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See the Shocking Moment She Went From Crippled and Bed-Ridden to Dancing in Worship

Discussion in 'General ME/CFS News' started by Firestormm, May 27, 2014.

  1. manna

    manna Senior Member

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    regardless of cause and factors that contribute to the continuation of my illness, like stress, i can always improve using only physical based therapies. to me, diet and physical therapy will always work to imrove my actual health state so i need not concern myself with my neurosis...that will right itself as my gut does. trying to be calm and avoiding stress is helpfull but will never bring the results that diet and physical therapy do. i can improve regardless of external environment causing stress.

    thinking that folk are better after their initial stage, and hence easier to recover, is not to understand the disease process in me/cfs, imo. its less fight from the body. discomfort can actually indicate that some physical intelligence of the body still remains. when that goes healing is harder in my experience. fog and increased fatigue are good markers that im on the right track. better than this state of physical panic im in at the moment.
  2. Chickadee9

    Chickadee9

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    You are fortunate that you can improve regardless of stress caused by your environment. There are others with ME who feel that the mental and emotional state they are in as a result of the environment they have to contend with inhibits their ability to improve. We are all individual in our response to ME. Of course, it may well be that there are many variants of what we call ME and this explains the different experiences and outcomes.
  3. manna

    manna Senior Member

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    @Chickadee9 hi, i don't feel lucky heh. obviously i still feel alot of stress and thats never nice.. the reason i can improve is because i have found, very close to, what i need on physical level. if i hadn't then stress would make me worse of course. the device i use is very powerfull and will relax most stubborn cases. it induces the delta state which is similar to deep sleep, and thats where healing takes place--it can do that, for the most, even if i was in tears as i start using it. it could be said that i improve, even though im stressed, because I've fortunately applied myself in the right direction and understood, to a degree, my physical problems.

    stress has prevented recovery because when its get too much i comfort eat and that destroys my digestion. although ive done 4 years without a treat/snack and still do. i also get thin prior to recovery (common in digestive ailments) and thats difficult cos everyone treats me like a heroin addict, even said as much on numerous occasions, so i eat wrong to put on weight. if i had no stress at the crucial times i don't think id be here.

    stress itself is a problem but won't stop me improving. its what i chose to do when it occurs that holds me back.
    Last edited: Jun 5, 2014
  4. Chickadee9

    Chickadee9

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    If it works for you that's fine. You have obviously found a regime that works, even though it takes a lot of discipline. But not everyone can do this. I'm signing off this conversation now. I wish you well and sincerely hope you find a way to better health. ME is such a devastating illness. We need effective treatments---let's hope we get them soon!
    manna likes this.
  5. Wayne

    Wayne Senior Member

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    Ashland, Oregon
    Hi Manna, I'm curious what device you're referring to. Is it something you created for yourself, or something that has a name attached to it, such as meditation, EFT, etc. I'm always interested in these kinds of techniques, so would appreciate anything more you could offer. :)
  6. manna

    manna Senior Member

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    hi Wayne,
    i don't have any present financial interest in these but have loooked into, a little, and its not possible for now. One day hopefully. they're called "set of 3 blue, green & red angel "Pulsor" (TM) micro-crystals" made by george yao, interesting man, left china as a prince when the communists took over in tyhe 50's i think and moved to claifornia. had trained with various internal arts masters as a boy. in america he was a scientist at nasa, invented the miracle fibre in panty hose and worked on the heat shield tiles on the shuttle..to name a couple.

    the idea supposedly came to him in a meditation, he says. originally designed to combat high emf zones (i think), like operating sonar etc, he quickly realised how he could extend it to a whole healing art. tricky to explain how they work. they are composite of millions of microcrystals in a doughnut/torroid shape . the micro-crystals, i believe, are grown to match similar frequencies in the body. all 3, blue (mental, brow and neck), green (emotional circuit, solar plexus, heart) and red (physical, navel, perineum) covering all the human frequencies including crown i think.

    when ussed with the principles of polarity therapy, a la dr. randolph stone (v. intersting man, worth a read/look) by placing certain colours on certain places you can set up certain currents in the human energy that are organised by the microcrystals as they come into contact with it. for instance, to relax the mental circuit id place, whilst lying down flat (or probably inclined now), place blue under left shoulder, red pulsor under right and green on forehead for 15 minutes. at first you may feel slightly more tense and then that gives rise to relaxation, sometimes going very deeply. the affect is not slight but pronounced. sleeping with them on my lower gut, for me, is the difference that enabled me to repair my leaky gut a couple of times and nearly get remission. being passive (no energy introduced) they can be used constantly and they claimed to be monopole, so do not need cleaning like crystals do. the fact you have thousands of small crystal instead f one big one, is an amplifying afftec, sort of like using the power of colloids.

    by emphasizing the human wavelengths in a highly organised manor, they deflect, gyroscopically and energetically, that which is not the human wavelength, anything, mercury or whatever...this removal of the charge on these toxic materials enables the body the space to itself relax deeply and in relaxing you detox naturally. each little relaxation slightly increases your central nervous system voltage which can also be followed by herx...but the body does it so it can only do as much as it is strong, so its never too much. there is whole body balancing you do in the booklet "healing energy" by john davidson. do kidneys, liver, physical energy circuit. the weaker you are the less they work but still do something. but that means they're never too much. well i find mixing them with other therapies can be too much, like pulsors and flower essences at the same time. ramble over. i believe theirs a technical document online somewhere that is on pulsor theory. quite technical and much over my head but also some stuff i could grasp and enjoy reading. i have the original pulsor book, which is worth a fair bit, and has quarter circles instead of corners, cool book, feng shui book.
    Wayne likes this.
  7. Wayne

    Wayne Senior Member

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    Hi @manna,

    You're certainly talking my language. Unfortunately, my brain can only handle a brief browse for now, but I'll likely be getting back to you after I've had a chance to research some of this. --- Thanks for your efforts! :thumbsup:
  8. manna

    manna Senior Member

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    @Wayne i'll link a few things and if yourself or anyone else is interested::

    Pulsor theory by Tom Bearden:: http://www.pulsor.org/pdfs/WhitePaper.pdf (don't be put off from first glance, further on theres less science tech and more straight forward talk)

    http://www.pulsor.org/ cool website. generally only goes into the emf problem and how they help with that as thats where they've been "proven".

    i think the pamphlet "Healing Energy" by John Davidson is an excellent introduction into what they can do and how they work, pretty cheap too. i was gonna scan mine in. John Davidson is a wel known and respected author on subtle energies. George Yao, Randolph Stone and John Davidson are good company to be in. True pioneers.

    and of course google will have plenty of extra info worth checking. ive tried a couple of dozen natural therapies and various devices, this wipes the floor with all of them, ime. the only other device i would recommend (cured my retention toxicity) is the "healthpoint electro-acupuncture device"...another "wow" device in mine and other ppl's experience. Pulsor were the original subtle energy device, been around since the late 70's and "healthpoint" was the first electro-acupuncture device invented by julian jessel kenyon...who runs, or did.(..long time since i checked), "dove health", who treat me/cfs.
  9. N.A.Wright

    N.A.Wright Guest

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    I can't believe all that EMF stuff is still going - makes me think of flared jeans, tie dyed t shirts and joss sticks. Crystals were very saleable circa 1970 and fengui shui, lay lines and all the ecology catastrophe stuff made a pretty seductive soup of what was mostly nonsense. Anyway -I realise the bio of Yao is from various sources but - the miracle fiber was 'nylon' and successfully extruded into a silk analogue in 1940, 'nylons' were marketed under the 'miracle fiber' logo well into the 60s - http://news.google.com/newspapers?n...eJNAAAAIBAJ&sjid=QosDAAAAIBAJ&pg=5978,2394310 and certainly had nothing to do with Mr Yao. He couldn't have been a Prince in any meaningful sense since the Qing Dynasty pretty much ceased to exist in 1911 and as Yao grew up in Hong Kong he was protected from the effects of the 1949 revolution and reference to the communists sounds like hyerbole. Given all those dubious presentations of Yao's life I'd be as dubious about the claims around NASA and other scientific achievements. Of course maybe the hippies were right about EMF causing bad health but false histories about inventors usually points to their inventions not being what is claimed.
    barbc56 likes this.
  10. manna

    manna Senior Member

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    Hi there, of course you're free to disbelieve the possible emf issue and slate crystals. I would wonder, though, how can you accurately appraise any topic you derogate. micro-crystals are nothing like usual crystals too.

    yeah i agree, probably not a prince in any real meanigfull way. i never implied he wasn't protected from the revolution...but they were asked to leave i believe. that info came from a vid featuring dan mcbee, an old friend and colleague of mr. yao's.

    as for the devices, if you check the website, they were tested by an independant lab and their conclusions are there to read. i disagree with animal testing though. i believe theres some darkfield microscopy testing on there too. also they're generally sold with a 3 month money back guarantee. no joy, money back. D Mcbee claimed there has been less than 10 returns since he began selling them.

    I have asked them about the miracle fibre question and hopefully will clarify that. Pantyhose is also the fibres added to nylon. His bio has been upfront on the various sites, for many years, that sell pulsor around the world. i didn't conclude till id tried them though, regards
    Last edited: Jun 7, 2014
  11. anniekim

    anniekim Senior Member

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    U.K

    I would call that predominately bedbound. I am bedbound and cannot walk at all and have to use a bucket by my bed which I flop onto

    Wonderful healingtestimony, I believe God can heal but it's a mystery why so many are not
    Last edited: Jun 15, 2014
  12. Tired of being sick

    Tired of being sick Senior Member

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    Western PA USA
    How could something be so interesting but yet so irrelevant and degrading to ME sufferers themselves ?

    7 + pages of posts

    I hope no one took this claim seriously

    I'm appalled
    barbc56, geraldt52 and Wildcat like this.
  13. user9876

    user9876 Senior Member

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    I have a theory that with fluctuating conditions as people start to feel a bit better then they try various types of cure and attribute improvements to whatever they tried rather than the natural recovery/remission/improvement that allowed them to try different things.
    barbc56 and SOC like this.
  14. SOC

    SOC Moderator and Senior Member

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    I have yet to see a documented case of a patient who has well-documented ME -- diagnosed by a top medical (not psych) ME specialist using the ICC -- who has recovered using those techniques.

    Yes, it's clear people who were self-diagnosed have recovered using psychological/behavioral techniques, as have people diagnosed by overly broad criteria like the Oxford criteria. Similarly, people diagnosed with CFS or CFS/ME by GPs simply because they are chronically fatigued may have recovered using those techniques.

    The world does not accept claims of cures for other illnesses (such as MS or ALS) if the patient making the claims is self-diagnosed or not diagnosed according to rigorous criteria. Why should we accept such claims for our illness? Recovery claims for other illnesses are expected to be scientifically verified before they are accepted as valid. The same should be true for recovery claims for ME.

    This is not to say the some people who are diagnosed (by themselves or by non-expert doctors) with CFS or CFS/ME don't recover using psychological techniques -- or no treatment at all. The question is whether those recoveries have any meaning for patients diagnosed by experts according to rigorous ME criteria.

    If you know a well-documented case of a patient diagnosed with ME according to rigorous criteria by a medical ME expert and who has recovered, according to a medical ME expert, using psychological techniques, please share it with us. It would be helpful to know who diagnosed them, and ultimately declared them recovered, and what kinds of abnormal test results became normal -- NK cell function or other immune abnormalities, CPET tests, active pathogens, etc.
  15. chipmunk1

    chipmunk1 Senior Member

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  16. Valentijn

    Valentijn Activity Level: 3

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    Drop outs are likely due to court-ordered attendance for a period of time. It's pretty ridiculous in general, since most people being ordered to become sober don't want to become sober. Additionally, relapses are pretty common, especially in the first few months, but rarely after that - hence the lack of long-term studies probably isn't a major problem.

    Basically the author seems to be replacing one source of guesswork with his own guesswork, which isn't an improvement in any way.

    My ex-step-dad was ordered into AA 20 years ago after (finally) being caught driving drunk because his unsecured boat slid off the trailer when he made a turn. And even though he was forced into the program and has one helluva ego, he's been sober since, and now has a sober wife and friends.

    Maybe he was finally willing to make some major changes in his life, which is a pretty huge prospect when you realize it often involves avoiding old friends, and favorite venues and events. But if someone gets ordered into AA without that dedication, of course they will fail.
    rosie26 likes this.
  17. alex3619

    alex3619 Senior Member

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    [Satire] Well, let me propose a solution. She didn't just get better by prayer, it was prayer, on a lay line, with lots of healing thoughts, and there was probably a large natural crystal formation under the ground! Plus of course the placebo effect by the thought of increased influence and donations.
  18. taniaaust1

    taniaaust1 Senior Member

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    Many people who consider themselves bedbound are in basically in bed nearly all the time, may still be getting up to walk to the toilet so hence still able to walk.

    I know after I was what I considered bedbound for 9mths eg in bed all the time except to go to the loo and often I couldnt even walk to the loo 70%-80% of the time (I was using a potty by my bed). I know when I did get okay enough to be out of bed after being bedbound, I was okay walking. It was the ME itself which took away my ability to walk rather then "deconditioning" of my legs.

    Yes my leg muscles were very loose and flabby from not being used but they still worked, we do also move around in bed and esp someone who may be in pain and tossing and turning to get comfortable (I often felt like I was running a marathon from all the tossing and turning in bed).

    I think doctors harp on the effects of deconditioning too much. (I do admit that I ended up injured after being bedbound for so long as my muscles were weak, so I ended up doing a back injury due to them and having to spend a week in hospital due to that). But yeah the point Im making, is that I could still walk after the bedbound period was over even thou I was at risk of injury due to weak muscles.
    Last edited: Jul 15, 2014

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