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Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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Searching for a parent of a child with CFS to tell their story

Discussion in 'Action Alerts and Advocacy' started by Lynn, Nov 20, 2010.

  1. Lynn

    Lynn Senior Member

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    I represent ME/CFS Worldwide Patient Alliance (MCWPA) -- please check us out at mcwpa.org.

    As you may know, we are placing an ad in the Washington Post to bring attention to our cause. We also will be sending out a Press Release to numerous newspaper sites.

    We have need of a young volunteer who is afflicted with CFS or their parent to be a media contact should a journalist be willing to dig deeper. It is important that we let the world know the story of what it is like to be a child afflicted with CFS.

    Do you know anyone or their parents that might be interested in telling their story for a good cause? Or if you dont know someone personally, could you point me in the direction of a Doctor who treats children with MECFS?

    This campaign could do a lot for our cause.


    Warm regards,


    Lynn
     
  2. allyouneedislove08

    allyouneedislove08

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    I would be interested in being a press contact. I am currently 21 and have had chronic fatigue syndrome since I was 14. Please let me know what I can do to help.
     

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