Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
http://phoenixrising.me/research-2/the-brain-in-chronic-fatigue-syndrome-mecfs/choline-on-the-brain-a-guide-to-choline-in-chronic-fatigue-syndrome-by-cort-johnson-aug-2005
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Seeing new doctor in Thousand Oaks (So Cal)

Discussion in 'ME/CFS Doctors' started by Mary, Jul 19, 2016.

  1. Mary

    Mary Senior Member

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    My long-time nutritional doctor, Phillip Taylor (also in Thousand Oaks) died about 2 months ago. He was 84 (I thought he was late 70's), so I was fortunate he practiced as long as he did. I saw him for about 18 years. He couldn't help with the nuts and bolts of ME/CFS - PEM, low NK cell count and so on, but he was extremely knowledgable about nutrition and kept up on new things and was willing to let me try just about whatever I wanted. So I miss him and also have felt a little hopeless about replacing him.

    And then I found Steven Tenenbaum MD, also in Thousand Oaks and he gets great reviews on-line. I was given his name by Women's International Pharmacy, a compounding pharmacy where I get progesterone cream, and his office uses that pharmacy. And he wrote a book about treating the thyroid. He uses bio-identical hormones and Naturethroid. Here's the book he wrote (which I have not read): https://www.amazon.com/Thyroid-Secrets-Youthful-Energy-Metabolism/dp/0974508713

    So after trying to get through to someone at his office for two days, I finally got a call back tonight and have an appointment with a nurse practitioner a week from this Friday. I'm happy to get that appointment. From what I read on-line, I don't think Dr. Tenenbaum himself is taking new patients.

    And, he takes straight Medicare! woo hoo! (no HMOs) I was given two names of potential doctors by Dr. Taylor's office but they both seemed to be very pricey and didn't take Medicare. And I think this guy just may be better, but if his office can at least keep me going with what Dr. Taylor has me on, I'll be happy. It's about an hour and 15 minute drive for me, doable though I will crash the next day, but it's worth it.

    @Gingergrrl - I'm tagging you here because you were looking for a GP awhile ago, in case you're interested. I'll post how it goes with the NP --
     
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  2. Gingergrrl

    Gingergrrl Senior Member

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    @Mary Thanks for tagging me and I ended up finding a local PCP who was very nice but I doubt I will see very frequently. He is not directly involved in my care but if I should need referrals or home health or something that requires a PCP, now I have one. But my ME/CFS doc and MCAS docs are truly my main doctors who provide my care. Please keep me posted and I want to hear how it goes.

    Am so sorry to hear this and I know you were very connected with him from our prior conversations. Hoping your new doc is just as great.

    I can totally understand this and would be lost without the two docs I mentioned above.

    :thumbsup::thumbsup::thumbsup::thumbsup:
     
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