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Severe ME/CFS Homebound Study

Discussion in 'Active Clinical Studies' started by chickpea, May 18, 2017.

  1. Dr Klimas clinic is doing a study on those severely affected and are homebound. Must be able to travel to Florida for at least one visit.
    Precious G. Leaks-Gutierrez, MBA
    Clinical Research Project Coordinator
    Nova Southeastern University
    Institute for Neuro Immune Medicine
    8501 SW 124TH Ave, Suite 111
    Miami, FL 33183
    305-275-5450
     
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  2. veganmua

    veganmua Senior Member

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    Hmm... Can they not send out nurses for homebound patients?
     
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  3. IreneF

    IreneF Senior Member

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    I am not completely housebound but I certainly can't go to Florida. I can't go anywhere that's more than about an hour or two away by car. It doesn't seem reasonable to expect housebound people to travel.
     
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  4. trishrhymes

    trishrhymes trishrhymes.wordpress.com

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    Dorset
    I guess part of the study includes using some sort of hospital based equipment like scanners. Even then, theoretically this could be arranged at the patient's local hospital. But I guess that would be very costly.
     
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  5. AndyPR

    AndyPR I'm a DAD, I Donate, Advocate and Demonstrate

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    Hampshire, UK
    Is there a link to more details? I've tried Google but couldn't find anything.
     
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  6. Neunistiva

    Neunistiva Senior Member

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    @AndyPR I think I've found it:

    "Homebound Study:

    We are currently enrolling patients diagnosed with ME/CFS or Post-Infective Fatigue (PIF) that are unable to leave their homes for office visits without severe consequences. Eligible particpants must be between the ages of 18 and 70 years of aged and diagnosed with their illness prior to age 62.

    For more information, please contact Precious Leaks-Gutierrez at 305.275.5450 or email INIMresearch@nova.edu with the subject "Homebound Study"
    "

    http://www.nova.edu/nim/research/research-studies.html
     
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  7. Barry53

    Barry53 Senior Member

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    UK
    Maybe this would include paying for special transport if that helped?
     
  8. AndyPR

    AndyPR I'm a DAD, I Donate, Advocate and Demonstrate

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    Hampshire, UK
    Looks like it, good find. Doesn't make any mention of travelling to Florida though, which would seem to make more sense to me.
     
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  9. I had called them, as I live in MN. She had said, that we can do everything from home but that I would need to be seen for at least one visit. I'd call and ask.
     
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