks!

    I know Dr. Oz is interested in ME/CFS and believes it is real, but has some misperceptions (I think he advocates graded exercise, for instance)... but I love his statement that the name of CFS makes as much sense as if we were to call Parkinson's "chronic shaking disease" (or something to that effect).
     
  3. anncavan

    anncavan Senior Member

    Messages:
    100
    Likes:
    5
    San Francisco, CA
  4. Dreambirdie

    Dreambirdie work in progress

    Messages:
    5,327
    Likes:
    4,016
    N. California
    I organized a Dr Oz letter writing campaign in 2009, to get him to do an XMRV segment--which he did with Donnica Moore.

    You might contact her, and see if she is up for that again. She has a kid sick with CFS.
     
  5. 5150

    5150 Senior Member

    Messages:
    313
    Likes:
    204
    hi Lannie,
    as a more senior- aged member of the forum, I'm curious as to why Dr.Oz wants only 25 - 35 year olds' info? I was about 34 when my nightmare began, and it has endured for 30 years. Each of those years has been a unique challenge during which another new symptom appeared and progressed to the life-threatening place of now. It is the long-term patients who are in most danger of not surviving unless cause(s) are confirmed and treatment brought to bear. We are generally the ones for whom cancers, heart disease, and digestive failure are things we already are now dealing with, and that patients who have suffered for less time are trying to avoid.

    Given the unique additional problems that come with being a long-term patient, the type of symptoms are only adding to seeing the full range that this disease can go as it wreaks havoc in our lives. I would think the good Dr. Oz would want to know the full story, not get only a partial glimpse.

    I encourage you "youngsters" to participate in this chance at exposure for the good of our cause. Thanks.
     

See more popular forum discussions.

Share This Page