The Call for Opposition: Challenging the P2P and IOM Processes
In our second article on how to react to the publication of the draft P2P report, Gabby Klein provides her view of why she and a large group of advocates and patients are continuing their protest of the government’s ongoing control and manipulation of our disease via their processes...
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Searching for a parent of a child with CFS to tell their story

Discussion in 'Action Alerts and Advocacy' started by Lynn, Nov 20, 2010.

  1. Lynn

    Lynn Senior Member

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    I represent ME/CFS Worldwide Patient Alliance (MCWPA) -- please check us out at mcwpa.org.

    As you may know, we are placing an ad in the Washington Post to bring attention to our cause. We also will be sending out a Press Release to numerous newspaper sites.

    We have need of a young volunteer who is afflicted with CFS or their parent to be a media contact should a journalist be willing to dig deeper. It is important that we let the world know the story of what it is like to be a child afflicted with CFS.

    Do you know anyone or their parents that might be interested in telling their story for a good cause? Or if you dont know someone personally, could you point me in the direction of a Doctor who treats children with MECFS?

    This campaign could do a lot for our cause.


    Warm regards,


    Lynn
     
  2. allyouneedislove08

    allyouneedislove08

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    I would be interested in being a press contact. I am currently 21 and have had chronic fatigue syndrome since I was 14. Please let me know what I can do to help.
     

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