New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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SEATTLE MEAction Protest - What to put on a Banner?

Discussion in 'General ME/CFS Discussion' started by Justin30, May 2, 2016.

  1. Justin30

    Justin30 Senior Member

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    Hi Everyone,

    My parents are going to the Seatle MEAction protest and will be making a Banner to hold up.

    I am reaching out to the community to get some suggestions of what to put on the banner.

    If you can think of something short and catchy that would be great.

    Ill let everyone know what catch phrase is chosen.

    Thanks in advance for your input.
     
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  2. actup

    actup Senior Member

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    CFS sufferers, the invisible sick of Seattle. Help us become visible. More info at .....
     
    Justin30 likes this.
  3. Justin30

    Justin30 Senior Member

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    Where would we send them to for info? Great suggestion..thanks
     
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  4. actup

    actup Senior Member

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    You're welcome. Maybe someone much better connected than I might be able to suggest a link. Meanwhile I'll research a little.
     
  5. Kati

    Kati Patient in training

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    I would suggest the catchy twitter hashtag " #MillionsMissing. Left behind by HHS "
     
    Last edited: May 2, 2016
  6. JaimeS

    JaimeS Senior Member

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    Hey, @Justin30 -- if you want to be really fancy, you can download the Permanent Marker font for free -- it's what is used in #MEAction's #MillionsMissing stuff.

    Hmm, maybe tell people what you, personally, are missing. What did you used to do that you no longer can? That's the theme: what's missing because of ME/CFS. You might say you're missing biomedical research, or your clarity of thought, or the ability to be at this protest personally!

    -J
     
  7. aaron_c

    aaron_c Senior Member

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    If you want to go for humor, you could borrow from the ME/CFS Downfall Parody. Something like:

    [A Picture of You]
    Saying he has "Chronic Fatigue Syndrome" is like
    Saying lepers have "Chronic Dandruff Disease"
    #MillionsMissing​

    Or on a more serious note:

    [A Picture of You]
    My son's illness affects more Americans than HIV/AIDS.
    His disease is so miserable and the treatments so ineffective that doctors say he would be better off with AIDS.
    But in 2015 ME/CFS got less federal funding than male-pattern baldness.
    #MillionsMissing
    Three cheers for your parents, @Justin30 .
     
  8. Justin30

    Justin30 Senior Member

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    Those are all great might have to get 3 banners lol
     
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  9. SB_1108

    SB_1108 Senior Member

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    Based on AIDS activism:

    Fight ME! Not People with ME!

    What do we want? Money for ME! When Do We Want it? NOW!

    Drug Treatment On Demand! ME Won't Wait!

    NIH and CDC. ME WON'T WAIT! ME MONEY NOW!

    HISTORY WILL RECALL. YOU DID NOTHING AT ALL! ME CLINICAL TRIALS NOW!

    PRETTY SPEECHES CANT SAVE LIVES! ME FUNDING NOW!

    ME ACTION NOW!

    INVEST IN ME!
     
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  10. aaron_c

    aaron_c Senior Member

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    We might want to be careful using the abbreviation "ME." Most people have no idea what it stands for, and I am afraid that we could come off as a joke protest to the casual passerby. I'm not saying not to use ME at all, but saying something like "Fight ME! Not People with ME!" might inadvertently (and somewhat comically) be asking for trouble...

    I also think that in order for ME or ME/CFS to be understood to be an acronym, it is helpful if the other parts of the statement are not all in caps. Fight ME is still better than FIGHT ME :)
     
    Jennifer J likes this.
  11. Skippa

    Skippa Anti-BS

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    Please don't ignore us
     
  12. AndyPR

    AndyPR Senior Member

    Bit of a (possibly) amusing one but putting it out there for brainstorming purposes (and my brainfogged fingers just tried to make that "brian storming porpoises"... :bang-head:).

    What does M.E. need? RESEARCH! (or FUNDING etc etc) When does M.E. need it? NOW!
    M.E. - a biological condition ruining the lives of millions and costing this country billions

    The idea being a reader will initially see ME not M.E. and will scan it again to try to make sense of it, therefore taking in the bottom line as well - in theory at least.
     
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  13. shannah

    shannah Senior Member

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    I love Scott's slogan:

    "Stop the Harm! Start the Treatment! Start the Research!"

    The last document he wrote, I think he added at the end something to the effect of "Start the Inquiry!"
     
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  14. JaimeS

    JaimeS Senior Member

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    Really powerful... :(
     
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  15. JaimeS

    JaimeS Senior Member

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    Haha! Point taken...
     
  16. JaimeS

    JaimeS Senior Member

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    If you want them to get general information on ME/CFS: http://me-pedia.org/wiki/Primer_for_the_public

    If you want them to get general information about the protest itself: millionsmissing.meaction.net/

    -J
     
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  17. Rrrr

    Rrrr Senior Member

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    *GG* and JaimeS like this.
  18. Strawberry

    Strawberry Senior Member

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    When and where is this?

    Thank you in advance
     
  19. JaimeS

    JaimeS Senior Member

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  20. marygelpi

    marygelpi

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    I think if you're trying to make signs that are impressionable and captivating, the shorter the better. (People are lazy and don't like to read long ones. And also you might not have the strength to hold a poster sign that large :lol:) I kind of like the phrase
    "INVISIBLE NO MORE"..it fits with our goal which is somewhat is to be SEEN since we've been ignored/passed over..basically unseen for so long.

    Another idea is to have a sign that says "BELIEVE IN M.E." and then underneath it it can say
    "IT'S A DISEASE, NOT BIGFOOT"

    Or replace bigfoot with SANTA CLAUSE or something like that ;) We might as well make fun of the fact that there are people who don't "believe" in CFS..which I always thought was..well, stupid. Anyway, I'll keep thinking. Y'all rock!
     
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