I have both POTS and CFS. I recently began to get these severe episodes that are new to me. I got the first one last week. It starts slowly and I can feel my pulse begin to rise. Then my entire body goes freezing cold. I start shaking/shivering violently, my pulse usually hits 130-140bpm, my BP gets to around 160/90, terrible nausea, disoriented, can barely talk, my extremities become extremely cold and turn blue/purple, etc.... It's dreadful. Can this be POTS related? It's happened to me twice now and am terrified of when another one may strike. Was seriously considering going to the ER as it was occurring but was able to push through it at home. They usually last for around an hour or so and then I feel pretty bad afterwards as I wean out of it. I was reading of some similar experiences from people who have the hyperadergenic form of POTS so was wondering if this could be a possibility. Any advice/help you guys could offer me would be very much appreciated. Thanks for listening.