1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Senators Stand Up for ME/CFS - Support Push For FDA Stakeholder Meeting

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Jul 21, 2012.

  1. Phoenix Rising Team

    Phoenix Rising Team

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    View the Post on the Blog
    Xandoff, taniaaust1, SaraM and 3 others like this.
  2. Rrrr

    Rrrr Senior Member

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    this is great news!
  3. frenchtulip

    frenchtulip Senior Member

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    Yes, great news! I guess it might be good to send the senators a thank you. I will try to do that tonight.
  4. Fred1234567

    Fred1234567

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    A great start but I am getting considerable relief from IV saline and oxygen. From a living death unable to talk/move/severe hypersensitivity to light and noise with spinal shocks/tingles to bed-ridden but able to move around in the bed, less sensitive and able to hold short conversations....

    Hence I was very surprised that the Primer was silent on these aspects of treatment- the USA is currently leading the world in having a published and actually patient centred and useful treatment guide please add these treatments into the next reprint of the Primer.

    Well done USA!!!!!!!!!!!!!!
    Xandoff likes this.
  5. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    I agree - hadn't thought of saline - but what a big help for so many....let's put it on the list of things to add. You might put your comments on our saline page http://phoenixrising.me/treating-cfs-chronic-fatigue-syndrome-me/problems-standing/the-perils-of-standing-ii-drugs-for-chronic-fatigue-syndrome-mecfs-patients-with-orthostatic-intolerance/saline-solution-low-blood-volume-chronic-fatigue-syndrome-me-cf - so that others can get how effective it is..
    Xandoff likes this.
  6. Xandoff

    Xandoff Michael

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    Northern Vermont
    thinkerLarge.jpg Senators Stand Up for ME/CFS.........I never thought I see the day. Go USA!

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