Hi, I am attempting to take antibiotics as prescribed by KDM for chronic bacterial infections. Unfortunately my treatment has stalled as I seem to react badly to every antibiotic tried so far, I also seem to have a low tolerance for most meds and reacted badly to prednisolone.
Someone on another forum suggested I see an allergist to have proper testing to definitively rule out allergic reaction as it is so hard to tell the difference between allergic reaction, side effect or herx.
Rifampicin - made me almost lose touch with reality also hot flushes and breathing weird.
Doxycycline - all over intense body itching a couple of hours after ingestion. Stopped and tried again 4 days later with exactly same response.
Clarithromycin - Good for the first day, then on day two and three in the night, racing pulse and fast heart beat that kept waking me out of sleep every hour or so - this can be a known reaction to C and is listed as a severe reaction on the warnings side effects list.
Doxy improves my breathing straight away (it is also an anti inflammatory, so who knows)... Clarithromycin also helped breathing and on day two my usual symptoms felt much worse so this seemed like a possible herx. However it is known for having side effects that affect the heart so have stopped for now.
I spoke with a toxicologist this morning in a city a couple of hours away who said he could see me and do a skin prick test. I will have to give him a list of drugs to test and he will take a detailed history, examine me etc.
I have now decided not to take any more drugs until I see KDM in two weeks time for IVIG and I will ask him his opinion then - he is also doing an echocardiogram which will be good to finally see if my heart is ok after horrible experiences with palps, near fainting fits etc.
This is going to be very expensive, and I could do it on the NHS, but will probab;ly take many months to get an appt... I will as k my GP anyway and see what the waiting times are like.
Someone on another forum suggested I see an allergist to have proper testing to definitively rule out allergic reaction as it is so hard to tell the difference between allergic reaction, side effect or herx.
Rifampicin - made me almost lose touch with reality also hot flushes and breathing weird.
Doxycycline - all over intense body itching a couple of hours after ingestion. Stopped and tried again 4 days later with exactly same response.
Clarithromycin - Good for the first day, then on day two and three in the night, racing pulse and fast heart beat that kept waking me out of sleep every hour or so - this can be a known reaction to C and is listed as a severe reaction on the warnings side effects list.
Doxy improves my breathing straight away (it is also an anti inflammatory, so who knows)... Clarithromycin also helped breathing and on day two my usual symptoms felt much worse so this seemed like a possible herx. However it is known for having side effects that affect the heart so have stopped for now.
I spoke with a toxicologist this morning in a city a couple of hours away who said he could see me and do a skin prick test. I will have to give him a list of drugs to test and he will take a detailed history, examine me etc.
I have now decided not to take any more drugs until I see KDM in two weeks time for IVIG and I will ask him his opinion then - he is also doing an echocardiogram which will be good to finally see if my heart is ok after horrible experiences with palps, near fainting fits etc.
This is going to be very expensive, and I could do it on the NHS, but will probab;ly take many months to get an appt... I will as k my GP anyway and see what the waiting times are like.