The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Severe palpitations and tachycardia.

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by ivorin, Oct 27, 2017.

  1. Awags1986

    Awags1986

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    Whoops! Just realized this wasn't on one of my posts...my bad. Apparently the brain fog is strong in me today :/
     
  2. Learner1

    Learner1 Professional Patient

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    My doctor in California got the kit, drew the blood, and sent it to Germany. I had to pay for postage and then €450 for the test, which explained my POTS:

    http://www.celltrend.de/cfs-diagnostics.html
     
  3. Kathevans

    Kathevans Senior Member

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    In fact, I had a period with body jerks, or twitching all night (there were nights I could count a hundred of them, very disconcerting), and I later came to view them as a symptom of a severe B12 deficiency. I had all sorts of heart issues, as above--for the B1 deficiency, but prior to that, I had both a-fib and tachychardia relieved by the B-12 for a years or so. The whole thing has been a process of healing multiple deficiencies, new ones revealed after I'd quenched others.
     
    Athene*, Learner1 and Awags1986 like this.
  4. JaimeS

    JaimeS Senior Member

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    I take a B mix with benfotiamine and it's absolutely essential for me. :) @Kathevans what brand / dosage of B1 do you take?
     
  5. Kathevans

    Kathevans Senior Member

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    I ramped up Allithiamin for about 4 weeks to 200+mg/day before switching to the Benfotiamine by Doctor's Best at 150n mg/tablet. I played around with slightly higher doses of up to 275mg or so a day, then went back down to 200mg/day for a couple more weeks before lowering it to only about 50mg/day--actually 3x18mg which calls for a lot of splitting capsules!) So far this seems to be enough extra B1 for me to tolerate about 20mg/day of Folate and several sprays of the Adenosyl/MethylB12 Oils. However, I also get about 10 mg of Thiamine HCl in my daily 1/2 B-Complex, B-Minus by Seeking Health, which I take 1/2 of/day in two divided doses. So that's a total of a bit over 60mg/day of B1.

    I'm still fiddling around, looking for the balance right now that relieves chills (possibly the Methyl B-12 Oil alone once a day?) amounts of pain (Folate) and my endless sleep issues and IBS. I've only just begun working with L-Carnitine Fumarate. Each thing I take seems to alter the dose of whatever I've already been taking. It's such an individual mystery. Though I do find that Fred's symptoms list helps.

    I did have one episode of what I believe was a-fib from the feel of it and felt it was a folate deficiency symptom. This occurred about two weeks into experimentation on the LCarn when I'd been holding my folate to about 16mg/day. After raising my folate to about 18-20mg I haven't had a recurrence of any heart issues.

    Believe me, I can see that this is a sort of merry-go-round. I'm getting a little dizzy from it, but I'm trying to be patient.
     
    Last edited: Nov 24, 2017
  6. Athene*

    Athene* Senior Member

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    This happened to me for a couple of weeks just recently. I had a magnesium blood result returned on Friday and I'm not even in range. I know serum isn't fully accurate but to be completely out of the range must say something. I did notice that when I began transdermal magnesium a few weeks ago the twitches and full body jerks that I had begun having disappeared. I had begun supplementing vitamin D3 5K daily a few weeks previously so I ended up depleting my magnesium. My potassium need hugely increased too and we need magnesium to keep potassium in the cells. When the body twitches and jerks were happening I was also having (unusually for me) several phases of palpitations, especially at night. These have also disappeared since magnesium though I need more - still very edgy. Problem is my adrenals can't take too much magnesium...Ugh, I am so tired of all this.
     
    Kathevans likes this.

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